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About Pegleg84

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    Advanced Community Member
  • Birthday 04/14/1984

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    hunting for good GF beer and perfecting that GF/DF/SF alfredo recipe
    (Celiac, dairy/soy intolerant)
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  1. The GI suggested I try supplementing fibre to help the constipation (GI thought that might be the problem at the time). I got some psyllium husks, but haven't been very diligent in taking it. kept at it for a couple weeks and while I did notice things were moving better, definitely no improvement in other symptoms (dropped off taking it cause I'm lazy). I did read that added fibre might not be good for IBS symptoms (I can't handle too much naturally high-fibre foods anyway). I might give it another shot and see what happens, then I'll at least have something to report back to the GI (it helped, or, it caused more pain). I have been better at taking my probiotics and digestive enzymes, though, and so far so good.
  2. Thanks, everyone. Yes, I know IBS is kind of a catch-all, or diagnosis of exclusion, but it does fit the bill. I have been, and am continuing to be, extra careful about possible gluten cc. I did get a bad glutening earlier this year while on vacation, which floored me for about a month and probably triggered some of the bad IBS symptoms I had at the time. It's always a possibility that mystery glutenings or lingering damage are triggering IBS-like symptoms, but I'm actually better at avoiding gluten than I used to be, and the IBS symptoms have gotten worse over the past few years. The colonoscopy I just had was to rule out Crohn's, ulcers, etc. The scope didn't pick anything up, and honestly my symptoms don't match. Not sure if I want to have another endoscopy to have them poke around in my stomach and not see anything. I suspect that fibromyalgia might also be part of it (the random days when I ache all over and can hardly move). Only recently did I learn that fibro and IBS are often connected. LIGHTBULB! I also don't eat dairy or soy, avoid eggs, can't eat more than a handful of beans/legumes at once, whole grains are hard to digest, too many nightshades usually trigger joint pain/neuro symptoms, etc etc. I don't want to have to do a full-blown FODMAPs diet, but will if it comes to that. I still have to see the GI again. IBS or not, hopefully we can figure out some ways to manage the symptoms and deal with the pain when I have it. It's not so much about having a diagnosis as acknowledging that it could be something separate from the Celiac Disease and that I have to do much more than just not eat gluten. Also, if there are any drugs that will help the pain when my gut decides to go into stabby spasms, that would be nice. I've actually been feeling ok the past few weeks (aside from the colonoscopy horror), and ok so far since the scope ( maybe having your colon flushed out is a good reset button), so doing my best to keep it that way. Anyway, will update when I know more. Keep adding suggestions if you have anything. Thank you! Peggy
  3. Hi all, It's been a while. Things have been ok in the gluten department, but over the past couple years I've been developing distinct IBS symptoms: bad pain in my lower left side (from a dull ache to stabbing pain), pain in colon when trying to BM, constipation (generally), occassional blood in stool, and sometimes overall body pain that can come out of nowhere and make me barely able to move for several hours to a couple days. This sometimes happens when I can trace it back to a possible glutening, but often comes out of nowhere, and tends to get worse the week before my period. So, a couple months ago I had once of these instances of horrible all-over body pain that sent me to my doctor (lasted for 2 days until I finally was able to have a BM). Bloodwork showed somewhat low iron and B12, so have been trying to supplement more (B12 has helped with the nerve pain/aches/fibromyalgia-ish symptoms). My GP also referred me to a GI, who recommended I get a colonoscopy to rule out anything like IBD, ulcers, etc. I had the colonoscopy yesterday (the prep was HORRIBLE! I was up half the night trying to get down as much as I could. Thankfully worked well enough to do the procedure). Got knocked out (best part!), and when I woke up I did have so really really bad cramping from the air they push through your bowels. Super painful (somehow managed to get home under my own power, but it took a few hours to go away). When the GI came to give me the results, I said I was having painful cramping, and he says "well, that's normal for someone with IBS." That's what I thought it would be, and he seems to agree. My colon was normal otherwise. I'm booking a follow-up to discuss what this means. My real question is: can you have Celiac AND IBS? It would explain the mystery aches, my seemingly increasing food intolerances, the killer pain, constipation, etc. When I get glutened, it's more likely to be bloating, the big D, anxiety, general tiredness, brain fog, etc. It seems to generally thought to be one or the other, but does anyone here have both? Also, any tips for managing your IBS (I know, is different for everyone), what to ask the GI when I see him next, etc. In the meantime, I'm upping my probiotics and digestive enzymes, taking all my vitamins, increasing soluble fibre, and am going to try to cut out nightshades completely for a while (emphasis on "try") since I've noticed they bother me. Not looking forward to another bumpy road of figuring out what works and what doesn't, but at least I have a better idea of what's going on. Any information or advice appreciated. Thanks!
  4. Hi Anyana, I've had trouble with quinoa, and its not something I eat very often. It seems to be on my list of things my gut doesn't like to digest without being a pain. It could be that you're reacting to it, or the quinoa you're using hasn't been washed enough (saponins make it harder to digest), or it's something else in the recipe. Try eating quinoa on it's own to rule out the other ingredients first. If it still makes your back hurt, then you could be on to something. This might be a temporary intolerance, though. If you've only been gluten-free since December, your gut is likely still healing and still having trouble with some foods. Give the quinoa a break for a few months and come back to it later. Or, just go easy on it instead of eating it every day for a week. Good luck!
