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About baldridgem

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  1. It's hard, very hard to give up foods we love. My Thanksgiving dinner was: Turkey, green beans and squash, My sister made a crustless pumpkin pie for me. However, I'm just glad its not something a lot worse. Like my sister has macular degeneration and is legely blind. It's heart breaking to watch her try to read with a magnifing glass. So as difficult as it is :Count Your Blessings
  2. It was a Dr. Klien. My pcp refered me to him for evaluation-- she thinks I should have a colonoscopsy (sp). He walked into the room with the referal, my medical records and a new patient quiz I filled out and said " Why are you here? HUH? I explained my symptoms etc. Thats when he told me I could'nt be GS. I corrected him on that point. Then to top it all off he asked me "Well, what do you expect us to do for you?" I told him "Nothing, I'll just do the GFD for now and consult with my pcp. I've been gluten-free for about a month now with some improvement in symptoms. There's a lot to learn about this new lifrstyle. Mary
  3. There are support groups here in Albq. Just type Celiac Support Groups in Albq. in your browser to get a list. I don't belong to a group yet. I've just been dx with gluten sensitivity and am still trying to started on the GFD. As for a GI-well I haven't found one yet that seems to know much about Celiac Disease. The last one I saw told me flat out that if I don't have chronic D I don't I'm not gluten sensitve.
  4. Thanks, everyone. Its Entrolab-I'll order the test today!!
  5. What is the most accurate test for celiac? I've read that the blood test is'nt as accurate as the stool test. I've had IBS for 17 years now and getting worse! I think I may have celiac or gulten senstive. My doctor wants me to try IBS meds. I have tried them at the beggining of my tummy trouble-they did'nt help. I'm considering going on my own and ordering either York or Entrolab. Any advice? Mary
  6. I just read on another forum that a person gave up wheat and had an improvement in her vision. Has there been any research on the relation of gluten and vision? This is important to me as I have 2 sisters with macular degeneration. If there is a relation I want to send them the info.
  7. My sister can not gain weight.I think she may have celiac disease. She gets weak,dizzy spells. I'm really worried about her. Shes been to a GI-had tests for ulsers etc. but not for celiac disease. Do these symptoms sound like celiac disease. Mary
  8. Starches and sugar are no-no for me. MB
  9. For those of us that are not improving on the gluten-free diet I recomend the Specific Carboydrate Diet. It excludes starches and sugars. It is strict.It works!!MB
  10. I think many of us have celiac loong before we are dx. I was 59 before I started having severe adominal pain and was dx as IBS. I'm 74 now. Its been 15 years trying to figure out what I can or cannot eat. It's a relief knowing its mostely gluten and maybe milk products. I'm having more tests done, I'll konw in a few weeks MB
  11. My sister has spells of lightheadness and weakness. Shes had scans of her head,lungs,etc all neg. Could these be symptoms of celiac? MB
  12. To all you folks that are not feeling better on a gluten-free diet. May I subjest you try the Specific Carbodyrate Diet. Go to Breaking the Vicious Cycle for info. MB
  13. I have been on SCD for 2 years now. I have IBS and celiac. It does work I've had a lot of up and downs-trying to figure out what I can and can't eat. I can't eat some of the legal foods on the diet-its trial and error. MaaryB