This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I have been at this forum since January ish of this year. You all have helped me tons more than any doctor my son has ever seen. We started our son on a gluten free diet and he has thrived more than anyone can imagine. To our shock we found out this week our son has a form of autism. To any sceptics that do not beleive that the gluten free diet can help, we are living proof it does. I have joined many support groups and you would not beleive the resistence of switching their child diet. People would rather have their child on drugs! They think it will be to hard to keep them on this diet. This train of thought is very shocking to me, but to each his own. As of right now my son does not need any meds and will take every route I can to keep it that way. This diet is hard but nothing in life is easy. Thank to all who have been on this journey to find answers for my son.
I have twins that both fell to the 25 percential after years of 90th and above. It was not till recently I started the diet with my son and he has complained a few times about growing pains behind his legs. So fingers crossed my other son has a hormome deficiency so i can not really tell until hopfully my celiac son starts growing. I worry about this constantly. Good luck S
Since she has already been tested and carrys one of the Genes and is starting to be sympomatical, I would do it. I did do the panel on my son and he was neg but have seen a life changing difference in him since going gluten free anyway. (my family has a long history of autoimmune dz, I also went gluten free after a neg blood test and it has been a life saver.) I saw a gi doctor on my peds request for the celiac panel, and have not seen my ped since. I will be going to him in may with my child (5 also) check up and a list of major quality of life improvements that we have been struggleing with for years. As you prob. already know, if it is a gluten intol. there may also be a casien intol. I will be giving up casien- milk- on both of us after three month. ( I know I am having problems with it, but thats what they say is ideal to wait 3 months after starting the diet) my childs school has been great, but he is still in preschool. I talked to his k and they seem to be on board as well. One month is not going to hurt anything other than results on a blood test. Good luck in your decision.
So my B12 was low and they gave me an injection 3 weeks ago. I dont know about other people but I know my body, and I can garentee it is low again. My celiac test came back neg (not shocked started the diet first) and I have had a great improvement with quality of life since starting the diet. It got even better with my b12 shot and perscription D. My question is the doc. wanted me to wait 6 weeks before testing my levels (to see if it is dietary- hahaha- or my body) and I do not think I can go that long. I am getting tired again and not nearly awake as I was, it feels like the fog is coming back. I just woke up and am enjoying life for the first time in 6 years. They told me that I should have been neurologic last time it was so low. Yeah , really want that to happen. Should I wait, part of me says yes then the other part is like " girl are you insane, you just wasted 6 years of your life" What would you do?
I love this forum. It keeps reminding me I am not alone. I suffered from severe vertigo. Hospital 2 times. The patch I had to were caused major pain behind my eye, but I could not walk with out it. 2 days after stopping gluten all gone, only to return and not as severe with a glutening. I had minor vertigo for severel years, the kind where I would trip coming out of an elevator because my body had not stopped even though the elevator did Everyone use to laugh at me because it would never fail I would trip every time, it may have been 2 or three steps out but like clock work none the less. Thank the maker it is gone. I was low on B!2 also but my vertigo was gone with the diet before I got my injection. Good luck
When I eat gluten I get disorented also. But I do not know the extent, my husband tells me. But with a child I would call the ped. This could also be a virus on top of being glutend or just a virus. If it was my child I would treat them as sick, BRATY diet for a day or so(Banana, rice, apples, Toast, yogurt) and if no improvement take her in. But would defineatly give the ped a heads up on the disorentation. Good luck on this I know it has to be frustrating not knowing what is going on.
jmjs- I know how you feel with the eczama. My 5 year old has it severly also. We have it mostly under control now. (only took 5 years) Now he was under control all winter, (only winter ever by the way) and we only started going gluten fee about 3 weeks ago keep in mind, the first time he got glutend it all came back with a vengence! When I cut it out again, skin cleard up. Now he is on medication for it, but it did not control the flare up from gluten. ( he is on allegra- fexofedidine) Now my allergist said if the med did not work he would need to go on uv therepy thats how bad it was. I have not attempted to take him off yet, but i may in a few months, just to see how much of it was gluten. Do you know what triggers your childs?
