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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About henny

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    1. henny added a post in a topic Less Sensitive....testing?   

      thanks for your thoughtful response.

      It seems like every story I heard from people had them getting more sensitive with time, not that not universal?

      I am certainly grateful that my recent glutening did not leave me on the floor like it used to, but now all I can think about is C H E A T I N G! *evil laugh*
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    2. henny added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Less Sensitive....testing?
      I have been gluten free for over 2 years. When I went gluten free I was SO sensitive to it. My family all have celiac. I never got tested, since the gluten-free diet seemed to solve all my problems and my family history was so strong.

      Fast forward to now. I got glutened the other day in a big way and had little to no symptoms, which throws everything into doubt now for me.
      Should I start eating gluten again and pursue testing? Do no symptoms mean I'm not celiac after all this time? What the heck is going on?

      Thanks for listening...very confused now.
      • 2 replies
    3. henny added a post in a topic Early Menopause?   

      Thank you both for the information!

      You are right - my regular doc, who thought my stomach pain was 'nerves' for 12 years, refused to consider perimenopause or do any tests.
      I will be seeing an OB/GYN soon that I was referred to by my psychiatrist, who is concerned that my recent out-of-the-blue bipolar symptoms may be hormonally-triggered. My mother went from unipolar to bipolar at this age and had perimenopause also at the same time (she is diagnosed celiac)

      I am having many symptoms but am still having a tiny bit of period most months. The trouble is that I am on birth control pills so I *should* be having normal periods just due to those. For about the past year I have had some strong periods but mostly just a hint of one, which is absolutely not normal for me.

      Anyway, I'm gonna get it all checked out but was glad to hear your experiences. Advice from fellow travelers is immensely comforting, as always.
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    4. henny added a topic in Celiac Disease - Related Disorders & Research   

      Early Menopause?
      I'm 38 and didn't go gluten free until about 2 years ago after having pretty bad symptoms for at least 12 years.

      I have been having many menopause symptoms for the past year! I plan to go get myself evaluated and hormone levels measured very soon (had to save up the cash), but isn't this way too young?
      Anyone know if untreated gluten intolerance can bring about early menopause? Could going gluten free and getting my energy back have brought this on?

      (I am from a diagnosed celiac family but did not pursue diagnosis myself so I just refer to myself as gluten intolerant.)
      • 9 replies
    5. henny added a post in a topic Can Lactose Intolerance Develop After Celiac   


      It happened to problem with lactose until about 3 months after I went gluten free. Then it was really bad for about a year and cleared up completely after about 18 months. I hear it doesn't go away for everyone, but it did for me.
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    6. henny added a post in a topic Did You Have A Trigger That Started Your Symptoms?   

      Ha! Too funny! It's amazing how chronic pain can warp your mind and sense of humor!

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    7. henny added a post in a topic Did You Have A Trigger That Started Your Symptoms?   

      I too think I had multiple triggers that made my symptoms progressively worse.
      I had the standard, severe stress, traumatic illness.
      Each time I had a worsening of my symptoms that never backed off. Eventually after the last trigger I was unable to keep anything down and was in crippling pain for several weeks straight. When I stopped eating entirely for a few days and then re-introduced foods one at a time it was clear what was wrong with me.

      I look forward to my next life trauma (not really) because I know it won't lead to more debilitating GI issues....YAY!
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    8. henny added a topic in Celiac Disease - Coping With   

      Vomiting Without The Other Stuff?
      I have reason to believe I was glutened last night - found something suspicious in my order while eating out and didn't feel like sending it back.

      Anyway, I was up all night vomiting, but had none of the characteristic stomach cramps and diarrhea that I always associate most with my gluten reactions, with or without vomiting.

      Could this be a gluten reaction without the lower GI stuff, or something else like food poisoning or virus?
      • 2 replies
    9. henny added a post in a topic Drinking With Celiac Disease   

      It's that I feel pretty good most of the time I have lost my taste for drinking!
      Now that I'm basically healthy I really notice how crappy I feel after having a drink or two.

      I also have found that red wine gives me a headache. I never noticed it before over the noise of the gluten-headache I had for 25 years! LOL! Man things are so different for me now

      So now, I will have some white wine every so often when there's a special occasion but that's it.
      At a party I might have a cider but only one! I'm drunk on life these days I suppose.
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    10. henny added a topic in Gluten-Free Foods, Products, Shopping & Medications   

      The. Best. Cookie. Evah!
      I recently bought some gluten free cookies
      and let me tell you, I almost cried with joy over how wonderfully moist and flavorful it was!
      It was the first truly satisfying bakery item I have had since going gluten free.

