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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About Kathy_W

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  1. Hi Vicki, Thanks for your reply. I have heard that hormone pills do work, but they are not an option for me at all. I asked my Rheumatologist if I could try them, because my Sister-in-law is using them and they help with the hot flashes and he said absolutely not. He shot it down quick, fast, and in a hurry like, because he told me it will put me into a severe Lupus Flare. Oh well. If you don't have Lupus, ask your doctor about it. Kathleen
  2. Hi. I forgot to mention in the other posts about some of the symptoms that led to me being diagnosed with SLE (Systemic Lupus). I have serious problems with sun sensitivity and actually sunburn through the car windows which is definitely not normal. If I am in the sun to long, I get a very severe headache with nausea and vomiting. One time at a family outing, I was in the backyard under the shade trees, but that did not matter and I became dizzy and passed out. I came to on the couch at their house. Once I got out of the sun and in the house, I felt better immediately. I thought I was ok and went outside again. I was outside for a grand total of about 5 minutes and got dizzy again. I was losing my hair, had very severe joint pain and pain in the bottem of my feet to the point where I could hardly walk. I had breathing problems. I had severe night sweats. I had Costal Chondritis in my ribs on the right side. My hands and feet are extremely sensitive to hot and cold. I had Sjrogrens Phenomenom. I had the malar rash on my face. My RA is negative, but I have Osteo Arthritis in my joints and my hips and lower spine. The doctor told me that the arthritis showed up on the x-rays they took on me. I have a serious family history of Lupus and celiac disease. My younger sister had a Lupus related stroke about 14 years ago and is paralyzed on the left side. I don't remember what the number was for my positive ANA, because it was done in 1996 when I got diagnosed. I had a high Sedrate also. I also had heart arythmia. My heart was not beating right. I hope this helps for the folks that may have Lupus. I also have a lot of celiac disease symptoms and am being tested for that now. Like I said before my twin sister has severe celiac disease. Well good luck all. Kathleen
  3. Thank you so much celiac3270. I do feel better about it. I will let everyone know what is going on. I think I will find out on the 2nd of next month when I go back to the Rheumatologist. My twin sister told me the same thing, because she knows I panic very easily. Kathleen
  4. Hi I finally found the forum that addresses Lupus. I have a twin sister with severe celiac disease. I have a younger sister that is also a twin who has Lupus. Well for years I had very mild Lupus symptoms and did not realize it. That is until I turned 35 years old and contracted the Chickenpox. After I got over that, my health went down badly. I had very severe joint pain and my fingers would swell up and the knuckles would turn bright red and hurt, hurt, hurt. My knees did the same thing. I had terrible indigestion and a problem with having having a dry mouth and eyes. I developed severe breathing problems. I ended up with the malar rash on my face that happens with SLE. I eventually made my way to the doctor and got tested for Lupus. The tests all indicated it. I also had bad bouts of the night sweats. I was sent to a Rheumatologist who absolutely confirmed that I definitely do have SLE. I am on anti-inflammatory medication and plaquenil and Imuran. These drugs have helped the Lupus problems big time, but I have some bad celiac disease symptoms and they now suspect that I have that too. I have read that celiac disease and Lupus are related. Well I don't know what else to say. I am on a gluten-free diet now. Kathleen
  5. Thank you Tiffany. I will have it done if I have to. I am afraid, because I don't want to end up dead. My sister told me that celiac disease that is left untreated can lead to your demise. I would not listen to my sister for a long time, because I guess I was in a state of denial. I thought man if I got this then I am in big trouble, because I like to eat unfortunately. I also have Lupus and that is a devestating illness too. I have that under control, but this problem with celiac disease is not under control and I have to get it under control too. I am trying to be glutan free, but have trouble finding foods that are glutan free. The regular grocery stores do not sell the special flours etc. I do definitely have to get this under control. I am sick of the many trips to the bathroom with severe episodes of diarrhea. I will post it if I have to have the biopsy done. Hopefully the blood test will show what is going on and I won't need the biopsy. Wish me luck. Kathleen
  6. Hi my name is Kathleen. I don't know if I am in the right area of the forum, but I need to find out some information. I too have mentrual problems. I have heavy bleeding and always have and they last 5 to 7 days. I am 45 now and going through menopause, I think. I get the the hot flashes from hell. I get a severe headache the first day of every period. I mean the put you to bed for the day type of headache. I have never had menstrual cramps or back aches, but have severe PMS. You can not live with me for the first day or so. I also have been diagnosed with SLE (Systemic Lupus Erythmetosis) in 1997. My Lupus doctor told me that Hormones are definitely out of the question. They could send me into a severe Lupus Flare. What I am wondering is do Lupus and celiac disease ever go hand in hand? I am being tested for celiac disease, because my twin sister has celiac disease and I have a lot of the symptoms of it. If anyone has any answers could they please post and talk with me about this? Thanks Kathleen W.
