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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About disneymom62

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  1. Enjoy your brownie!! Funny - my dog does not do well on grain based foods, either - most folks don't realize that getting corn and grains out of their diets will make a world of difference - and he's (and my cat too) have both been eating grain free since last July. It's made a world of difference with them. Actually, my husband and daughter are the minority in my household, three of us grain free and only two of them still eating whatever they want!
  2. sweetfudge, thanks for the review! I'll be making my first gluten-free trip to Disney in May (long time Disney traveler, though) and I knew they were accomodating, but sounds like a dream come true! Oh... that's right... it's Disney! I'm not sure yet if I'm looking forward to the new Celiac part of the trip and still just getting used to all the fun things I can't eat, but really, I am looking forward to dining there. There are some amazing restaurants and they do their best at making everyone's trip a magical one - despite what we can or can't have.
  3. THANK YOU all for your wisdom and encouragement. I don't believe my family understands it, despite my attempts to educate. My husband refuses to acknowledge that even the slightest amount of a gluten product, say in a seasoning or something, can continue to cause damage. ("oh, well it's just seasoning, there's nothing in it you can't eat." or "well a little now and then isn't going to hurt you". OR - this past Sunday, "we know you can't eat sandwiches but we got sandwich stuff from the store for lunch".) Despite my frustration over a food decision that ticked my family off the other night because I couldn't eat it, (had to do with going out, not cooking) I really am thankful that it's not worse than it is. Colon cancer runs in my family, so negative biopsies and polyps are welcome news. I'm sure I'll get there with this - cooking isn't TOO bad, I've had to eliminate a few meals from my meal plans but will have to come up with options. We usually eat out one or two evenings in a week and then usually one fast-food on the weekend. I hate having to think my way through going a place, and although I like salads, you can only eat them so much when you go out! I had to pick up dinner on the fly yesterday evening, as I was returning home from an after-work vet visit with the dog (who, coincidentally, eats grain-free) and didn't have anything ready/time to cook. I had to go through which places I could go that I could get something for all of us. Arbys - salad. Thank goodness Tinkyada pasta is good because I do like my italian dishes! Also a hole in the wall Italian place in my town is one of my absolute favorite places to eat... alas, no more. the learning curve is big, but One Day At A Time.... Again, thanks, everyone!! Oh... and the Taco Bell.... kind of kidding. Kind of. I do love TB, but I can live without it. Funny how for the past two or three years every time I've eaten it it's made me sick after, but I never realized why! I can get my mexican food elsewhere!
  4. First, sorry but I'm whiny tonight. I'm going through a rough patch and trying to find out if my feelings are normal. I found out about a month ago that I have Celiac disease. I went about it with a positive attitude, planning new menus for my family (husband, self and adult daughter in college); Been eating very carefully, and I've been feeling better - not bloated, using the bathroom every night, no more IBS symptoms; but all of a sudden I'm frustrated! It's tough to find something out to eat in restaurants, seems like I'm eating the same things, tired of having to look at every single label before I eat something. We can't make a dining out choice on the fly because of the thought it seems like I have to go through before i can say "let's go here...", I want a burger with a bun, a sandwich with bread that doesn't taste like particle board, a trip to Taco Bell... I know it's only been a month - I'm EARLY into this. I know I'm whining. Does it get easier on the family? On me? Do the cravings for off-limits foods pass? Does the frustration and depression pass? Is it normal to feel like you're ruining your family's plans and desires for food? Sometimes I feel like they don't understand, like I'm being a 'party-pooper' so to speak. Like I have to explain every single time I say I can't go here, can't make a certain item, or can't eat this or that. It does get easier, right??
  5. There are several grain free dog foods on the market (mine eats grain free), but Chicken soup is definitely NOT one of them. Natural Balance makes a sweet potato-based food, but I don't feed it because it's first ingredient IS sweet potato, not a meat meal or meat. You might look into the Nature's Variety line - Instinct and their raw formulas (their Prairie is NOT grain-free); Taste of The Wild (mine is currently eating a variety of that now), And Wellness Core. There are other brands out there as well, Orijen, Before Grain, Horizon Legacy, and Canidae Grain Free. the problem is for me, I can't get all of these in my area. I can get some flavors of Instinct, the Wellness Core, and Taste of The Wild, and Nature's Variety raw. Watch for yeast in some of these as well, as some dogs can't tolerate yeast. Both my dog and my cat are on grain free diets and have wonderful coats. If you have any questions, ask away!! I have done a BUNCH of research on this after having spent a LOT of money having a large tumor removed from my dog last summer, and then finding out all of the crap they put in grocery store dog foods. these foods are expensive, but dogs eat less of it because of the higher caloric and nutrient content. Good luck on your search!
  6. sbj - oh wow! Thanks for that information. I'm going to ask about that test.