      Anyway, they ship, and seem like a good company! They are ALL Vegan cookies, and they have three gluten free flavors.

      I had the ginger molasses cookies, and they were practically a religious experience.
      I'm going to try all three gluten free flavors real soon!
      • 3 replies
    11. henny added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Frustrated! Should I Test Or Not?

      I went gluten-free about 5 months ago and had an immediate and profound relief from my symptoms, which included almost daily migraines, GI symptoms, and extreme stomach pain.

      I identify myself as 'gluten intolorant' and am fine with the dietary restrictions.
      A majority of my mother's side of the family have definitive diagnoses of Celiac.
      My mother has symptoms that respond to diet, but was negative on the blood test.

      People keep telling me I should get tested. My husband's gastroenterologist (DH has Crohns' and for some reason decided to tell his doc my story) insists I go back on gluten and get tested. Friends of ours are all on my case about testing, and now my husband is bugging me about it! Ironically, it was his idea that I 'try the diet' instead of getting tested way back when I first suspected gluten and talked to him about my options - to test or not.

      Everyone is driving me nuts and making me feel like I'm not taking care of myself! My thinking is: WHAT will I gain from going through the misery and getting tested? I refuse to do it just to stop the nagging, but it's getting really depressing having people I care about disapprove of my decision. Truthfully, if I tested and it was negative, I would still go back on the diet! I feel like all I will gain by being tested is a new pre-existing condition I can be descriminated against with.

      Please tell me what I should do!
      • 4 replies
    12. henny added a post in a topic Potential Cure Getting Closer?   

      I agree! I actually love the gluten free diet and what it has done for my health. I think it's a truly healthy way to eat and live.

      My only desire is to be able to eat what I truly believe is gluten free while out at a restaurant or someone else's home AND IF it turns out to be CC'd I'd like to be able to avoid the horrible results.
      I'll continue to do my part, but would take a pill as insurance before eating in an uncontrolled situation. I won't go off the diet, no matter how good the pill might be.
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    13. henny added a post in a topic So Frustrated!   

      thanks guys

      good advice about not over-analyzing....I need to focus on the fact that overall I'm MUCH better...the daily crippling stomach pain and fatigue is gone unless I make a mistake - which isn't too often.

      WHAT is DPP-4? I travel a lot and can't always be sure about cross contamination or non-obvious ingredients. Something to help with trace amounts would really make a huge difference in my quality of life!
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    14. henny added a topic in Celiac Disease - Related Disorders & Research   

      So Frustrated!
      Although the gluten free diet has made a huge improvement in my GI and overall health, I am getting really frustrated with all the new issues that are cropping up!

      I'm 4 months gluten free.
      The first month was heaven!
      The second month I found that when glutened my reaction was waaay worse than it used to be...OK, gotta live with that. Only a problem when I travel but OK.
      The third month I suddenly became lactose intolerant - even butter gives me problems. Ok, so I cut that out (not terribly hard to do except when traveling)
      Now in the fourth month I am suddenly allergic to all kinds of things! I have huge burning itchy rashes from soaps, laundry detergents, lotions, even hydrocortizone cream burns my skin! I keep switching things and getting rid of one rash and before you know it I have another rash from another source.

      I feel like my immune system used to be preoccupied with reacting to gluten and now that it's not so busy it's wreaking havoc on all my other systems. When does it end?

      I'm a little testy also because I travel for business quite a bit and over the weekend had a terrible glutening despite my best efforts. UGH! This is IMPOSSIBLE~!
      • 5 replies
    15. henny added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)   

      Female Trouble
      ok, this is kind of icky but I really want to know if anyone has had this experience.

      I have been gluten free nearly 4 months and feeling awesome.
      However, my periods are much heavier now. Not more painful or anything, just with more flow.
      Let me put it this way...I haven't needed a feminine hygiene product in 20 years. That's how light I am....a little extra wiping when I went to the loo was all I needed.
      Now I may need to actually buy tampons next month. I forgot how nasty this business is LOL!

      could this be a nutritional deficiency that is now resolving due to my improvement on the gluten-free diet?
      my metabolism is all kinds of better in many ways, so it won't surprise me if this is part of it.

      common story? let me know!
      • 11 replies

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