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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About mjbonsais

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  1. My Safari could not find Rosman Family Foods so I tried my Explorer and it did say that the website was not reinstated? It mentioned a date and the company's website was delinquent. That would tell me that perhaps they are discontinuing their product line. That would explain the great $1.99 deals that some of you found! Wished I had as they are very good.
  2. Reaction Time

    I know that I've read on one of the celiac disease sites where gluten ingestion symptoms can be delayed and then show up weeks down the road- maybe it was on this site that I read this but not positive. I would suspect gluten sensitivity perhaps. As mentioned in an earlier posting, you may very well have other food intolerance issues. Look at all the food you are eating every day and write it down in a ledger. Show the reactions your body is giving you and write the symptoms/date too. I have been doing this and I can see that my having a yeast intolerance will be increased by sugar intake or fermented foods as well. I am now avoiding corn syrup and vinegars. Vinegars are fermented and they are included in mustard, pickles, mushrooms etc..... I had been drinking regular soda free of caffeine but it contained high fructose corn syrup! Definite NO for me. Corn syrup is in canned tomato sauces as well. Once again, you need to read the ingredient labels. Torula yeast is also used in many processed foods. < yet another reason to begin the natural food processing route. I could go on an on but just wanted to voice my thoughts. What better way to learn than from each other. Hugs Mary Jo
  3. Dr. Fine is a spiritual person and he requires making money like the rest of us. However, he is dedicated to his pursuits and it shouldn't be too much longer before his work is published. I have Microscopic Colitis as well and belong to another message board specifically geared to this disease/disorder. MC shares the same gene as celiac disease and that alone speaks volumes to me. I am sure many of you have perused his site and you can see for yourselves his journey on his patent is not an easy one, especially in the medical community. My skepticism is nil as far as enterolab is concerned. Many of us have used the enterolab tests and are feeling so much better because of this testing facility. My own allergist (who happens to be president of board of physicians here in Broward, Florida), pcp and gastro doc are seeing the light that Dr. Fine is radiating. Unfortunately, there can be some jealousy among colleagues and constituents of the medical field and it takes pride to admit that there is the possibility of another venue to finalize a diagnosis than the mainstream of endoscopy and blood panels. Those latter are appropriate for many for proper dx but didn't work for me. Not only that, but if you have been gluten-free then with endocopy and blood work up you should be eating a regular gluten diet to attain a positive if it is to show. The stool sample shows anitbodies for a much longer period (two years or more) and you don't have to be on a regular diet for gluten sensitivity to show. I don't feel it makes sense for an individual who is gluten-free to start back on a regular diet for the sake of testing - it is archaic. Also, if gluten-free dieting is not enough to relieve your symptoms, you should be trying an elimination diet on the main culprits of casein (all milk), eggs, yeast, soy, corn and possibly food additives and preservatives. Get into juicing and natural foods. This is the road that is less traveled these days but not archaic at all to me now! Mary Jo
  4. When I went searching for aq diagnosis of celiac disease the GI I went to told me I "couldn't possibly have that", because I was overweight. Good grief as Charlie Brown would say! There are many individuals who are celiac and overweight because their bodies cannot metabolize the fat properly. Shame on that doctor for even suggesting that one. Guess that's why I feel Enterolab testing is not only less invasive but will tell if you are predisposed to the main gene(s) of celiac sprue or gluten sensitivity. Mary JO
  6. I forgot to mention that I had a colonoscopy in the fall of 2003 which upon biopsies showed me to have Microscopic Colitis. This disease shares the same gene of celiac. I began to research this disease on the internet and found a site called finer health and a dr. previously from Baylor Universtiy studied the linkage between MC and celiac disease. He suggested no wheat and the dna connection between the two diseases on his site. My GI who did the colonoscopy said I should avoid simple carbs but wheat bread was ok. Fiber was what I needed. Still not well, and my side ached terribly. GI said, upon next office visit, it could be celiac. I had already had a annual at my gyn and he said I was ok there. Well, I took it upon myself with the aid of my husband to get Dr. Fine's dna and stool testing done. It took about a week for the results but it did indeed show me to have the main gene that predisposes to celiac disease and microscopic colitis. My stool sample showed me to have gluten sensitivity but no malabsorption. I had some diarrhea but mainly constipation issues which has been much relieved by the gluten-free diet. I also remember eating licorice (Good and Plenty) and my throat had a burning sensation which I believe was from the candy as it contained wheat. Sorry to ramble on here but maybe someone has had the same walk on this sojourn as I. MC makes your muscles ache and makes you tired just as celiac can/does. My results from the testing are as follows: Gluten Sensitivity Stool Test Fecal Antigliadin IgA 89 Units (Normal Range <10 Units) Stool Test for Autoimmune Reaction to Tissue Transglutaminase Fecal Antitissue Transglutaminase IgA 48 Units (Normal Range <10 Units) Stool Test for Small Intestinal Malabsorption Microscopic Fecal Fat Score: 181 Units (Normal Range < 300 Units) Stool Test for Milk Sensitivity Fecal anti-casein IgA antibody 30 Units (Normal Range <10 Units) Gene Test for Gluten Sensitivity Molecular analysis: HLA-DQB1*0201, 0301 Serologic equivalent: HLA-DQ 2,3 (Subtype 2,7) Interpretation: Analysis of this stool sample indicates you have dietary gluten sensitivity, resulting in an associated autoimmune reaction to the human enzyme tissue transglutaminase, but no small intestinal malabsorption/damage. You also have antibodies to the cow's milk protein, casein, and hence, you are immunologically sensitive to foods containing cow's milk. HLA gene analysis reveals that you have the main gene that predisposes to gluten sensitivity and celiac sprue (HLA-DQ2). This genotype also can predispose to microscopic colitis and other autoimmune syndromes. For optimal health and prevention of small intestinal damage, osteoporosis, damage to other tissues (like nerves, joints, pancreas, skin, liver, among others), and malnutrition, recommend a strict gluten free diet and re-testing in one year to insure this reaction is lessening. If you are experiencing any symptoms, these may resolve following a gluten free diet. Since antibodies to cow's milk are found with a greater frequency in gluten sensitive individuals and people with certain autoimmune diseases, removal of these foods from your diet may benefit you directly, as well as add to the benefits of a gluten-free diet. As gluten sensitivity is a genetic syndrome, you may want to have your relatives screened as well. Analysis performed by: Frederick Ogunji, PhD. Interpretation by: Kenneth D. Fine, M.D. Thank you for allowing EnteroLab to help you attain optimum intestinal and overall health.
  7. Interesting Site I found this site this morning and thought it would be worth just a look and get some ideas.
  8. I will be having my annual here soon for all the blood works. I had my gallbladder removed in 1998. I have low back ache in the morning which will usually dissipate in awhile. Before I went gluten-free the lower left-sided ab pain was awful and bothered me at night. Now, since I have gone gluten-free the pain is not nearly as bad and is intermittant not constant. I also have Microscopic Colitis.
  9. Would someone know if after being gluten-free for awhile and you still have food issues that may be causing left-sided abdominal pain and a low backache? This happens usually in the morining upon arising and then goes away. I have egg, yeast and milk intolerance issues and am wondering if not only the gluten in foods but other intolerences can cause symptoms as listed above. thank you MJ
  10. Number Of People On The Board

