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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About xzandra

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    1. xzandra added a post in a topic Symptoms And Approaching It....   

      Okay, I'll keep eating the same...would the Plant Enzyme pills I just started taking increase the risk of a false negative too? I am supposed to take them whenever I eat a meal....they help a little .

      So if I get a negative on my test....what do I do? Should I still try a gluten free diet or wait for allergy testing? Apparently if I am diagnosed with Celiac, the government will help pay for my food (which would be a huge relief) if it is negative what do I do?

      I feel lost...I dont know what to do if it comes back negative, I can't keep living like this...and people here might be the only ones who understand.

      You have inspired me, that if your anxiety and depression were caused by celiac...if those went away....I don't know who I'd be, in a good way. Its like my health problems are all I am anymore...I had no idea that the problems with my stomach could even be related to, causing, my mental health problems...I'm thinking about dropping out of University....but now, if I feel better...I don't know.

      I know its horrible, but I hope it is Celiac....just so I have an answer....
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    2. xzandra added a post in a topic Symptoms And Approaching It....   

      I will do that I am going to ask to be tested for Celiac disease, and I am waiting to get my allergy testing apointment, to see if I have any other food allergies. If this doesn't end up being correct....I don't know what to do next. My GP diagnosed me with IBS, aka he doesn't know. If it doesn't end up being Celiac, does anyone have any suggestions as to where to go next? Should I ask to see a GI specialist?

      And would anyone know if I start eating some gluten free foods, if it will change my test results for the Celiac screening, or an allergy test for gluten?
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    3. xzandra added a post in a topic Symptoms And Approaching It....   

      Thanks Roxie....I'm sorry I missed your post before! It is nice to know that someone with a diagnosis had felt the same way I do...its so hard, when everyone (including my mother sometimes) thinks I am faking it, or exaggerating. All I want is to feel better.
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    4. xzandra added a post in a topic Symptoms And Approaching It....   

      Thanks SGWhiskers, my mom and I were talking about it and I am going to go to the health clinic at school. I've been there once before, and the doctors were great. My GP...their whole office...has claimed to do tests in the past, but they aren't in my file. And the thing with how I 'refused' a test at the hospital, that never happened.

      But do you, or does anyone, think this sounds like Celiac?
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    5. xzandra added a post in a topic Symptoms And Approaching It....   

      Not in a position to. I've switched once, back to the doctor I had as a kid. But there is only one doctor's office in town and they don't LET you switch. Its so frustrating. Because they have this 'file sharing' form...and so many people don't even have a doctor... But thanks for the name of the tests I need to ask for
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    6. xzandra added a topic in Celiac Disease - Pre-Diagnosis, Testing & Symptoms   

      Symptoms And Approaching It....
      I've had a number of health issues over the last few years, which have come to a climax recently.

      I am an 18 year old female, and my mother and I think I might have Celiac disease.

      I have been dealing with depression and anxiety for many years now, but my emotions have become increasingly unstable. I have a lot of trouble with focusing, and paying attention. I am constantly irritable and have complete disinterest in things I used to love.

      I've been having a number of problems with my stomach, I am in near constant pain, with severe nausea. I don't always throw up, but I constantly feel like I need to. I had an ultra sound, which came back normal. My weight fluctuates a fair amount, without a change in my diet. I've had a lot of abdominal bloating. I can't eat alot at once, but I always feel hungry, sometimes I crave something like I never have before. Even eating what I really want doesn't always make it go away. My bowel movements are slightly more frequent but very different from eachother.

      I am always tired, no matter how much I sleep. I feel weak all the time, and it takes so much energy to do the smallest thing.

      My skin and lips are always dry, no matter what I do. I also have dry mouth all the time. I've had sores in my mouth that dont seem like canker sores and I've never had a cold sore.

      I have alot of back pain, all over but mostly in my middle and lower back. My hands cramp easily, and I get leg cramps alot. I also get cramps in my shoulders. I get tremors in my hands sometimes.

      I have a headache 24/7 and had that headache for a few years now. I have panic attacks sometimes, and my eyes are deteriorating steadily even though they are healthy according to my optometrist. (I have reading glasses, and glasses for distance. I'm 18!!! I didn't even start wearing glasses until I was about 12 or 13).

      I also have athsma, and when I had allergy testing about 18 months ago, at the athsma clinic I was told I have a sensitivity to milk, before that point we assumed I was lactose intolerant like my mother.

      Because of the stomach problems, I had blood work done, and an ultrasound. The bloodwork, they said was normal (a few years ago, when I was having problems I was told I had problems with my iron, and electrolytes, so those aren't on there anymore? even though I feel the same). The ultrasound was clear, they tested everything, I am assuming, except internally (they were supposed to, but never asked or did so. I think they told my doctor I refused, untrue). I've been on too many anti-depressants, and other drugs for my mental health and they never really work all that well, alot of them made me sicker. I've been tested for alot of stuff and there has never been anything wrong with me. Everyone thinks I am making it up, or faking. But no one would want to feel like this, least of all me.

      So, does this sound like Celiac? And how do I go about asking my doctor to test me for it? He doesn't think very highly of me....but I need answers....I can't keep living like this, every day is a struggle. So what test do I ask him to do?
      • 11 replies

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