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designgirl

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  1. I live alone so there's no gluten products in my house except for my dog's dog food.. He eats in his own bowls I try to purchase items that aren't even in boxes. I've even tried to stop eating anything with MSG in it. We'll see what the doctor says.. if she ever gets back from vacation. I have several side illnesses going on right now - middle ear infection and pharyngitis. I'm on cipro and prednisone. I just started taking them so we'll see how I feel.
  2. I asked for my blood work to be done to make sure I wasn't losing any electrolytes from all my enema's. My random blood glucose came back at about 125. I've been tested for diabetes several years ago and everything was OK. I still haven't talked to my doctor about the latest results because of the holiday. I know she's talked about doing an upper endoscope. In the system it has me listed for irritable bowel syndrome and constipation. SOMETHING has to be causing it. Also, a side note: I went to China for a few weeks back in February. My doctor kind of brushed it off like it wasn't a third world country. I don't know it that'll help. Thanks for the thoughts.
  3. I checked out the Lyme Disease thread on the board and I seem to have quite a few of the symptoms, but none other than the GI are very major. I've always had a lot of the problems - like allergies, sinus problems, headaches, etc. I'll talk to my doctor about it though as well as the candida. I tried the skin allergy testing, but didn't do the blood work for the 99 food items (the allergist suggested that, but he blamed my body fat being too high for my GI problems! I'm overweight, but not obese). The only thing that came back was oysters for the skin test. My doctor isn't in the office for a week... but after 4 months what's another week to her? Ha. Maybe I'm not voicing myself enough. I hate to keep acting like "I'm the expert" and googling around for a diagnosis and asking for tests, but I can't keep feeling so rotten. I'm functional enough that I go to work and sit behind my desk (occasionally leaving early), but not enough that I really feel like socializing more than once a week. Thanks for all the thoughts so far!
  4. I think I'm doing a great of watching what I'm eating. I bought wheat free soy sauce, gluten free breads (rarely even bother eating them), and I've barely gone out to eat to minimize any screw ups out of my control. I believe that I'm educating myself very well with everything that is wheat. There was only one time several weeks ago that I knew I ate something after I ate it that had wheat in it (a single bite). I just don't get it.
  5. To make this an extremely short story for now - in August 2008 I went in the hospital for several days. Initially they thought I had appendicitis then they told me I had terminal ileitis (after colonoscopy and CT scan) next I was diagnosed with Crohn's disease.. after yet another colonoscopy, pill cam, and another CT scan they ruled out Crohn's disease. Then I got tested for Celiac Disease. My doctor suggested I go gluten-free for 2 months and see what happens. I got a skin allergy test and the only food I'm allergic to is oysters. I've been gluten-free for over a month and then I got retested because I don't feel significantly better. My test results went UP from the first time. August, September, and half of October I was going to the bathroom usually 4x a day. My symptoms now: constipation (taking Milk of Magnesia, using enemas, and glycerin suppositories - was on Miralax). I always feel like I'm constipated and every time I have a BM it is strained regardless if the laxative I'm using is soft. It feels like there is still stool inside of me and often there is (I find out through the enema almost 90% of the time) I am also nauseous often. October test: RETICULIN IGA, TITER, SER, QN, IF <1:10 <1:10- RETICULIN IGG, TITER, SER, QN, IF <1:10 <1:10- TISSUE TRANSGLUTAMINASE IGA, TITER <3 <5- u/ml Reference range: <5 U/mL Negative 5-8 U/mL Equivocal >8 U/mL Positive IGA 232 81-463 mg/dL GLIADIN IGA, EIA 14 <11- u/ml H Reference Range: <11 U/mL Negative 11-17 U/mL Equivocal >17 U/mL Positive GLIADIN IGG, EIA 12 <11- u/ml H Reference Range: <11 U/mL Negative 11-17 U/mL Equivocal >17 U/mL Positive November test: RETICULIN IGA, TITER, SER, QN, IF <1:10 <1:10- RETICULIN IGG, TITER, SER, QN, IF <1:10 <1:10- TISSUE TRANSGLUTAMINASE IGA, TITER <3 <5- u/ml Reference range: <5 U/mL Negative 5-8 U/mL Equivocal >8 U/mL Positive IGA 226 81-463 mg/dL GLIADIN IGA, EIA 15 <11- u/ml H Reference Range: <11 U/mL Negative 11-17 U/mL Equivocal >17 U/mL Positive GLIADIN IGG, EIA 14 <11- u/ml H Reference Range: <11 U/mL Negative 11-17 U/mL Equivocal >17 U/mL Positive I don't understand how my gliadin IGA and IGG have gone up. I have not spoken to my doctor about my last test results because of the holiday. She has not diagnosed me with celiac disease. It seems like there are very many knowledgeable people here. Any help would be greatly appreciated! Happy Thanksgiving!