I have also found more research on it recently that states it helps children with dry skin and poss. even eczama. I started it about 2 weeks ago on my son. Just wanted to see what everyone thought about the use of it.
Its ironic how things like that work. I have a friend that eats only organic and never fed her children anything but with no exceptions and one of her kids developed ALL (Leukimia at 3). (doing great now has his last chemo in july this year !) Things happen and we dont know why. I hope you enjoy the bakeries.
found this in another post and thought of you. Good luck
QUOTE (kenlove @ Feb 9 2009, 06:27 PM)
Can you pass on the address of Da Luciano's? I Only get there once a year but it would be nice to eat someplace besides Bone FIsh or my mothers house!
Absolutely. Their address is:
8343 Grand Ave
River Grove, IL 60171
You also might want to check out Rose's Bakery, too. It's all gluten-free. They have awesome eclairs (if you manage to snag one, I don't know why they don't make more of these! They go too fast). They make a pretty fine gluten-free pizza, too. Their address:
2901 Central St.
I hope this is close to where you live so you can drop by and enjoy. Hang in there.
OMGolly. I know what that person is feeling. I begged my doctor to run the test for vit deficiencies. He rolled his eyes and did it to please me while saying " Only gereatric people and menopause people have vit deficiency" Well when the results came back I needed b12 injections and a D perscription. I felt good after my diet change, better after my b12 and ready to take on the world with my D. I know I have wrote my story a few times but it has been a week and I can not beleive how well I feel and I can say it has been at least 6 years since feeling this way. I can very much relate to him. I hope he is on the road to feeling better.
Welcome to the club. There are so many different stages you are going to feel before you can say you are ok with all of this. Anger was the big one for me. I look at my sign in name every day and realize how far I have actually come in one month. It gets easier i promise! The people here are great and you can talk about anything without feeling stupid!
There are a few things I want to tell you. Before you get your biopsy The one red flag i see is your anemia. Get your vitamins checked ASAP. B-12 defeciency and anemia run hand and hand sometimes. Vit K deficiency is another it is a vit that helps with clotting your blood. Alot of people who have Celiacs have can not absorb. D either. I am 29 and was told that only gereatrics have vit defeciencys. Be greatful that you have the doctor you do. ( i had to beg my doctor to run my blood work) Alot of us here including myself had to find our own diagnosis and as you stay on the forum you will see how valuable a good doctor actually is. Another few things. Usually when you have one auto immune dz eventually you may develop another. I come from a family that has 3 people with multiple autoimmune issues. You know your body, when you feel off keep tract and talk to your doctor. Now you may not realize you have some symptoms and some of the symptoms you have may start to disapear within days or weeks of starting the diet. I had a pain behind my eye and some dizziness that went away 3 days into the diet. It is a blessing in that you like to cook and bake. This is very important. I hated it, am much beter about it now. Once you get the hang of it it comes very easy. Unfortuanatly we had to get all new kitchen cookware for me and my son due to crosscontamination, but it is well worth it. I went to Trader Joes and talked to the manager and told him what was going on and 4 of his employees were Celiac or on a gluten free diet. So they helped me and my son around the store telling me what was good and what was not ( taste wise and pointed out foods- saved hours of searching) So if when you go to the health food store ask an employee if anyone eats gluten free. Other than steak once in awhile I eat 95% veg. There are bakerys around, I live in St. Louis and found one I am sure there is one in Chicago.
Unfortuanately cold turkey is the way to go. As for healing wise. Any small amount can damage your villa. Good luck- hang in there. You will look back weeks from now and say WOW I have come along ways. It may not seem like it now but it gets tons easier. Plus we are always here if you need support.
Roda-- Isnt it odd, how the D supplement worked. My b12 injection worked ok, but as soon as they started my D (50000 per week also) I was ready to take on the world again. Funny how my doctor said that only menopausal woman and gereatric ( even though I felt like I was gereatric I am far from) have vit deficiencys. Yeah still asked him to run the b12 and D ( doc rolled his eyes and ran it to please me- showed him didnt I !) any way. Well this 29 year old girl had major low, low, low of both. Now if I didnt, I would still be on my couch watching my younge children from a distance instead of playing with them. Docs dont know everything. Sorry to all the Docs on this forum!