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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About mef

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  1. Going Crazy!

    Hi Shoestring, You are not alone! It is a difficult dietary transition to go through and many people here have experienced what you are feeling. Research is your best tool. Find the foods that you like and figuring out how to make them gluten free. For example, you can still have meats, vegetables, and fruits. There are numerous gluten free products available as well. Cross contamination just means that somehow gluten gets into a gluten free food. It's like dropping a cracker on a gluten free soup. Start small with simple meals. This way if you do make a mistake, it's easier to pinpoint what happened. A great tool is the phone number of the manufacturer located on the back of food products. If you are unsure about a product, just give them a call. Key words you want to avoid are: Wheat, barley, malt, oats, and rye. You want to be suspect of anything with Natural Flavorings--hidden gluten. The FDA requires Wheat to be listed as an allergen, but the other gluten triggers do not have to be on the label. Keep working hard! It may not seem like it, but the longer you stay on the diet, the easier it becomes. If you do make a mistake, don't beat yourself up for it. Just get back on track. Good luck!
  2. Weak Immune System

    Hi Megan, As far as juice goes, you might be having problems with the acidity--ie it's hurting your throat! But, as everyone else has indicated, traditional juice drinks have sugar, additives etc that may not be adding to your system. Zinc is always good. Have you gotten a panal recently to check for malabsorption? You may be low in other areas that can cause a weak point. As a random FYI: I've had several discussions with different doctors about being sick and having celiac. Any time I've gotten sick, it would be a normal cold, but would last forever. I've come across three opinions: 1. Yes, in the early stages of healing, you may be sick longer/more easily taken in or 2. No, you actually have quite a strong immune system--it's just eager and 3. Sometimes, it just happens. May have not answered any of your questions, but at least you aren't the only one wondering this!
  3. I too was on medication to deal with the "I'm sick and I don't know why" depression I got pre diagnosis. After moving to a gluten-free diet, I felt so much better. But, please (I hope you already had plans to do this) talk with your doctor about adjusting medication and/or adding vitamins.
  4. More Trouble At Pf Changs?

    I eat there all the time and haven't had a problem. I noticed that my gluten-free giner chicken always comes on a plate marked with PFC and my friend's plate doesn't have that marking. But, I only eat there if there is not a huge crowd.
  5. Hi, This isn't scientifc and is only based on my personal experience: When I went gluten-free, I focused on corn/potatoes/rice as substitues. It seems now that I'm starting to become sensitive to these food products. I know I went overboard using those products and I think my body is trying to even itself out. I've decided to cut back those products...I feel much better now! Every celiac body, though, seems to be different. After reading through this forum, I am always surprised at the manifestations of symptoms. Also, there may be issues of cc running around and making your stomach uncomfortable. I won't eat on campus now because I don't like relying on the behaviors of others. Good luck!
  6. This doesn't answer your question per se, but you mentioned you cut out wheat. When you do a celiac diet, it's more than just wheat that you don't eat. Even if you don't receive a celiac dx, and the wheat free diet helped, why not stick with it? You don't need a diagnosis do a gluten-free diet! As a side note--I was slightly anemic prior to dx with celiac. Good luck with the capsule study! I hope you find some answers soon.
  7. Mistakes All The Time

    If you are looking for tips on food products to help you gain weight, check out the gluten-free weight issues section further down the main forum page. I know there is a thread going about gaining back weight.
  8. Yes. My pain looked like shin splints and then exploded into evil. I lost feeling in my feet and lower part of the legs. As the year or two prior to being diagnosed went on, I started having hip/back pain. As the pain moved up my body, I continued to lose feeling. It didn't progress into my upper body as much, but my shins were constantly on fire. I couldn't stand to be touched on my legs. Almost a year gluten-free and the pain is signficantly better. I repeatedly mention to check the vitamin D level because low levels have been shown to cause bone pain. Good luck at your doctor's appointment! I hope your daughter can find relief!
  9. It's been said, but it's worthwhile to look at the amount of carbs you are consuming. Spikes in blood sugar/insulin from refined carbs (ie the white rice flour that is probably in quite a few gluten-free goodies...probably why the good products are so addicting!) could be causing some headaches and fatigue. I can't eat a lot in the morning and it's usually due to post nasal drip (ew, tmi, I know). Too much mucous in the stomach can make for some unhappy times. Perhaps the sinus problems are also tied in with the headache? You can always give the candida diet a test run. Hope you find some relief!
  10. I definitely am! I've lost about 60lbs since going gluten free. Some part of it may be swelling (edema) which is causing fluid retention. I know that most of my weight loss came from the reduction in swelling. Good luck!
  11. Denied For Health Insurance

    Thanks for the heads up. Were you previously on health insurance? Also, typically I've heard that conditions that are developed w/in the year that are not covered. I could be wrong. I've been fighting with my insurance company too....
  12. Help Me?

    If possible, you might want to have another panel done to check for antibodies. Have you checked for any other intolerances? Also, what types of gluten-free foods are you eating? When I eat too much of the gluten-free substitutes (ie the pastas, the breads etc) and not enough fruits/veggies/proteins, I find myself tired and drawn out. I hope you can find some help here!
  13. YES! you have my medical history in terms of joint/bone pain. Have your vitamin D level checked. My bloodwork for antibodies was not that significant. There was a slight bump in what indicated sprue and it wasn't until I had the biopsy done that they confirmed it. A rheumatologist diagnosed me as well. Good luck!
  14. Hi Elspeth, First of all, thank you for being a supportive relative! You are going to great lengths to accomodate an "outlaw" and are doing a fantastic job at it. I wish I could be so lucky! Her behavior might be a stress reaction. I know I was a control freak prior to being diagnosed and now I have to be even more vigilant about things going on around's hard. Even though my family and friends are supportive, I still become stressed out when I have to go to a family event or to a restaurant because I feel out of control. While that is not an excuse for rude behavior, she may not even know she is doing it. Having celiac is not a dietary choice--being dx'd with celiac takes the decision to eat gluten out of your hands and, especially after years of consuming gluten, this process can be extraordinarily frustrating. AliB may be right: there could be more going on with your sister in law. If she is still having GI syptoms, there might be other intolerances. It is tremendously frightening to know something is wrong with your body and feeling like you are not being heard. That may be why she is focusing on her diet so much. Even though she has had it for five years, it almost sounds like a "first year" of being gluten free. Perhaps you can try to designate a "health discussion" time and at meal times, steer the conversation away from that. She may be discussing her BMs with you because she feels safe with you. It's a difficult position to put you in because while you want to be empathetic, you also want to scream ew ew ew. If you feel comfortable enough with her, maybe you can mention that while you want to be supportive, it makes you uncomfortable to hear about that topic. However, given her behavior, she might turn it back on you. Just keep calm and focus on "I" statements. If you can't have that type of discussion with her, maybe you all could find non-food focused events to go to instead of dinner. Good luck! I did have to giggle about her freaking out about the bread basket and then moving it...herself.
  15. After a glutening, I up my vitamin D supplement. It works well for bone/joint pain.