    Some people are more introvered or extroverted as well. Many just want to learn and if they peruse this particular board and gain knowledge then it is doing the job it was intended. Have a great afternoon! Mary Jo java script:emoticon('')
  11. anyone else relate any symptoms like this at all? Thank you MJjava script:emoticon('')
  12. I think many of us here on the board have had similar circumstances with our doctors. First off, I respect the education that it takes to become a bonified physician but to swallow one's pride and admit that "I don't have all the answers and I am still learning" (sometimes from my patients) is indicative to a great doctor! When I was dx'd as having Microscopic Colitis last year from biopsies from the colon my GI said that I should avoid simple carbs. He said I could eat wheat! I began my venture on the internet and investigating this syndrome. I saw how it is connected to celiac/gluten sensitivity and began to question whether wheat derived foods had an influence. It most certainly does in my case. I have the main gene that predisposes to gluten sensitivity and celiac sprue. That was found through Enterolab testing of mouth swab dna and stool samples. I was having upper leg pain, backaches, headaches, lower left sided abdominal pain, diarrhea/constipation; these have all been significantly reduced when I took wheat out of my diet. I also stopped taking advil/ibuprophen and just use tylenol when needed.Constipation is indicative to a gluten intolerance. I wonder how many individuals who have been dx'd with IBS are really celiac or gluten sensitive? That is rather scary isn't it. I am so glad that we have the internet which opens us up to education, health and healing. Keep your stress down too~ that contributes to gut problems as well Mary