Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

  • Announcements

    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


  • Content count

  • Joined

  • Last visited

Community Reputation

0 Neutral

About Zoide

  • Rank
    New Community Member
  1. Wow! Thanks guys, I really appreciate all the feedback. As I suspected, I'll need to switch to a doctor who actually knows about celiac disease. I think lizard00 is probably right. There can be very good gastroenterologists (I think mine is decent for non-celiac problems) who know nothing about celiac disease. Then again, a specialist who knows little to nothing about something so important in their field is hardly what you would call "good"... Especially when he's ignorant yet he affirms BS so strongly! Thanks all, I'll be switching docs now...
  2. For the record, I definitely have celiac disease (I see there are some threads discussing celiac disease vs gluten intolerance, etc.). I've been diagnosed via blood tests and biopsy. I also developed osteoporosis (at age 18!) and later anemia, as well as ulcers in my mouth and throat. And diarrhea, of course. I've also been diagnosed with ADHD in the past (in case you are one of those who believe in an ADHD-celiac disease correlation). The part about the allergy test refers to those doctors that prick your arm in 20 places with tiny needles containing allergens, and watch for red spots. The doctor also put some patches on my back containing actual pieces of allergens (meat, wheat, etc.) that I kept there for something like 3 days. He said I was sensitive to beans, mites (like bed mites), yeast, and a little bit to peanuts. But he said that there definitely was no reaction at all to wheat.
  3. This sounds crazy, but yesterday my gastroenterologist said that I might be able to eat wheat even though I have celiac disease! His reason is that my allergy tests came out negative for wheat... Now, as far as I understand, you can be allergic to wheat but not have celiac disease. That much makes sense, as someone may react to chemicals in wheat other than gluten, but he/she may have no problems with the gluten itself. However, I don't think it works the other way around. If you can't eat gluten, then you can't eat anything that has gluten in it (and wheat very clearly contains gluten). The doctor's explanation was something along the lines of: "Yes, but the gluten itself isn't what harms your intestine. It's after your immune system reacts to what you ate that it acts on the gluten and then makes it harmful to your body. In this case it's possible that your body doesn't react to wheat, so the gluten in that wheat won't do you harm. Meanwhile, it could be that you do react to barley, rye, etc. so that when you eat those your body does make the gluten in them harmful." Isn't this complete nonsense? I would love my doctor to be right, but unless I'm missing something big I see no logic to what he's saying. Can anyone chime in please? Thanks!