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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About redsidekick

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  1. Myrtle Beach gluten-free Options!

    Went to Captain George's Buffet last night & agree with SMRI.  Great experience.  The manager walked me through the line.  He is very knowledgable and will even have kitchen cook an alternative to what is in the buffet. For example, the pork has a sauce that has gluten, but he will have kitchen cook some up fresh without the sauce for you.  He even brought out Udi dinner rolls for me and showed me the packaging so I could be assured they were Udis.  He even stopped by table a few times to make sure I was doing well.  I gourged on the crab legs.  I had no issues from eating there and would highly recommend it if you are in Myrtle Beach.
  2. I was dxd with Celiac about 3 years ago and after what was a long healing process, I felt great, with minor slip ups of gluten here and there (never intentionally). The Saturday before last, I went out to a diner with my friend and ordered a salad with chicken. I awoke in the middle of the night to stomach rumbling and D. The next few days I was bloated whenever I ate, then came gas pains throughout my abdomen, difficulties staying asleep at night, stomach rumblings, and BM's that were one time too hard to pass & the next too easy (I wouldnt call it all out C or D). I decided I was going to call my doctor if things didnt change after the weekend, but as the weekend came, the bloating ended, sleeping got better, stomach rumbling mellowed, the gas pains got less intense and less frequent, but still kind of alternate when it comes to BM's. Since things looked like they were settling down I decided not to call. I never had any experience like this for over a day or two. I have read that for some people, several weeks of issues from gluten is not out of the question. So is this the typical course of events for a glutening episode or out of the ordinary. Thanks as always for any responses.
  3. It took me months to finally feel normal again (but I had major GI issues). This place was a source of comfort reading other people's stories and knowing they went through the same things I was going through. Hang in there, it does improve.
  4. I am a teacher, and wasn't exactly "there" last year when I was going through the intense symptoms, fear of what was wrong, and the dx'd learning curve. I even quit my coaching position b/c I couldnt handle the stress and the recovery. Thankfully my principal protected me from parents who were wondering what was up. Yes, it is difficult to find out what you can eat. I always tell people the hardest part is eating on the fly. It took my a half hour once on the road to find a place that I could have a feeling of assurance that I could have a gluten free meal (finally stopped at a Boston Market and ordered things I remembered were gluten-free). These forums were a God send, I still search for food and restaurant ideas here. Although I still get frustrated and upset (like this week when I walked into a buffet that was set up by the parents for the teachers and I didnt want to bother anyone by asking "what's in that" so I walked out), it has gotten A LOT better. It definitely is a learning curve. If I am on the road and just need to fill my belly, I stop at a convenience store and pick up some potato chips or a chocolate bar (not the healthiest, but holds me over until I get home). Another tip is stock up and foods that you can eat and bring them to work with you. I have some Progresso soups in a cabinet in my classroom, so if I ever get hungry or I forget or don't have time to get lunch ready at home, I'll have something at school. I also bring in bananas every week to snack on. Things do get better, I hope that it gets better for you quickly.
  5. Beginning my 15th month gluten free. Started to feel myself again around the ninth month of GFD. Every so often I don't feel so good again, but the discomforts that come about are less and less intense.
  6. I have expereinced the same issues. Was not an initial symptom of mine, but the rumbles began happening about 1 month into being gluten free. Some weeks are worse then others. Usually happens to me when I wake up.
  7. What would you suggest as the best breadmaker to buy with gluten free flours? How much does the machine run?
  8. Chilis's New Menu

    I also thought that the orignial bbq sauce for the ribs were ok. Really hope that hasnt changed. The Chillis near me has always been very accomadating to me when I come in. In fact the last time I came in w/my family they sent a waitress from another section to serve us because she also has celiac and she was very helpful (She told us the chips and salsa were OK, I did not know that.
  9. Rodizio

    A bunch of my H.S. friends want to get together. They know about my celiac and would like to know if rodizio (brazilian steakhouse) would be good for me. I used to LOVE rodizios before dxd w/celiac and know of some issues (sometime teriyaki chicken is one of the meats served). Is there anyone who has had any experiences with eating out at a Rodizio? What tips or questions should I ask of the resturant before I go? Thanks.
  10. One of the best things about this site is that when you are in your "part of the world" what you are dealing with is so foreign and different than what you have experienced (or anyone else) it is helpful to discover that your not alone, and people here are willing to help. The weight loss and the tests you had/are having are all typical for those dxd with celiac. If you have a question about a food or drink product, type the brand name of it in a search. You will be amazed that most items will be already be commented on. This site helped me more than meeting with a dietitian of what I could or could not have. I was overwhelmed for the first several months. Still get frustrated if I'm on the road and get hungry, but if I'm home I always have something to eat. Hoping the best for you.
  11. One Year In