  7. first of all, thank you all!! SBJ - yes, 46 was very young. This was back in 1968 - I was 6 years old at the time and have very little memory other than knowing he was very sick for a long time. He has been living with a colostomy for YEARS and is still kickin' at 86. the diagnosis at that time of the cancer was "familial polyposis". He sent me a copy of the hospital report about 10 years ago, I took it to my doc who immediately sent me off for my first GI visit and subsequent colonoscopy. I've been very good about going in since then, and my GI knows of the background. I will definitely look into Lynch Syndrome and learn what I can about it - thank you. ang1e - I have taken the plunge and been off gluten since Friday. If I had to notice anything so far, and I know it's early to notice changes, but I'm not as bloated. mastiffmommy - when you say "really sick", can you define? (or is that TMI???) I am off and have been for a few days. Fingers crossed it makes a difference in the way I feel. I will say, as I noted to ang1e's post, I'm not as bloated feeling. that's a plus!
  8. I'm new here, and thought I'd ask all of you for your opinions. Being the daughter of someone with colon cancer (dad had it when he was 46, same age as I am now) I get regular screenings. I have diverticulosis, and struggle with occasional bouts of diverticulitis. About 5 years ago I went to my GP about bouts of severe cramping followed by diarrhea. He chalked it up to a bacteriological infection, put me on antibiotics and sent me on my merry way. I have noticed over time that these became more frequent - from a couple times a year to several times, to once a month, and within the last 4 - 6 months, a good once a week. It became increasingly difficult to eat out with friends or on business, as I never knew when I would be doubled over 30 minutes later then running to the bathroom. My intestines are always in a constant state of gurgle, and I'm constantly fighting constipation then the cramps after some meals, I'm bloated, painful, mucousy and gassy. I fight with insomnia and just being 'tired'. I changed GPs this past fall, and out of frustration, saw her about my "issues". She ran blood for the normal panels for white counts, cholesterol and such, and set me up for an ultrasound on my gallbladder and a visit to my GI doc. The blood came back good except for Vitamin D deficiency and the gallbladder came back clean. In the process of the ultrasound they discovered some growths on my liver for which I've since had a CT scan, and they came back as benign cysts and hemangioma. I also take Synthroid for thyroid issues, post-total abdom hysterectomy a few years ago. I saw my GI about a month ago at which time he took me off dairy and sent me off for blood testing and then stool sample testing for a couple of things. Getting information out of his office has been a little difficult. Two weeks ago I had my colonoscopy. At that time, he advised me that my blood work for the celiac screen had come back high, and the other tests were fine. He told me that he would have me come back in for an upper GI scope. 'scopy started, Versed didn't work so I actually (albeit very groggily) talked to him a little during the test - between the "ow, owww, OWWWWW"s. Polyp removed, biopsy taken, and he decides right then and there to do the EGD, instead of having me come back in. WHAAAAAAT??? Alllll righty then, I wasn't exactly in a position to say "no", so I go with the flow. After tests are finished, I'm told that three more biopsies taken, call his office that Friday for results, and continue to stay off the dairy. So, I call his office that Friday, no results back yet. Call again the following Wednesday, leave message for the nurse who calls me Thursday afternoon. Doc is out for the rest of the week, and he hasn't 'signed off' on my test results yet, so she can't tell me what's going on. HUH?? I told her that he'd already told me that blood work came back "high", can she tell me anything? No, she says, but she will say that there is no cancer, (YAY!) that the lab results are 'complicated', and that she can't give me an "official" diagnosis since paperwork has been not signed off, but it appears that the results are indicative of celiac. They'll likely be sending me to a dietician. I (probably too hastily) posted a question here on Friday regarding popcorn and the movies, but I don't want to eat anything I shouldn't! So, I wait for the "official" word from his nurse, who has told me she would review my file with him tomorrow and call me tomorrow (Monday) afternoon. Am I being to hasty? Do my symptoms sound like what you guys have gone through? I've read that they can vary greatly, but I wonder how I compare to those of you who have been diagnosed (either recently or not-so-recently). I'm not looking for a diagnosis here - but wonder how normal and typical what I've been experiencing is. Is it severe or just minor sounding? What kind of relief can I look for with a change in diet? What important questions should I be asking his office? What should I look for on the lab reports? I'm trying to learn all I can - and any information that you can give me would be greatly appreciated.
  9. Movie Theatre Food? Popcorn? Safe?

    great advice, thanks to you all! I took a bag of Trix cereal for something crunchy, and took some banana chips. I bought a bag of Cheetos because I didn't see any gluten ingredients in them, but didn't open them. I'm going to have to try the microwave popcorn trick next time. Is it the Orville Redenbacher's brand that is gluten free? This is going to be an interesting learning curve, but I think I'll get there. This forum and all of the knowledge here will be an immense help.
  10. OK, so I'm very new at this... VERY new. I have word from my GI doc after blood test and biopsies that I have Celiac disease. I'm learning what I can't eat, and what I can eat. I am going to the movies with a friend of mine tonight, and don't know if I can eat my customary popcorn, or if I need to pack some gluten-free snack. Will there be anything there I can eat? Help?