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Grace Maureen

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About Grace Maureen

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  1. "Costco raw nuts are also processed in a nut only facility (the ones in the bags). The roasted nuts in the jars in the snack section are processed on shared equipment so if that bothers your son you might want to steer clear
  2. Hi there, I have been doing some research on probiotics and celiac disease. It seems that probiotics with bifidobacterium lactis would be very beneficial for those who are celiac. So, does anyone have any experience with one? The only one I was able to find on my internet research was called theralac. Has anyone used this? Are there any others brands of probiotics out there which are gluten free with bifidobacterium lactis? I had purchases some PB8, which of course, doesn't have that strain of probiotic...anyone used this before??? Please let me know if you have any suggestions or experience! Thanks!!!
  3. I am wondering if anyone knows of a gluten free oven cleaning product? I have been militantly gluten free for over a year and my levels are still elevated. I am trying everything! So, have limited all cleaning agents to, of course, gluten free products only, but do not know of a good oven cleaner. Please help! Thank you!
  4. Thank you for your response. I guess I was confused by the names of the tests? So, tTG IgA is not the same as IgA? This is so confusing. Maybe I can get her to prescribe me the other test so that I can feel more confident in my progress. I have just been working so hard and if I am making mistakes I don't want to wait another 6 months to find out. Esepcially when you conisder all the things we give up to follow this rediculous regime. It's not even that I miss the food, it's the social life and my old personality. Now I have to be so "on" everywhere I go that isn't a gluten-free environment, friends and families houses, vacations (which I am to scared to go anywhere longer than a weekend), the lunch room, my shared office space at work.... sorry for that vent. But really, thank you I really appreciate the article. I will read it tonight. Thanks
  5. My symptoms before going on the gluten-free diet were random and many constant extreme exhaustion, REALLY REALLY low energy, depression (probably because I didn't have enough energy to live a normal active lifestyle), headaches, constipation, GERD, anxiety. Post diet includes kind of exhausted, kind of low energy, some headaches, some constipation....you probably get my drift=) So, no, things are not peachy keen but they definitely are peachier. As for keeping your gluten intake pretty low...if you have a diagnosis of celiac, then to have any gluten seems like a bad idea. I understand how hard it is. My sister was diagnosed the same time I was and has given up on the diet completely. She just couldn't handle it. My motivation to keep going is seeing the complications that my mom has had to deal with after being diagnosed many many years after her celiac was triggered. Good luck to you. And thank you for your response=)
  6. What type of doctor should I have monitor my celiac? Currently, my general practitioner has just been prescribing any tests that I tell her I need, but she knows nothing about Celiac disease. I had an endoscopy by a GI doctor, but other than that, have never seen one before or after the endoscopy. So, are there specific types of doctors that I should have monitor my illness? (I have also had a one time appt with a nutritionist-wasn't all that helpful). Thanks for any help! I have been gluten free for 6 months since 6/12 months of diagnosis.
  7. I was diagnosed with Celiac Sprue in late August of 2008 (via blood tests and endoscopy). My diagnostic TTG IgA test was leveled at 157. I was just retested and now my level is 65. So, my doctor told me that I must be doing a good job with my gluten-free diet as my number has clearly dropped, but everything that i have read has said that it should be at a negative level....So...am I doing things right? Shouldn't my test be negative by now? I am obssesive about my diet, I even use gluten-free soaps and makeups, etc... I have only eaten out twice since I started the diet in September. I guess my real concern is that one of my prescriptions may not really be gluten-free. That is the only thing that I can think of. Or could it just be taking this long to drop down to normal? Also, if one does have a set-back due to a cross-contamination, how long will their numbers typically show positive on a TTG IgA test?Unfortunately, I am part of an HMO, and my doctor admits that neither she nor any of her colleagues are very experienced with celiac, so I have been telling her what tests to order and what needs to be done...so, her telling me that I must be doing well with my diet, isn't a very reliable opinion. Any opinions or help would be sooooooooooo appreciated. Thank you! PS Why can't our doctors just know more about celiac? argh
  8. I was diagnosed with Celiac Sprue in late August of 2008 (via blood tests and endoscopy). My diagnostic TTG IgA test was leveled at 157. I was just retested and now my level is 65. So, my doctor told me that I must be doing a good job with my gluten-free diet as my number has clearly dropped, but everything that i have read has said that it should be at a negative level....So...am I doing things right? Shouldn't my test be negative by now? I am obssesive about my diet, I even use gluten-free soaps and makeups, etc... I have only eaten out twice since I started the diet in September. I guess my real concern is that one of my prescriptions may not really be gluten-free. That is the only thing that I can think of. Or could it just be taking this long to drop down to normal? Also, if one does have a set-back due to a cross-contamination, how long will their numbers typically show positive on a TTG IgA test? Unfortunately, I am part of an HMO, and my doctor admits that neither she nor any of her colleagues are very experienced with celiac, so I have been telling her what tests to order and what needs to be done...so, her telling me that I must be doing well with my diet, isn't a very reliable opinion. Any opinions or help would be sooooooooooo appreciated. Thank you! PS Why can't our doctors just know more about celiac? argh
  9. I am a newly diagnosed gal with Celiac Sprue. I, as I am sure most everyone else who is first diagnosed, has been grieving the loss of a "free and spontaneous" lifestyle. Traveling to far off places has always been my dream. And the thought that I have now been stopped by this rediculous disease has been a difficult fact to digest (no pun intended). I know that I can take my own snacks, yada, yaada,yadda... but really, it still just sucks. I am too scared to eat out, and if I could actually get a chance to go out with my friends or family and order gluten-free at a place other than my own kitchen...with this added safety net...I might actually do it. I hope and pray that this will pan out, for all of us. Now that I am off my soap/cry me a river box... My mom found a pill at a healthfood store that claims to offer exactly what these pharmaceutical companies are hoping to offer. Has anyone heard of these pills? My mother also has celiac, but isn't as safe as she should be with her diet (and has a long list of complications do to this not so well attmpted compliance. So, I am just doing some extra research to see if this, already available pill, is even a possibililty. Anyone using this kind of pill?
  10. I am newly diagnosed with Celiac Sprue and having a tough time finding medications that are gluten-free. In particular, I need a birth control pill to help manage endometriosis. When I call the drug companies I always get some form of..."the starch in the product is made from corn, however we cannot claim that it is entirely gluten-free because we do not test for it..." What does that mean? Should I not use that pill then? Does anyone know of any gluten-free birth control pills that are safe? My doctor was absolutly no help. He just told me to call around. Thank you for any guidance!