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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About zarqmum

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    1. zarqmum added a post in a topic Neuro Symptoms   

      Thanks! I hope so too. My daughters main symptoms were neurological, she had very bad neoropathy and ataxia both of which have improved greatly. She always had a tremor though and thats not gone. She's been tested for everything, which her GI is redoing now. He suggested that it could be brain calcification which is what happened to my mother with her lupus, so I'll be requesting a neuro referral and then I guess wait and see. Good luck at your appt. Feel free to email me if you'd like to talk more about this
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    2. zarqmum added a post in a topic Neuro Symptoms   

      I don't believe that it's milk. It could be, but she did a lactose test and was free and clear so I don't think milk is an issue. But I am nervous that it could be seizures, the GI said that it's possible she has calcification in her brain. When I thought about it my Mom had very severe lupus and she had calcification and seizures that started out similar. So I'll be requesting a neuro referral and then I guess we'll go from there.
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    3. zarqmum added a topic in Celiac Disease - Parents of Kids or Babies With Celiac Disease   

      Neuro Symptoms
      Hi my name is Valerie, my 6 y/o DD Avery has been having some more strange symptoms and I'm wondering if anyone else has seen or dealt with something similar.

      First things first we have been to the Dr and return again on Friday afternoon.

      Avery was diagnosed Celiac, by endoscopy in December. Once we started her gluten free she started to thrive and do amazingly well. In 4 months she gained 10 lbs and grew between 4-5 inches. HUGE growth spurt. She started to chub up and look just incredible. Then about 6 weeks ago, she came down after waking saying she felt shaky inside. Her whole body was visibly quivering, I gave her some juice and made her a hearty breakfast which seemed to help. The next day she woke sick with a virus, so the next few days of shaky complaint I attributed to being sick. I gave her 2 weeks and made extra effort to be sure she had a good source of protein with each meal, just in case. Then it seemed to disappear for about a week and returned. We've been to the Ped. She did a glucose tolerance test which came back normal. The Ped said it could be related to going gluten-free, but the dietitian says no way, I lean more with the dietitian. Anyways, now in the last 2 weeks since the blood tests it's gotten a bit worse, her face kind of twitches on one side of her mouth. Every morning when she wakes up her body is shaking so bad she has a hard time walking down the stairs. It doesn't seem to be related to blood sugar because it just goes as quickly as it comes. Like I said we have an appt on Friday with her GI who is far more willing to be investigative than her ped, which is why I'm waiting. Most of her Celiac symptoms were neurological, and now I'm worried that maybe there was some damage done.

      Anyways, I don't know if anyone has had anything similar but with the ped and dietitian at a loss, I'm grasping in hopes of finding something. I feel so bad, nothing ever seems to go right for her and I just want her to feel good. Oh and in December her thyroid function was properly tested and came back normal, all of her vitamins were within normal, with the exception of her Calcium which was slightly low but he expected it to improve with diet.

      Mum to Avery, age 6 - diagnosed December/08
      -ataxia & peripheral neuropathy were her main symptoms-
      • 9 replies

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