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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About Tallforagirl

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  • Birthday 10/17/1975

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  1. Happy birthday and may God bless you today!

  2. Thanks Mushroom! I'll look those up. Cookies sounds good - mmmm, coookiesss!
  3. Hello, I have been AWOL from the board for a while, and guess what, I am only back cause I need something Can anyone in the Auckland city area advise on availability of gluten free bread from grocery stores over there? I'll be in Auckland after Christmas and I'll be staying in a hotel. I'm thinking about taking a toaster with me so I can make toast as a snack during my stay, but if possible want to avoid having to take a supply of gluten-free bread as well. If anyone can recommend cafes/restaurants in Auckland CBD as well, I'd be very grateful!
  4. Testing For Celiac

    There can be other causes for villous atrophy, so do make sure your doctor rules out any other causes before diagnosing celiac disease. Since you don't have positive blood panel results it may not pay to jump to conclusions before checking out all possibilities. Other causes of villous atrophy include: "Cow
  5. There's an article on the main site that may help you shed some light: Since it's not the tTG test that has come back positive, but the anti-gliadin (I'm assuming this is the IgG test you quoted), which is a less reliable test, I would be asking for an endoscopy to confirm the diagnosis and to check in case there is anything else going on in there. You'd need to stay on gluten until the endoscopy has been done. Another blood test you could ask for which is almost 100 per cent specific but less sensitive than the tTG IGA is the anti-endomysial antibody test (EMA).
  6. A Little Confused

    Which tests did you have exactly? The anti-endomysial antibody test (EMA) is very specific for celiac disease, almost 100 per cent. The tTG (tissue transglutaminase) is the next most specific but can be false-positive if other autoimmune disease is present. Anti-gliadin tests are much less specific and are falling out of favour for diagnosis of celiac disease. If you had a positive EMA it could be that the biopsy was misread. You could ask for it to be re-examined by a specialist. If you were diagnosed on the basis of a positive anti-gliadin test alone, and have no symptoms, it could be a false positive, but if you're going back on gluten you may want to retest in a couple of years just to be on safe side. When I was first tested for celiac disease the blood tests were positive (don't have numbers) but biopsy negative. I stayed on gluten and I went on to develop "full blown" celiac disease with all tests positive, including an EMA.
  7. Hi... Just Diagnosed :-(

    Hi Scott, It does seem really overwhelming to start with, but I promise it gets easier and easier. As others have said, the best thing is to be prepared. I bring my lunch every day to work and nuke it in the microwave - I usually just make extra at dinner and bring leftovers. (Note: this does not work well with gluten-free rice pasta which is horrible the next day). Though I am a nine-year expat living in Melbourne, I often drop in on this UK Coeliac forum: and there are some great people on there who can provide you with advice about gluten-free products in the UK and tell you how you can get all sorts of goodies on prescription. Apparently they have just brought out some fantastic new "just like real bread" bread in the UK, called Genius, so you have been diagnosed just at the right time. You can get it only at Tesco right now. It's a good idea if you get an appointment with a dietician who is well-versed in the Coeliac/gluten-free diet at this stage, so you know how to read labels to work out what you can still eat, as much as what you can't. Best of luck.
  8. You just learned an important lesson, which is when you're going out to eat gluten-free it's best to check beforehand that there are options available. Even things like chips can be a problem, because while they are gluten free they may be cooked in oil which is used for other items which aren't (breaded or battered foods), and this means they are likely to be cross contaminated.
  9. My younger sister was diagnosed with RA at around 25 years of age too, and because of that they screened for other autoimmune conditions including celiac disease, which she tested positive for. She says the gluten-free diet hasn't really helped with the RA, but I know in the past she has been less than strict with it. The good thing about YS being diagnosed is that now my older sister and I have been tested and diagnosed too, which we definitely wouldn't have without YS being diagnosed first. My physiotherapist told me she was trained to be aware of possible link between inflamed/sore joints and celiac disease.
  10. Mine was given as ">200" too (on the scale from the laboratory that did my test, anything over 20 was positive). I guess if it's that high, you don't need an exact number to know it's most definitely positive!
  11. I'm Planning My Cheat Day

    I know where you're coming from. I must've looked at my blood test results and biopsy report 20 times and looked everywhere on the internet to try to find something that would tell me it's possible for both tests to be false-positive. It's only when I had the positive EMA blood test, which is as near 100 per cent accurate as you get, that it finally sunk in. If you think about it, there are plenty of things that can go wrong with your health and you might not know until they get to an advanced stage. Those of us without (many) symptoms who've been tested for whatever reason and discovered we have celiac disease, are very lucky. It's a chance to affect your future health for the better, and it shouldn't be taken lightly. Having said that, I believe one day of "cheating" is unlikely to be very damaging in the long term.
  12. Getting Tested

    You may not need to know, but if you're not going to get tested I'd err on side of caution and get a full blood count and bone density test. Vitamin deficiencies and osteoperosis are very common amongst undiagnosed celiacs, but both treatable if caught early.
  13. I'm Planning My Cheat Day

    If I was going to cheat it wouldn't be with junk food. I don't know about Fargo's Pizza or Sonic, but any time I've ever had KFC or BK I was left wondering why I bothered. It just tastes of salt, fat and sugar. If I were going to cheat it'd be brioche bread, danish pastries, baklava or a delicious croissant. For most if not all the food items you've mentioned I can lay my hands on a gluten-free alternative that's just as, if not more, tasty. It'll likely do no long term harm to your health, but I hope it's really worth getting sick. BTW you'll likely get blasted on here for mentioning the dirty "C" word (cheating that is, not celiac).
  14. By deciding to go gluten-free without any testing you've made it more difficult for yourself. There is a lack of awareness of celiac disease, but don't think it helps when people fly under the radar and change their diet without getting tested first. If you are diagnosed they'll test you for vitamin deficiencies, other related autoimmune conditions and bone density as a matter of course. You should probably visit your doctor now and ask about getting those tests done, whether or not you're going to do a gluten challenge and try for a proper diagnosis of celiac disease. I'm glad you feel better anyway.
  15. OK, I was going to stay out of this, but since it's already a runaway train... I believe that a topical reaction to gluten is seperate to an autoimmune response caused by ingestion of gluten. This supports that belief. I reckon I have Atopic Dermatitis, I don't reckon it's got any relation to ingestion or topical application of gluten. No-one has satisfactorily able to explain to me how you can tell it's definitely the gluten you're reacting to in a topical product, and not one of the other ingredients.