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Jeff_in_NC

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About Jeff_in_NC

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  1. So is it true that by exclusion of the celiac genes, and possessing the allele HLA DQA1*05 that I must be DQ7.5? I have been reading through these sites now all day and I still can't seem to make the connection! Thanks for your help
  2. I think I need to go back to school to figure out all the nomenclature...thanks for the links
  3. Though I am a life scientist, I am not strong in HLA genetics... I dug out my labs (Prometheus) and they only list having detected the HLA DQA1*05 allele and I am DQ2- and DQ8- I will need to invest some more time in reading up on this, but if you have some pointers I'd be grateful for the help.
  4. I am approaching 1 year of being gluten free. I am curious if other people have a history similar to mine and I would welcome ideas or suggestions. It all started with several months of general IBS sort of GI symptoms. Then around last Christmas I began to notice that I had become very lactose intolerant. I stopped eating dairy, but was still having GI symptoms and they seemed to be getting worse gas, bloating, and abdominal pain led to oily stools, very unpleasant gas, bowel frequency, sleeping difficulties, general malaise and weight loss. I stopped eating gluten and things started to resolve within a few days. After several weeks I began to be able to tolerate a bit more lactose. After being off gluten for several weeks I was tested for the celiac antibody panel by an allergist and that came up negative. However, after a thorough history she identified a likely latex allergy (which was later confirmed). Interestingly, this came up in the history because I stopped being able to tolerate bananas about 20 years ago. When I eat them I get the same sort of GI symptoms as when I now eat wheat products. Testing for the typical latex food allergy things identifed reactivity to many things that I regularly eat without a problem (tomato, potato) and many things that I have just learned to avoid (like kiwi and pineapple which make my throat itch) over time without ever making the connection to an allergy. Also, I have never had any of the typical food allergy skin rash symptoms. After being off gluten for about 8 weeks I got in to see a gastroenterologist. When I resisted doing the gluten challenge and endoscopy, she did the genetic test and said that based on the results I was highly unlikely to have celiac. Her message was basically (not an exact quote....), "you don't have Celiac or Crohn's, why are you wasting my time? Food allergies are really rare and hard to characterize. You may or may not have allergies, but I am probably going to be unable to help you.". At that point I just decided it did not matter what it was called. I decided to go it on my own by taking careful observation and slowly testing different foods. One year out I am still trying to figure out what I can and cannot tolerate. If I eat something out of bounds my GI symptoms return to varying degrees for a few days to a week. So for example, wheat seems to cause the longest lasting symptoms, something like cherries lasts only 1-2 days. Also with wheat I seem to lose any of the lactose tolerance that I have built back up and that takes a long time to return evne to the point where I can tolerate a small amount of dairy. This website has been immensly helpful to me. Hopefully, this will serve others that have some gluten or wheat related food intolerances.