    It was about a year ago I was dxd with celiac. Over the past year I found great encouragement in reading posts that described symptoms and pains. I thank everyone who was willing to post their travails. It would calm me down when I realized the things I was experiencing was normal for some celiacs (I was not one of the ones who felt better than they ever felt within weeks of going gluten-free). I went through a lot of pain for the first months after going gluten-free. If this is the same for you, the best thing to do is look back month to month, not day to day. When I did this my frustrations of how I felt would diminish because although I was hurting, it wasn't as bad as the month before. I have to admit part of posting this is therapeutic for me as I see how far I have come in the past year. So, here is my history. Summer 06- Stabbing pains in intestines when I ate. Lost about 10 months in one month. Dr. thought is was lactose intolerance, went off milk products, recovered quickly. 07-09- Bloating almost any night after I ate pizza for dinner. Dec. 08- One night I ate pizza and had ice cream for dinner. That night woke up with TREMENDOUS cramps (felt like a blockage and should have went to hospital). Rest of the month my intestines felt "sore" anytime I ate. Jan 09- Woke up one morning with bloating so bad I was nauseous. Intestine and abdominal pain everytime I ate. Was eating BRAT diet b/c of D I was having (increasing my bread intake, not good). Losing weight rapidly (altogether from Dec-Feb, 20 lbs). Went to ER due to pains and rapid heart beat (probably from anxiety b/c I thought I was dying). Everything I ate was going undigested out the other side. Almost fainted at work I was so weak. Missed about 10 days of work in the month of Jan due to GI problems (this is from someone who averages 2 sick days a year). Difficulty sleeping. At this point I was scared for my life. Went to doctor who thought it was IBS (probably to calm me down), but did blood test for Celiac and referred me to GI doctor. Blood test came back slightly positive (forget test but 11 was my number with 10 being positive) for Celiac. GI doctor thought IBS but did endoscopy, looked OK, but biopsy came back mildly blunted villi. Feb 09- Another blood test with the same result, officialy dxd with Celiac. After going gluten-free bowel movements began to normalize quickly, but pains remained in intestines and back. Only eating Rice Chex as I learn the ropes of what to eat. Mar 09- Upper GI series reveals inflammation in terminal ileum, beginning to gain weight again. Still experiencing pain, still frustrated over what I can eat. A lot of anxiety about condition, difficulty sleeping. Apr 09- Colonscopy with entrance into terminal ileum shows it is normal (yea!, 1st normal test in months!) Still in pain daily. May 09- Pain is finally subsiding, more good days than bad. Better handle on what I could eat. Aug 09- Best month in how I feel on a daily basis. Anxiety is subsiding, sleeping better. Sept 09- Feb 10- Maybe once every 6-8 weeks I have pain or bloating episodes that last perhaps a week (glutening?) I have been religious about what I put in my mouth. Sleeping through the night, feeling like I did before all the issues began almost every day. Anyway, hope that helps someone.
  12. Retirement Banquet

    Thanks for your reply. I appreciate it.
  13. Retirement Banquet

    I was dxd with Celiac a year ago. Next month will be a retirement dinner for one of my bosses. It will be buffet style. I would really like to go but I am concerned about eating there. What are others' experiences with this? How receptive are these banquet halls to celiac requests in general? Do I go and not eat (and if I do that, should I still pay for the meal?) Should I avoid it altogether? Any opinions would be helpful. Thanks.
  14. I remember going to visit a friend for brunch within the the first month of my d'xd. I told my wife how embarrassed I was that the meal had to made special for me. I never wanted to be an inconvenience. Our friend laid out the spread, and I apologized for having to be so particular about food, she stopped me and said I having nothing to apologize for and that she thought everyone would be understanding about my situation. My wife, since she usually makes the dinner dates, will tell the hostess about my situation. She defines Celiac and explains CC and other issues. I always ask "How did they take it?" & all have been understanding, except for one person who invited us to a picnic. This time the wife emailed her our RSVP and also for info on what they would be serving, making it clear it was about my Celiac. We never heard a response back, so I went to the picnic and nibbled on fruit. That was the only "bad" experience I have had, everybody else has been great, understanding, and caring. My view is tell them its b/c of Celiac. It also allows you to educate people on what it is. It usually becomes a dinner topic. I figure the more people who know about it...the easier it will be in the future to eat out.
  15. Sadly, it is different for each person. I know I used to get depressed reading how quickly some people felt better. That was not the case for me. Maybe it was because Im older (42), I dont know. I can tell you things improved each month, when I looked at improvement like that, instead of daily, I could see the difference even though I still felt horrible. It has now been nine months since going gluten free, around the seventh things got noticeably better, and now nine months in I still have some bad feelings, but nothing like it was in March. Hope that helps to encourage you.