This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I saw Melinda Dennis in her celiac clinic this week. She's a hard core nutritionist who has had celiac for 18 years. Just full of knowledge, very up to date, advises the FDA, etc.
I found I was in good shape as far as avoiding gluten, maybe be more careful about eating a lot of stuff made in factories that also handle wheat. Okay, fine. Gave me a bunch of gluten-free samples to try. She's got manufacturers throwing cases of samples at her. That was cool. Especially something called Shella snack mix - corn nuts, pumpkin and sunflower seeds, ground chickpeas formed into crunchy noodles. I would pay real money for more of that stuff.
But but but but but...
Her big thing is the need to eat healthy grains. 5 times the protein, low fat, vitamins etc.
Sorry, I've made the effort to be gluten-free, but I am not cooking and eating quinoa, millet, buckwheat and flaxseed. I've tried bitefuls of them through the years, and I'm didn't like them. Besides, DH is on the Autistic Spectrum. He won't try new foods. Period.
Please let us know your results.
Make sure to stay on the gluten until after the biopsy.
The pancreatitis is probably due to your high triglycerides.
Try to eat fat free until it clears up. That often helps.
Me, I had IBS diarrhea alternating with constipation, fibromyalgia, chronic fatigue, depression, obesity, allergic rhinitis, asthma, hypertension, gastric reflux, type II diabetes, low ferritin levels and high white count levels. All of these have improved since going gluten-free. Except the diabetes, it got worse because I was eating more sugar than usual. So now I'm doing gluten-free and sugar-free. I've never felt better in my life. Hang in there.
Before diagnosis I had IBS-A and depression, fatigue and brain fog as my major symptoms.
I delibrately glutened myself once out of frustration of not being able to eat what I wanted.
3 hours later I had stomach pain and threw up several times. It took me 3 days to really feel back to normal.
A doctor told me it might not be the gluten and the only way to know for sure is to do it again. So, like an idiot, I did it again. 2 hours later I had projectile vomiting at work. When I say projectile, I mean the bathroom door and floor. All over it. I finally stopped throwing long enough to drag myself back to my desk. Then it started again. The wall and carpeting in my office, the paper shredder, and I half filled my wastepaper basket. Oh, and I threw up again in the car on the way home. DH came to get me because I was too sick and dizzy to get myself home. I was in bed for 48 hours. I took about a week to really feel completely better.
Needless to say, I won't be delibrately eating gluten ever again. I'm done.
I am sorry you are going through this. It sounds horrible.
Well, if the obvious things have been ruled out, it's time to look at the not so obvious.
Did the symptoms start after the hysterectomy? Was it a vaginal hysterectomy? There's always a possibility of nerve damage from surgery, and your symptoms sound like it could be nerve damage.
Especially since you mentioned it was a difficult surgery.
I would suggest you see your doctor and ask if you can start a course of Neurontin (gabapentin). It is used to treat all sorts of nerve pain. It may take increasing the dose several times before you see any effect, but it's worth hanging in there. I hope this helps.
I have positive blood work (endomysial antibody IgA) and feel better off gluten. I decided not to have a biopsy because I didn't want to go back on gluten for it.
So one day I was depressed about being gluten-free and I decided to eat a bunch of gluten to see what happened. Two hours later I had stomach pain and vomiting. It was weird because I never had those symptoms before going gluten-free.
Anyways, I told my doctor about it and she said there's no way to know for sure if it was the gluten because it only happened once. So, dear celiacs, should I do it again?
Pro - It would prove once and for all that I really do need to be gluten-free.
Con - Who wants to get sick, then feel like crap for a few days?
Rachel, I was just diagnosed Celiac. But I've been a compulsive overeater/binge eater for 30 years. Telling me I couldn't have something would lead to deprivation, then a binge. Over and over again. What helped me was the bulletin boards on www.something-fishy.org, said to be the best eating disorder website around. Yes, you are eating disordered. Don't wait until you have type II diabetes, like I do. It takes a long time to recover emotionally from the need to binge. Start today.
Thank God for Mexican food!!!!!
I cook a lot at home, which has made the transition easier.
We're living off of Mexican and Meditteranean food,
since they both have a lot of rice recipes.
I have refused thus far trying the gluten-free pasta and bread.
I'm hoping when I finally break down and try it,
I will have forgotten what glutenized stuff tastes like.
That way I won't be comparing them.
Oh, and I'm diabetic and have polycystic ovaries.
Sucks to be me. Oh, well, we'll always have raspberries...
I too am obese (BMI now a bit under 40).
I've been diagnosed and gluten-free about 4 weeks now.
I pee'd a lot the first week, and my clothes are looser.
I'm surprised I don't have a lot of weight loss,
only 4 pounds, because it looks like I've lost 20!