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whistle

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About whistle

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  1. Oddest Reaction To Gluten?

    Maybe the number itself has no significance, other than it's a number that makes you notice it. Maybe the whole point is that you take notice. When I notice stuff like that, it gives me faith that there's more going on here than meets the eye. And that helps me get through difficult times.
  2. Oddest Reaction To Gluten?

    Or maybe a reference to emergency - 911 I've had weird things like that happen to me, but I just started the diet so haven't been glutened yet. I'll see what happens. .....life can be so strange....
  3. Dental Problem

    This is the first time I've heard of this. (I'm new - just been gluten-free for 4 days - improvement already). The bone in my gums is receding and I have very sensitive teeth. I also have a growth (I forget what it's called) though it hasn't changed in years. It's like there's a tooth trying to come out sideways, but there's no tooth.
  4. I started a gluten-free diet 4 days ago, and I've already seen improvement in one way. As I mentioned earlier, I've been taking a prescription acid reducer in order to prevent constant acid indigestion. If I stop taking it for a couple days I get so acidic it seems to expand beyond my digestive system - like my eyes feel acidic. I stopped taking the pills 2 days before the diet, and it made me feel horrible as usual. On the first gluten-free day the acid started to subside, and for the last 2 days I've had no stomach trouble at all. This is astounding! I've had slight indigestion after eating dairy so I've cut that out as well. I guess I'm onto something! I suppose it could be gluten intolerance, or wheat allergy, but I think it's celiac. I saw two pictures of DH that look exactly like my rash. Thanks again for all the help! Where would I be without you?
  5. lol rinne Wow, that CT scan sounds brutal. Thanks for the advice. I gave up on the rash but I started a gluten-free diet 4 days ago, and I've already seen improvement in one way. For the past three years I've been taking a prescription acid reducer, in order to prevent constant acid indigestion. If I stop taking it for a couple days I get so acidic it seems to expand beyond my digestive system - like my eyes feel acidic. I stopped taking the pills 2 days before the diet, and it made me feel horrible as usual. On the first gluten-free day the acid started to subside, and for the last 2 days I've had no stomach trouble at all. This is astounding! I've had slight indigestion after eating dairy so I've cut that out as well. I guess I'm onto something! Well, if lunch is impossible, there's always Perrier with a twist! Hey Magician, any luck with the support group? That celiac.mb is possibly the bleakest looking site I've ever seen. Maybe you can save it! I'm a creative person, too. I'm mainly a visual artist, and I write and sing a bit. Bon appetit!
  6. Unhappy, I'm so sorry for your suffering. When I had cancer in my teens, it was very frightening, and for a long time I just thought I'd probably die soon. But I didn't. I hope you don't give up, and get all the help you can for your health. My heart is with you.
  7. Thanks, you guys! I have a lot of symptoms of celiac, but I couldn't get the whole blood panel, just transglutaminase, and I tested negative. My gastro appointment isnt until July 23rd, and I was told I was lucky because it usually takes a year. Did you guys have trouble with stuff like that, too? I know we have doctor shortage here in Manitoba (and a whole lot of enthusiasm for grain!) I've actually been doing something quite silly for the last few days. I'm trying to grow a rash! I lived in Toronto for 12 years, and often got a rash that really sounds like it could be dermatitis herpetiformis. Since I moved back here to my home town I don't get it much. I don't know if it was the higher humidity in T.O. or maybe that I drank way more beer (my roaring twenties! ) Anyway, I sometimes get it from band-aids, oil paint, etc. so I thought if I could cause an outbreak I could get a diagnosis that way. But I think it's just too dry and cold. It starts to appear, but I can't get it to blossom. I guess I'm nuts! Well, back to plan A, which is to go on the diet for 3 months, then do the challenge. It's nice to meet some fellow Manitobans. Maybe someday we can do lunch! Keep warm
