This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Alexolua, I'll try my best to answer them...I've been gluten-free for 8 years & I hope what I've learned the hard way will help.
1) Are any flavorings safe? Malt, Artificial, Natural, others?
You're right Malt is NOT safe, both Artificial and Natural can contain gluten you have to check with manufacturers.
2) It would be best to buy cookware, utensils, etc.. to be used only with gluten-free products?
I don't use different cookware except different toaster (cross contamination is an issue) and anything porous such as wooden spoons, cutting boards due to the fact that gluten can hide in the cracks of the wood. I also don't use pans that have scratches in them other than that I haven't had problems.
3) In a non-gluten-free household, would it cause problems to wash the gluten-free and non-gluten-free cookware, utensils, cups, etc.. in the dishwasher at the same time, or no?
It shouldn't matter if you wash them together, I've never had a problem with this but you can wash seperately if you are concerned.
4) Using the same sponges for the gluten-free and non-gluten-free cookware, utensils, cups, etc.. would cause problems or no?
Again due to the fact that sponges are porous I would skip using them on non gluten-free stuff.
5) What about using the same towels to dry them after cleaning?
Towels should be alright as long as you haven't wiped up crumbs with it or anything.
6) Are paper towels gluten-free?
As far as I know paper towels are indeed gluten-free.
7) Are tissues and toilet paper gluten-free?
I am pretty sure that both are gluten-free I just skip perfumed ones just to be sure.
8) Are juices like Apple and Orange juice gluten-free, or only some (contamination)?
Citric Acid may contain gluten so I would consult the manufacturer.
9) What about other juices?
I know most McCain juices are gluten-free both I have a problem with indigestion with them so I stay clear.
10) Are sugar and salt gluten-free? Or could they be contaminated where they are packaged? Sugar and Salt should be ok but if you are concerned always consult manufacturer.
11) Medicines that have gluten in them, is it labeled, or it's there because of contamination? Gel caps usually contain gluten and before I take something new I always call the manufacturer and hopefully your MD will only prescibe meds that are gluten-free.
12) I read somewhere corn syrup could contain gluten because some include wheat in making it, anyone know if that's true?
I haven't heard that, but then again I don't use corn syrup.
13) Is it say to cook gluten-free meals in an oven and/or microwave that is used for non-gluten-free meals too? Both should be fine as long as it's cleaned after use. The oven as long as you are using a dish there should be no problem.
14) Are crystal light and coolaid gluten-free, or are they contaminated somehow?Again check manufacturer due to the fact that they contain artificial flavouring.
15) Are Sodas that appear gluten-free, possibly still not safe to drink? Possibly...again Citric Acid is in soda so call manufacturer. I've called Coke and they say their drinks are gluten-free but I try not to drink them alot.
And remember that everyone reacts to contamination differently, what I may react to you might not and vice versa so if you are ever in doubt I just skip it.
I am suffering from the same thing!! I am gaining weight like crazy!! I was always underweight before diagnosis and I can't stop eating thus gaining like crazy!! I also find my abdomen is always quite swollen even if I haven't cheated!! I feel like I'm losing control!!!
I know exactly how you feel unfortunately I have some bad news. I have been gluten free for 7 years and my stomach is still bloated all the time! I was actually going to go see my GI to see what's up. It's getting a bit much now, maybe I'm accidently ingesting gluten and not having a reaction?? I don't know I am so confused with that too. I too have crazy craving it seems like I am always hungry, that's getting pretty annoying in itself!! Hope you have better luck with the bloating than I have!!
Chances are that if you ingest gluten (it's not nice but..) it would smell so bad it could gag a horse!!! Those are my experiences anyway. The cravings I get, can get pretty insane. I get so hungry I would eat all day everyday. Don't worry it all gets better in time!!
Sara has got it down pat!! I keep tabs on where gluten goes and wherever it goes my food doesn't. I have never had a problem with dishes. I store my food separately totally everywhere (in the fridge, freezer, cupboards and pantry)
Don't stress out it becomes second nature!
I totally agree! I've been gluten free for about 7 years and I think of myself as normal as anyone else. I am confident when I go out to eat that I can have a safe gluten free meal. I'm still working on the kitchen part since I still live with family that eat enough gluten to feed a small village for a year!!! There is hope for everyone, it takes work but it's worth it!!
I totally agree with you. It's very annoying (to say the least) to have to go through a detailed account of exactly what Celiac Disease is etc... I think it is getting better though 'cause now I run into people who say "oh yeah I know someone who has that." So time will tell I guess.
I don't think Celiac Disease is something you can have mildly. You either have it or you don't. However everybody is different and can react differently to different things. Let's say for instance we both have a milkshake with a small amount of gluten in it, I may react quite badly and you might not react at all. This doesn't mean that your intestines are less damaged, it just means that our bodies reacted different. I notice that I am too more sensitive to an accident since going gluten free.
It takes some people longer to heal from going undiagnosed than others so I wouldn't give up on the diet just yet. I too cannot believe that your Dr said you can be considered a failure on this diet. What is he a doctor of??? I have never heard of that in my life. I have been on the diet for many years and sometimes there are little ways you may be ingesting gluten, keep a food diary of everything you and of your reactions maybe you can make a connection without the "help" of you Dr. I too find that my stomach is still very swollen, so I am doing just that, keeping a food diary. Hope that helps.
I want to recommend that your doctor perform an endoscopy, since that will give you a definitive answer to the Celiac question but it is so intrusive and I don't wish it on anyone much less a 5 year old. Good Luck