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About caek_is_a_lie

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  • Birthday 06/27/1976

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    Beaverton, OR
  1. Happy birthday and may God bless you today!

  2. Well, see, that was my problem. The label has none of those things on it. No gluten info, no allergen info, no contact number to call to check. So I gave up and let him have some and he seemed fine so I guess it's gluten free. But I'm not happy with Walmart for making it so hard to ask a simple question.
  3. My boyfriend got some Sam's Choice Pink Lemonade and regular lemonade at Walmart as a treat for our son who just went gluten free. I read the ingredients and it has "natural flavors". But there's no phone number and the walmart website doesn't have any gluten info on any of their products. So how can I find out if it's ok besides simply trying it? I can't imagine lemonade would have gluten in it, but I just need to know for sure. Has anyone tried this product? Thanks!
  4. I love how the article above the exercises disses patients who think they have a problem with wheat, but then at the bottom they advise patients avoid bread, malted products, beer, vinegar, and soy sauce! rotfl
  5. There are no official stats on it, which is something I'd like to do myself in grad school, but from what I've seen on forums and from an informal poll I did, there are a lot of people with Narcolepsy that could benefit. The Narcolepsy genes have also been found to be Celiac genes. IMHO it would be beneficial to screen all Narcolepsy patients for Celiac, although a blood test might not catch it if the transglutaminase is primarily in the CSF.
  6. Wait until at least 6 months of age. It takes babies a few months to grow a proper lining in the gut and introducing gluten before then could increase her risk of getting Celiac later.
  7. Well, I do believe there is evidence that desensitization works in some cases. And this group found positive results in doing this treatment in mice. Of course, mice aren't humans, so we'll see how the human trials go. They indicate the treatment takes months to complete. My issue with the whole thing is in calling it a "vaccine". It's not a vaccine. A vaccine is injecting modified or killed virus into your body that you have not been previously exposed to so that you can make new antibodies against it to fight it off when you are eventually exposed to the illness. Gluten is not a virus and our whole problem is we already make antibodies against it which then attack our own cells. So this treatment is more like an antivaccine, really. I wish they would just call it what it really is...gluten desensitization. "vaccine" is so misleading! It's not like you get one little shot and you're cured.
  8. Cool! It's grain-free. Very awesome! I will have to try it when it comes out.
  9. I'm sorry, I just can't get excited about the prospects of injecting myself with gluten to make me not sensitive to gluten. If it was any other type of cure I'd be thrilled, but this just seems like certain death, in a way. I'm just too sensitive to could injecting it into my body for months and months be a good thing? I spend so much time and energy doing everything I can to avoid gluten. It would be hard to let someone with a syringe full of gluten anywhere near my body, no matter how diluted it is. I'm pretty sure I'd run.
  10. They were being extremely insensitive to your daughter. There is nothing ruder and more hurtful than your teacher forcing you to watch the whole class eat in front of you and announcing to everyone that you're left out on purpose because your mom forgot you. Of course you didn't forget your daughter. It was irresponsible of them to pass all the accountability on to you without even trying and without even giving you all the information regarding her snack box. It seems cruel and heartless to me. I'm sorry she had to go through that.
  11. My consumption went down, too. I was always starving even when I ate. It seems like after my body could finally start digesting, I didn't need as much food and I digested it longer. The weight loss hasn't been as much as I'd have hoped, but it feels like there was quite a bit of damage done, so maybe there's still hope for me once I've healed more.
  12. Yeah, I'd get a copy of that report. Even doctors misread lab results. Mine sure did with my thyroid. "You're right in the middle of normal" was in actuality hypothyroidism!
  13. I get puffy fingers, neck, torso, and sometimes feet. It can get really bad. Many years ago it was so bad my skin hurt because it was so tight. I haven't noticed a direct relation to salt...for me it's more related to gluten and sugar consumption. It definitely gets bad if I eat wheat bread. People talk about getting bloated belly from gluten, but for me I get an entire bloated body! It's freaky because my stomach, hands, and chin will blow up like a balloon just minutes after eating. I can grow 2 pants sizes in 30 seconds. Freaky! And it takes awhile for it to go away. I hate it. Doctors ignore me when I tell them about it, but I try to control it by watching what I eat. After I went 100% gluten-free, I was able to wear some rings that I haven't worn in years. It was great! Lately I've been having problems with it again, though. I think it's either too much sugar or I'm sensitive to milk. Not sure which, though.
  14. It's here! It finally made it to my local grocery store! I just had a big bowl. It was wonderful. I have loved this cereal for years and couldn't figure out why it made me sick until I learned about gluten. But now it's gluten-free!! Finally I can get big boxes of regular cereal like the rest of the family! Not overpriced dinky boxes of Glutino O's or Gorilla Munch. YAY!
  15. UR my HERO! My mom has a good chocolate cheesecake recipe. I should find it and convert it. It's really quite good. If only I could remember where I put the recipe....hmmmm....