  8. Hi Magician and rinne! I found this for Brandon: http://www.celiac.mb.ca/mbchapter/brandon/index.html The site isn't very informative, but there are a couple of contacts on there. I live in Winnipeg, and am trying to figure out if I have celiac or not. Thanks for the link for celiac support in Winnipeg. Good luck!
  9. Hi Jitters, I don't know if I have celiac yet, but I've had thyroid problems for several years. Because of that, I see an endocrinologist. That may be a good idea for you, too.
  10. Unhappy and Cath, I realize you are already recognizing the seriousness of celiac, but I still felt compelled to throw my two cents in. I'm 40 and have been very ill for eight years. I just started learning about celiac a month ago, and discovered that all my problems could be explained by it. One of the things I read was an article from 2006 which said they recently discovered that people with celiac have a higher risk of thyroid papillary carcinoma (a type of thyroid cancer). I had my entire thyroid gland removed when I was 17 because of papillary carcinoma. I also had affected lymph nodes removed, and two radiation treatments. I was not old, and I'm still not. My peers are as spry as anything. I only feel old because of my many symptoms, most of which I didn't have in my 20's. I had a great time in my 20's but my fond memories are not of burgers. (There is a certain chicken burrito, but never mind that lol) Depression is a symptom of celiac disease, so if you have depression you're not asymptomatic. Depression can certainly make everything more difficult, and make you care less about yourself. Maybe the depression will at least improve if you stick to a 100% gluten-free diet. Somebody else on this site made the suggestion that when you go to restaurants don't try to explain that you have celiac. Just say you're allergic to gluten. Nobody can question an allergy. What if it was something that would close up your throat? They don't know. You might still get glutened, of course, but there's no need to be embarrassed as though you're being difficult or picky. You're not. You're taking care of yourself and your future. I really, really want mine. I'm sorry. I really don't like scaring people. Best wishes!
  11. I forgot to mention that I looked at a lot of DH sites and the pictures they showed never really described my rash. It manifests itself differently in different people. But then I found the following link that has a larger selection of photos, which you might want to check out. (I don't yet know if I have DH, but my rash looks exactly like DH3 and DH4 except that it's usually on the inside of my elbows.) Click on a picture if you want a closer look. http://www.lib.uiowa.edu/hardin/md/dermnet...petiformis.html
  12. Just in case you start looking into whether or not your levothyroxine contains iodine, I thought I'd try to prevent possible confusion. The reason iodine is an essential nutrient is that iodine is an essential component of thyroid hormones. "Levothyroxine" or "thyroxine" is the same thing as the thyroid hormone, "T4". The "4" in T4 stands for the number of iodine atoms in each molecule of the hormone. So, thyroxine MUST contain iodine. If it doesn't, it's not thyroxine, and it's useless. So keep taking the thyroid meds, and don't be afraid of the iodine in them. If you want to reduce iodine in your diet, there are foods you can avoid, keeping in mind that some iodine is required for thyroid function. Here's one link that may be helpful: http://www.whfoods.com/genpage.php?tname=n...ent&dbid=69 Of course, if your rash is DH, then you need to cut out gluten and not just reduce iodine. Best wishes, and good health to you and yours!
  13. This is very interesting. A month ago I got a neg celiac blood test (couldn't get the whole panel - just transglutaminase). My doctor tested for a bunch of other stuff too. The one thing that was a little high was my white blood cell count. Two weeks later I had another test and it was still high, so today I got WBC tested once again. I don't know if it's T lymphocytes or not. I'm scared. My gastro appointment isn't until July 23rd, and that will likely be just a preliminary consultation. So my plan is to go off gluten for 3 months, then back on.
  14. I'm so grateful for your guidance. It sounds like a plan. I'll start the diet. I'll let you know how things go. It's true I haven't felt very photogenic lately. I'll take some pics too ---->
  15. Does This Make Any Sense?

    Thank- you both for your insights. I'll look into all those possibilities.