  7. I talked with my twin sister, who has celiac disease that was confirmed by an intestinal biopsy several years ago as I too am very afraid of having that done to me. She assured me that it is not that bad and that they do sedate you. She said it only takes a few minutes to do and you don't feel it. She told me that the tube is not that big and that you really should not have a problem with breathing during the procedure. I hope that she is right. I think she is, because she has been through it. She made me mention my problems, because she scared me big time. She told me that if celiac disease goes untreated and you have it and do not go on a glutan free diet it can and will cost you your life. That got my attention big time. Good luck to you and to me. Kathleen
  8. Wow, to think that they threw the specimen out! I feel sorry for your brother. I can imagine how he felt. I would be very upset if that happened to me and somebody would defintely hear about it. Kathleen
  9. Thank you so much for answering my post, because I thought I was going to go insane. Shoot I thought I was a hyperchondriac etc. I am very much overweight and my twin sister is very thin and tiny built. I am tall also. My twin sister has celiac disease but she does not ever get the nasty itchy blistery rash like I get. I also have Systemic Lupus. For years my sister kept telling me that I am glutan intolerant, but being the stubborn person that I am I refused to listen to her until the situation has truly gotten seriously desperate. This past weekend my twin came to visit me and again after a terrible day of constantly visiting the bathroom with horrible stomach cramps and severe diarrhea she got my attention. She told me to make an immediate appointment with my Lupus doctor and talk with him about what is going on and tell him about her having celiac disease and that she is my twin sister. I did that and I asked him if it could be possible that I am very glutan sensitive and if that could be causing this nasty rash I get. His mouth literally dropped openned and he said, "Why didn't I think of that"? He immediately ordered blood work on me to test for some type of antibodies. I also have a positive ANA antibody found in Lupus. My life has been a real nightmare and a lot of it is my own fault, because of being stubborn. I wish that I had listened to my sister years ago and then maybe my situation would not have gotten so totally out of control. I am very glad for this site. I am going to use the recipes from this site too.
  10. Hi all. My name is Kathleen. I love this site and the forums that I have read so far. My twin sister has celiac disease really bad and is on a glutan free diet and has been on one for several years. This is weird, but I have SLE (Systemic Lupus Erythmetosis). Anyway for years I have had this horrible blistery itchy nasty rash on the palms of my hands and fingers and on the bottems of my feet and between my toes and on my toes. I have serious bathroom problems for example terrible bouts of diarrhea and gas etc. It is really bad for sure. She lives in Florida and I live in Georgia and she came up for a visit. She talked with me about my problems that I am having and the several trips to the doctor that sees me for my Lupus. She told me that I should be tested immediately for glutan intolerance since we are twins and I most likely have celiac disease. Well it turns out that I do definitely have it and have to go on a gluten-free diet. I am very new and this is really hard. She had been trying to tell me for several years and I unfortunately would not listen until it became very severe. When I told her the news she said see I have been telling your for years that you may have celiac disease and you would not listen to me. I guess I was in a terrible state of denial, because man I love cookies, cakes, breads etc. Thanks for letting me share. I am going to check out the recipes in this site and buy me a bread making machine. Feel free to email me if you like. Kathleen W.
  11. Well my blood type is A positive. My mother's blood type was O positive and my father's blood type was A negative. I don't know what that means, but I do have the dermatitis problems big time. I am being tested for celiac disease. Interesting though don't you think? I also have Systemic Lupus. Oh well.
  12. Does This Sound Like Dh?

    Oh thank heavens I found this place. I have finally found the answer to my problems big time. I have a twin sister with Celiac Sprue, but she does not have the skin problems that I have. I also have SLE, Systemic Lupus. I have a positive ANA for Lupus big time. I have a very servere itchy blistery rash on my hands and feet big time. The blisters break and ooze big time. I have to been running to my doctor constantly, because man I can not work with this problem at all. He put me on all kinds of medications to clear this up and nothing at all has worked. My twin sister saw my hands this weekend and told me straight up that I am glutan sensitive. I decided to listen to her and I immediately made another doctors appointment for yesterday and addressed this with him and he looked shocked and said, "That is it, why didn't I think of that"? He immediately ordered blood work and told me to get on a glutan free diet immediately. I can not drink milk or eat eggs what so ever without becomming immediately and acutely sick. Well what do you think? Sorry if this is rambling, but I am so glad to have found this site.
  13. I don't quite know what to say, but I have a twin sister with severe Celiac Sprue. I have Lupus, SLE, but I have a lot of the same symptoms that she has. My twin sister is very thin and I am very much overweight. I have the terrible bloating and severe diarrhea if I eat pasta or anything that contains glutan. I also have a serious eczema blistery rash on my hands and feet. Just yesterday the Lupus Specialist that I see for the Lupus told me that he was up against the wall, because he did not know what to do about my hands and feet and other severe problems. I can not drink milk at all or eat eggs without becoming acutely sick. I told him my symptoms and he shook his head and said that is it! Why didn't I think of that. He immediately ordered a test on me for some kind of antibodies in my blood. He told me that the glutan may very well be a big cause of the severe blistery eczema rash on my hands and feet. Well what do you think? I have to get on a glutan free diet. I am very new to this.