Elsie L replied to Elsie L's topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsKaren, thanks. I checked the site and obtained some useful information. Elsie
Elsie L posted a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsHi. I'm new to the forum, but not new to celiac disease. My daughter, now 46 was born with it. I was told I probably had it (by a physician) but never tested until this yr. First test I had been strictly gluten -free for 2 mos. IGA and IGG were negative. So was the endomesial antibody IGA. So I did a gluten challenge for three weeks. Tested again. Everything negative but Endomesial antibody went up to just enter the positive range, exactly 1:5. I'm thinking now I should be on gluten a longer time and test again, because the longer I am on a ciet containing gluten, the more digestive distress I am having. 1. Can anyone explain what the higher endomesial antibody test results might indicate? Should I pursue more testing after a longer gluten challenge? 2. What is an ARA test? Should I have had it or did I already under one of the other names? 3. The nurse read my report to me over the phone, at my request, and mentioned a term that included the words tissue transference (not sure I got it right, but the number she gave me on that was 13, whatever that may mean. I will meet with my dr. and get these things clear, but frankly I don't think she knows that much about celiac disease or the tests. I'd like to go armed with the right questions to ask! Thanks for sharing iwhatever nformation you can. Elsie p.s. I've suffered digestive problems all my life, sometimes called colitis and more recently irritable bowel or "food sensitivities." After being treated for non-hodgkins lymphoma two yrs. ago and learning the higher risk for that among Celiac patients I feel I need to get serious about a definite diagnosis to preserve my present health.