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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About agape30

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  1. Hi FL teacher, Sorry to hear you too are going through very similar issues as I am. I had previously thought any GI should've been qualified to diagnose or R/O Celiac Disease after having results from blood tests and endoscopies. Have you heard from the Celiac specialist yet? I'd keep calling the doctor...So you had no gastro-issues before? If you did, have they been helped at all going gluten-free? I told one of my friends with Celiac how my doctor wanted me to go gluten-free at least a month, and she strongly encouraged me to go gluten-free for at least 3 months! I'm assuming I'm to then incorporate gluten and see if my body reacts? (And I will definitely have my fav food with gluten as it may be my last!) It's frustrating to know so many of us get thrown out there with little understanding of what's been going on with our own bodies. I am expecting to hear back from the second doctor this week. If you don't hear from the Celiac specialist, you may want to find another doctor or at least a consult/2nd opinion. And to Mushroom, of course I want people to be honest on here, but the very real possibility of this diagnosis is so new for me. Isn't it okay to hope the Drs. have the wrong diagnosis or to daydream about them having switched the diagnoses/pathology reports? And I am feeling a little better now that I found a few good gluten-free products. But I am a bit worried about going out to eat on Valentine's Day. At least I live in a city and have some gluten-free options. I love Carabba's and was ecstatic to see my fav chicken dish on their gluten-free menu....then I saw that everything (all their gluten-free dinners) are grilled. Hoping for no cross-contamination. (So maybe we should try PF Chang's or Boneheads??) All the best to each of you...
  2. Thanks for your help/encouragement. I must be honest, though---I was hoping you or someone would've said, "ya know, it doesn't look like Celiac to me!" lol
  3. Okay, I'm confused. I've had a number of GI problems on and off for most of my life (and I'm 30). When my sister was diagnosed with Celiac a few months ago, although I had different symptoms from her, decided I wanted to get tested and the GI doctor I chose agreed. Results: My blood work came back normal I then had both a colonoscopy and endoscopy. The sprue were not flattened and the pathology report came back that I did not have Celiac Disease and I was instructed on what to do for GERD and IBS (I was diagnosed with the former from the endoscopy--although I have no GERD symptopms!) THEN...just as I'm about to leave the PA's office, she notices that there's a four-page attachment of explanations. After I convinced her I certainly ate gluten prior to the testing (and a lot of it--was afraid I would never have my fav foods again), she interpreted the findings that I was "at-risk"/predisposition to Celiac. She was confused with the report and said she had seen nothing written up that way. The one thing she said that was noteworthy re: pathology report was some lymphocytes in my colon...I've never heard of that being related to Celiac, but she called me later that day after talking with the GI doctor and he thinks I might have early Celiac. They then told me to forget the drug they wanted me to take for GERD (and not worry about refraining from caffeine, citrus fruits, tomatoes, etc.) and to try going gluten-free for at least one month to see if that helps. I asked if she wanted me to call after one month and she said I "can." I certainly feel more confused than ever and feel I'm left hanging. She also did not direct me to a nutritionist. Would that be wise? It's only my second day going gluten-free and my stomach is continuing to hurt like it normally does, but then she told me not to expect anything until at least two weeks. I've signed a consent form for the test results to be faxed to my sister's GI doctor to see what he makes of all of this. I don't have the characteristic diarrhea and weight loss (the opposite for both), but stomach pain, lots of tingling in the extremities, sleepiness/fatigue, and even some loss of coordination. Any help? Also, any basics I need to know about going gluten-free? I'm especially interested in the following: 1) list of any medications (prescription and OTC and vitamins) that contain gluten or how to find this out 2) a decent bread. I live in a city, and there are some health food stores, but the bread I found was really hard and tasted stale. Is there nothing better? 3) What about mouthwashes and toothpaste? chapstick or lipstick? Anything I need to be concerned? 4) What about frozen veggies or frozen chicken if there is no sauce? I understand about cross-contamination issues as well as that sometimes the conveyor belts are dusted with gluten for cleaning purposes. My sister has contacted a number of companies, but unfortunately, they either never got back to her or simply said, "look at the ingredients." Anyone reacted to plain frozen veggies (or fruit) or the like? I know this was a long post, but I'm at a loss of what to think b/c I was told two weeks ago my results were negative for Celiac! (and hence I went out and bought food containing gluten), so it's frustrating having been informed two days ago that I MIGHT have Celiac Disorder, and their reasons for thinking so don't make sense to me. Any help would be greatly appreciated. Have a blessed day!