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henny added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsLess Sensitive....testing?I have been gluten free for over 2 years. When I went gluten free I was SO sensitive to it. My family all have celiac. I never got tested, since the gluten-free diet seemed to solve all my problems and my family history was so strong.
Fast forward to now. I got glutened the other day in a big way and had little to no symptoms, which throws everything into doubt now for me.
Should I start eating gluten again and pursue testing? Do no symptoms mean I'm not celiac after all this time? What the heck is going on?
Thanks for listening...very confused now.
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henny added a topic in Celiac Disease - Related Disorders & ResearchEarly Menopause?I'm 38 and didn't go gluten free until about 2 years ago after having pretty bad symptoms for at least 12 years.
I have been having many menopause symptoms for the past year! I plan to go get myself evaluated and hormone levels measured very soon (had to save up the cash), but isn't this way too young?
Anyone know if untreated gluten intolerance can bring about early menopause? Could going gluten free and getting my energy back have brought this on?
(I am from a diagnosed celiac family but did not pursue diagnosis myself so I just refer to myself as gluten intolerant.)
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henny added a topic in Celiac Disease - Coping WithVomiting Without The Other Stuff?I have reason to believe I was glutened last night - found something suspicious in my order while eating out and didn't feel like sending it back.
Anyway, I was up all night vomiting, but had none of the characteristic stomach cramps and diarrhea that I always associate most with my gluten reactions, with or without vomiting.
Could this be a gluten reaction without the lower GI stuff, or something else like food poisoning or virus?
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henny added a topic in Gluten-Free Foods, Products, Shopping & MedicationsThe. Best. Cookie. Evah!I recently bought some gluten free cookies
and let me tell you, I almost cried with joy over how wonderfully moist and flavorful it was!
It was the first truly satisfying bakery item I have had since going gluten free.
Anyway, they ship, and seem like a good company! They are ALL Vegan cookies, and they have three gluten free flavors.
I had the ginger molasses cookies, and they were practically a religious experience.
I'm going to try all three gluten free flavors real soon!
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henny added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsFrustrated! Should I Test Or Not?GrRRRrrrr.
I went gluten-free about 5 months ago and had an immediate and profound relief from my symptoms, which included almost daily migraines, GI symptoms, and extreme stomach pain.
I identify myself as 'gluten intolorant' and am fine with the dietary restrictions.
A majority of my mother's side of the family have definitive diagnoses of Celiac.
My mother has symptoms that respond to diet, but was negative on the blood test.
People keep telling me I should get tested. My husband's gastroenterologist (DH has Crohns' and for some reason decided to tell his doc my story) insists I go back on gluten and get tested. Friends of ours are all on my case about testing, and now my husband is bugging me about it! Ironically, it was his idea that I 'try the diet' instead of getting tested way back when I first suspected gluten and talked to him about my options - to test or not.
Everyone is driving me nuts and making me feel like I'm not taking care of myself! My thinking is: WHAT will I gain from going through the misery and getting tested? I refuse to do it just to stop the nagging, but it's getting really depressing having people I care about disapprove of my decision. Truthfully, if I tested and it was negative, I would still go back on the diet! I feel like all I will gain by being tested is a new pre-existing condition I can be descriminated against with.
Please tell me what I should do!
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- 741 views
henny added a topic in Celiac Disease - Related Disorders & ResearchSo Frustrated!Although the gluten free diet has made a huge improvement in my GI and overall health, I am getting really frustrated with all the new issues that are cropping up!
I'm 4 months gluten free.
The first month was heaven!
The second month I found that when glutened my reaction was waaay worse than it used to be...OK, gotta live with that. Only a problem when I travel but OK.
The third month I suddenly became lactose intolerant - even butter gives me problems. Ok, so I cut that out (not terribly hard to do except when traveling)
Now in the fourth month I am suddenly allergic to all kinds of things! I have huge burning itchy rashes from soaps, laundry detergents, lotions, even hydrocortizone cream burns my skin! I keep switching things and getting rid of one rash and before you know it I have another rash from another source.
I feel like my immune system used to be preoccupied with reacting to gluten and now that it's not so busy it's wreaking havoc on all my other systems. When does it end?
I'm a little testy also because I travel for business quite a bit and over the weekend had a terrible glutening despite my best efforts. UGH! This is IMPOSSIBLE~!
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henny added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Female Troubleok, this is kind of icky but I really want to know if anyone has had this experience.
I have been gluten free nearly 4 months and feeling awesome.
However, my periods are much heavier now. Not more painful or anything, just with more flow.
Let me put it this way...I haven't needed a feminine hygiene product in 20 years. That's how light I am....a little extra wiping when I went to the loo was all I needed.
Now I may need to actually buy tampons next month. I forgot how nasty this business is LOL!
could this be a nutritional deficiency that is now resolving due to my improvement on the gluten-free diet?
my metabolism is all kinds of better in many ways, so it won't surprise me if this is part of it.
common story? let me know!
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- 1,548 views