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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About bobbyj

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  1. Hello all. It's been a while, but I have now had some blood tests done and am looking for some help to interpret the results: Anti-endomysial IgA - negative Gliadin Peptides IgA - 2 RU/ml (normal range: 0-25 RU/ml) Gliadin Peptides IgG - 109 (normal range: 0-25 RU/ml) I was also tested for Intrinsic Factor antibodies and Parietal Cell antibodies (to test for pernicious anaemia, a cause of B12 deficiency) but was negative for both. My doctor told me that, based on the tests, I can rule out celiac disease. He couldn't offer any explanation for why my Gliadin Peptides IgG result was so high - more than four times the upper normal range. I don't know how normal or otherwise it is to have a very elevated Gliadin IgG result with a normal Gliadin IgA result, but I'd welcome any information on what this may mean? Thanks.
  2. Yes, I've had my TSH and Free T3 and Free T4 checked. They were all within range, according to my doctor.
  3. Thanks to all for your replies. I've been taking B12 injections and also sub-lingual lozenges. Strangly, my symptoms - primarily fatigue - have not improved much, though. I don't know if I have pernicious anemia - the relevants tests (Intrinsic Factor antibody, Schilling test, etc) are not available where I live. Similarly, I can't do the celiac disease antibody tests here. I'm curious about people with confirmed celiac disease who have had an endoscopy or colonscopy. Are their results generally similar to mine (in terms of slightly flattened villi) or are there also other indicators of celiac disease in their biopsy results? According to another doctor I saw today, a biopsy should conclusively reveal whether or not there is celiac disease. The doctor who did the colonscopy did not tell me that the B12 deficiency was caused by the flattened mucosa. She basically said that intestinal malabsorption could be ruled out as a cause of my deficiency, because I did not have symptoms such as chronic diarrhea and I did not have other deficiencies, particularly iron deficiency. She gave the same reasons for why she didn't think I had celiac disease (when I raised the issue, not her). She said that in even mild cases of celiac disease there would be an iron deficiency. As I am not convinced of my doctor's knowledge on this subject, I'd appreciate any further thoughts from forum members. In addition, any suggestions of knowledgeable doctors (anywhere in the world) who I might try to consult with by email to get a second opinion on my test results would be much appreciated. Thanks.
  4. Hello all, I'm hoping some of you can answer my questions about B12 deficiency and possible gluten intolerance. I'm a 38 y-o male and was diagnosed with B12 deficient anaemia four months ago. I don't know the cause of it. I am wondering whether celiac/gluten intolerance may be the cause. I live in Asia in a country with very limited medical expertise in this field. I have not been able to have any specific blood/antibody tests for gluten intolerance, but I have had an Esophago-Gastro-Duodenoscopy (EGD) and a colonoscopy, and biopsies. The results were all fine, according to my doctor (who wasn't able to give me any explanation for my B12 deficiency) but I still have unresolved questions. My biopsy results showed: Mild chronic ileitis with slightly flattened mucosa in the lamina propia, terminal ileum (with no increased eosinophils or parasites seen). Moderate or mild mononuclear cells in the antrum, body and incisura. No H pylori organisms identified. Moderate intestinal metaplasia in the antrum. I'm wondering whether these results indicate gluten intolerance/celiac disease and, if so, whether this could explain my B12 deficiency? What I don't know is whether "slightly flattened mucosa" would constitute enough damage to the villi to prevent/reduce absorption of B12, or would the mucosa have to be significantly flattened? Secondly, if flattened mucosa were the explanation for my B12 deficiency, should I also have suffered deficiency of other nutrients (particularly iron), which apparently I did not? In addition, do the "moderate or mild mononuclear cells" and the "moderate intestinal metaplasia" potentially mean anything regarding gluten intolerance? Any answers or comments from those on this forum who are more knowledgeable than I on these issues would be very welcome. Thanks greatly.