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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity

    J in Cincy

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    About J in Cincy

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    1. J in Cincy added a topic in Dermatitis Herpetiformis   

      Dh Sensitivity Increasing?
      On average my DH has been better with a gluten-free diet (additional benefit to 50 mg/day Dapsone) and I have been eating gluten-free for ~6 months. However, I have occasional, seemingly random, outbreaks and it doesn't seem to be getting much better when I thought it was supposed to clear up completely. And without Dapsone I get an immediate rash (<1 day) despite eating gluten-free. It is frustrating.... my wife and kids are not gluten-free so there is likely small amounts of CC but it has got to be very small amounts. It seems like I am either getting more sensitive or it will just take time .... the doctor seems to think that it should be immediate i.e. no gluten = no dh rash & blisters. I am curious to hear how long it has taken people to heal or eliminate symptoms with a gluten-free diet and if they are more sensitive now than before going gluten-free.

      Thanks for your response!
      • 2 replies
    2. J in Cincy added a post in a topic Dapsone Or gluten-free?   

      Thanks for all the advice - over whelmingly to go gluten-free. I have been eating gluten-free for the last few weeks except for possibly smoke flavor and carmel color . . . and I'm slowly figuring out products based on the websites. My rash is better (still with 25mg dapsone) but I don't notice anything terribly different as far GI symptoms but I assume it takes time...

      I'm also seeing a new doc in a few weeks to see what he says.

      Thanks again
      • 0
    3. J in Cincy added a topic in Dermatitis Herpetiformis   

      Dapsone Or gluten-free?
      I am looking for some advice regarding dapsone use. I have farely minor GI symptoms treatable with prilosec and no villous atrophy. The DH is tolerable with 50mg/day dapsone but I probably need more to completely eliminate symptoms. Both the GI doctor and dermatologist do NOT recommend a gluten-free diet - presumably because it will be too much trouble - and I tend to agree - there is a lot of time spent planning and cooking and worrying. Not too mention gluten-free bread and gluten-free beer aren't quite as good as their non-gluten-free counter parts. However, I want to better understand dapsone side effects? It isn't very clear from what I have read - most of it negative towards dapsone whereas my doctors say it is very safe. Are there stories out there, good or bad regarding long term dapsone use at 50 - 100 mg/day? Just trying to make a tough decision... thanks in advance for helping to decide!
      • 11 replies
    4. J in Cincy added a post in a topic Help   

      Ask your dermatologist about dapsone or possibly other drugs to treat DH. Dapsone worked for me within a few days. From what I have read it can take months of a gluten-free diet before you can reduce dapsone dosage and be symptom free. Good luck!

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