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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About Shell156

    • Rank
      Community Member
    • Birthday June 28

    Profile Information

    • Gender Female
    • Interests travel, reading, hiking, biking, cooking, baking, eating, running, staying positive, swimming, friends, sunshine, education
    • Location Vancouver, BC

    Shell156's Activity

    1. Shell156 added a post in a topic Gluten Testing Services?   

      Hey Dan,
      I replied to your other topic as well and gave a suggestion for a multi that works well for me!
      I am extremely sensitive to gluten and react to lots that doesn't seem to bother other celiacs. For example a a restaurant in Vancouver that caters to lots of celiacs made me really sick. They say served tons of celiacs without issue (including their own chef!) but when they checked into their raw ingredients they realized the walnuts for the salad I shared with my boyfriend were "made on shared equipment with products containing wheat". I only ate like 4 walnuts and apparently other celiacs ate lots without issue.
      Anyway, I wouldn't doubt your strips. I think a lot of supplement companies label "gluten free" but may use shared equipment or not consider their raw ingredients. 
      Here's the link for the vitamin company that's never made me sick:
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    2. Shell156 added a post in a topic Some Ez Gluten Test Results And A Question   

      Wow, Hellbender! Thank you so much for testing these and posting the results!
      I am very sensitive to gluten. I haven't ever had a problem with megafood and I feel better when I take their women's multi.
      Here is a link to the men's multi!
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    3. Shell156 added a post in a topic Are Supplements Labled "gluten Free" Really Safe?   

      What?? Country life isn't safe? Oh man. I have a ton of their products,
      I bought them after getting glutened from a now brand supplement they claimed was gluten free.

      Has anyone else gotten sick from country life?
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    4. Shell156 added a post in a topic Veggie Burger Suggestions?   

      Thank you! Sunshine burgers sound so delicious I'll go get some and try them out !
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    5. Shell156 added a topic in Gluten-Free Foods, Products, Shopping & Medications   

      Veggie Burger Suggestions?
      Do you know what I miss so much at summer BBQs? Veggie burgers. I don't mean the ones that taste like fake meat, I mean those ones that are made from grains, beans or legumes, maybe some cheese. Does anyone have any suggestions? I'm quite sensitive, so certified gluten free is best, but I'd be happy to research non-certified suggestions as well.
      • 4 replies
    6. Shell156 added a post in a topic What Is Super Sensitive?   

      Do you use personal care products that your daughter does not use? 
      While my blood tests were okay while I used regular personal care products, I still felt terrible. My blood tests were in the okay zone (14… should be >20)
      I realized at some point I was reacting to my personal care products. I switched over to certified gluten free products and I felt so much better. I did this slowly, but you might want to change your soap and shampoo and maybe try no other products and see what happens? I use hugo naturals, desert essence organics, Red Apple Lipstick etc...
      My blood tests also went down afterwards, from 14 to 8. I don't know if that means anything, just thought it was worth noting.
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    7. Shell156 added a post in a topic Frozen Fruit?   

      I should mention that I wrote the company but I never heard back. Oh, Thailand !
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    8. Shell156 added a post in a topic Frozen Fruit?   

      I tried them both! No reaction, yay!
      But the Durian was hard to get down ;-)
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    9. Shell156 added a topic in Super Sensitive Celiacs & Gluten Sensitive   

      Prosciutto Brands For Super Sensitive?
      Hi everyone! 
      Does anyone know any brands (preferably readily available) to which they do not react? I am unfortunately very, very sensitive to trace amounts of gluten and its derivatives, including distilled liquors and "gluten removed" products.
      Does anyone know of a certified gluten free brand?
      • 2 replies
    10. Shell156 added a post in a topic I Can't Stop Losing Weight...   

      Hi there!
      You sound like me a little after I went gluten free. The weight loss started to worry me when I weighed less than I did at 13!!! Crazy, huh?
      The thing is, when my BMI was about 19, the weightless just stopped. Maybe this is what a healthy weight is for me? I didn't look particularly overweight before, but I did want to lose weight. After being at this weight for 8 years now, I realized I quite like it! I'm small boned so a BMI of 19- 19.5 looks fine on me.
      Is your BMI below 18.5? I wouldn't worry too much. I couldn't lose weight before going gluten free either, I think my body was starving for nutrition! Afterwards, I just became a healthy weight and stayed there.
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    11. Shell156 added a topic in Super Sensitive Celiacs & Gluten Sensitive   

      Frozen Fruit?
      Hi there!

      Has anyone ever had a problem with frozen fruit?

      I haven't , but I have been buying the expensive, organic, packaged in Canada fruit. In my store, there are mangoes and durian packaged in the Philippines and Thailand, respectively.

      I really want to try this fruit but I'm nervous. Has anyone ever had a gluten reaction to frozen fruit?
      • 3 replies
    12. Shell156 added a post in a topic Traveling To Japan With Celiac Child: Restaurants & Grocery Tips?   

      I love Japan!

      I lived there for a few years before I knew I had celiac disease but I knew I was allergic to wheat.

      My first night there, I went into a convienience store and a lovely person taught me the kanji for wheat and its pronunciation: ko mugi ko.

      Knowing this helped me a lot. I can't comment in restaurants there but I will tell you that Japanese people were very lovely and helpful in regards to my allergy, however, since allergies are rare there, many people did not understand and would say: "oh, you're allergic? So you don't like bread? But you eat cake and cookies, right?"

      Apparently it's quite common there to say you have an allergy to things you dislike. So be sure to emphasize the medical consequences to your child of you can . Good luck!
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    13. Shell156 added a post in a topic Are You Amazing At Explaining Cross-Contamination? Help Me Be Lovely And Thoughtful?   

      Hi everyone!
      Well… it was awesome! Everyone was so kind and thoughtful and it went well. I think I got mildly glutened once, but I think it's because we had to buy some unfamiliar brands (all labeled gluten free… not all certified). One mild glutening in 2 weeks is pretty par for the course for me, as I am extremely sensitive and may have an allergy rather than celiac?
      However, I had a terrible allergic reaction to something that is not gluten! My gluten reactions are very recognizable to me and this was different. I had horrific hives and eczema all over for more than 2 weeks. It was so awful. I still don't know for sure what got me.
      Just wanted to say thank you everyone for all your help and thoughts!
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    14. Shell156 added a post in a topic The Grocery Store   

      I've never gotten sick from just hugging someone, but I have gotten sick from hugging someone and getting their hair in my mouth! I guess I hug a lot and I wouldn't have thought anything of it but after a few times I was researching and hair products have terrible amounts of gluten in them. Boo. I am super super sensitive. Most people would never have to consider such a thing but I'm just sharing my experience so you can feel less alone.
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    15. Shell156 added a post in a topic Gluten-Free Country...?   

      Wow, I used to dream of this! Even a city would be so great.
      I have been putting Italy on my map because they apparently have a very high awareness of celiac. However, definitely not gluten free!
      I went to Turkey and gorged on figs, fresh juice and plain fish and really enjoyed it.
      But a place with no gluten at all… hmmm… I read of a recent study in Tanzania, I believe where they were studying the microbiomes of traditional hunter/gatherers. These people did not consume western foods. The scientist even ummm… tried injecting the microbiome into himself! Fascinating.
      However, I don't know how much of a gastronomic experience you will have. I think it's mostly plain meat, manioc and foraged veggies.
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