  5. Yup. I have bad vision as it is, but glutenings (or with me, getting into anything that bothers my gut) make my eyes go even more wonky. Aside from difficulty focusing, it feels like there's a film over my eyes: like my glasses are dirty despite having cleaned them a million times. I wouldn't say that it's hard to look at things, but definitely feel more sensitive to bright light, and it's generally harder to focus. I don't really know what to do about it, other than rest your eyes as much as you can (which can be difficult when your job might involve staring and a screen)
  6. Lucky. This is why I want to know if it's a common thing, or could be a problem. I like dried because it's cheaper, and I hate cans, but they are a pain to cook. I usually try to make a big batch and freeze most of it. But still, my gut. it is not pleased.
  7. Hi guys, Wondering how many of you have trouble with beans? I know they are one of the hardest foods to digest in general (hense the musical fruit), but for we with gastrointestinal problems, I wonder if our guts don't have to work a lot harder? In any case, since beans are good for you, I want to add more to my diet, but consistently they tend to cause more grief than they're worth! If I make beans at home, I stick to black beans (my favs), soak them overnight, cook real well, try not to eat too many at once, but my gut is always complaining a couple hours later (pain! gas!), and it can leave me feeling drained by the time they've digested. I'm pretty sure I am not getting ccd (I do buy in bulk, but wash extremely well), so let's not treat this as a gluten problem. So, if you eat beans, do you have problems (beyond the expected gassyness)? Any cooking tips? (I heard soaking for 2 days! can help) Should Celiacs just not bother? FYI: I'm intolerant to soy and dairy as well, have problems digesting eggs, whole grains, etc (anything "hard" to digest). I take digestive enzymes which helps slightly, but I often wonder if this is all just par for the course, or if I'm having flare-ups of gastritis/leaky gut/whatever you want to call it. this comes up as I made a batch of black bean masala the other night, which turned out delicious, but isn't doing so well on the way through. Ugh. I just want to be able to eat more non-meat protein. Any advice/commiserating/bean jokes welcome. Peggy
  8. I eat Prana nuts and such a lot, and haven't had any problems in the gluten department. I was bummed that they switched the chocolate in some of their mixes from soy-free to not-so-soy-free, though
  9. I like gin AND raisins! Is it known to work just on joint pain, or for muscle pain/inflamation as well? Keep it up and hope it keeps working! I have bouts of neuropathy/mild joint pain, and arthritis definitely runs in my family so I think I have that to look forward to. Don't sell your shop!!
  10. Yes, we drove around for 5 days. They drive on the right side. The paved roads and signage are really good, especially since you go up and around mountains all over the place. The dirt roads are trickier, especially when there's a cliff down to the ocean on one side, a blind hill in front of you, sheep on the side of the road, and so much spectacular scenery that you don't know where to look. No off-roads unless you have a 4x4 though. The (gluteny) bread looked fantastic, and reports from my man is that it was equally delicious (jealous). Didn't see any of this flat-bread you speak of, but did pick up some nice corn "flatbread" crackers for the road. All I can say is GO! Even if you just hang out in Reykjavik and go on a couple day tours. GO!
  11. Hey all, I just got back from 10 wonderful days in Iceland, and thought I should report back on the gluten-free food situation. Overall: pretty great! Staple foods in iceland is fish, fish, lamb, more fish, potatoes and veg. Mostly grilled, not a lot of deep-fried stuff. Bread tends to be served with meals, but usually on the side. Gluten-free knowledge: everyone speaks English, so communicating isn't difficult, and most good restaurants know what you mean when you say "gluten-free". Reykjavik is probably the best, but we found great places in Akureyri and the middle of nowhere Westfjords too. So, a few reccomendations: (keep in mind I can't do dairy or soy either, and my man is a strict vegetarian, so we mostly stuck to veg-friendly places) Self-catering: Bring what you can with you, if possible. You will be able to find gluten-free pasta, etc, but it will likely be twice as much. Unless you're lucky enough to be passing by Silva, then baked goods are probably going to be a rare treat. I saw corn/rice crackers a few places. For fresh things, produce is slim pickings, and also quite pricey since much of it has to be shipped in. Smoked and cured salmon can be found packaged and ready to eat. Avoid things that have to be frozen (I brought ice packs for my cooler, but didn't find a freezer to put them in), though if it's cold out you can just put it outside and it'll chill pretty fast. Bonus is the "discount" grocery store, some of which have gluten-free stuff but not all. Netto is more well stocked, and more expensive, but more produce and gluten-free stuff available. Here's a really great "food buying guide" Reykjavik Glo - fantastic mostly-vegetarian restaurant downtown. They have a few locations in the Reykjavik area. Cafeteria style, where you pick a main, and can have 3 salads. All their salads are gluten-free (no CC worries), and mains are labeled as gluten-free, vegetarian, and vegan. Oh, and great gluten-free crackers. We ate there twice, and the food is fantastic. Pretty cheap for Iceland, too. Sea Baron - little fish place down on the harbour, where you pick a skewer of fish and they grill it up for you. Just tell them you're gluten-free. Kol - this was the nice shmancy place we went to, a more modern take on Icelandic food (without the touristy whale gimmicks). We were tremendously underdressed and lucky to get a table. Gluten free was no problem, and they were able to switch out the buttery potatoes for another veg. Best lamb I'd had in... ever? Reykjavik Chips - French (or Belgian) Fries. Just fries. Nothing else in the fry fryer but fries. Pick a mayo-based sauce. So good! it's a little takeout place packed mostly with students looking for a (relatively) cheap snack and a beer. Akureyri - for Iceland's 2nd largerst "city", it's pretty small, and plan ahead if you're there on a Sunday, but they've got some good stuff: Silva - about a 15min drive south of town, this place not only serves fantastic vegetarian and gluten free food, there's also a spectacular view of the valley. We ate here twice! Had the flat-bread "pizza" one night, and soup the other, but the real draw is the excellent gluten-free crackers, and fresh gluten-free bread! So good! I would have bought a loaf if we weren't travelling. In town, if you don't have a strict non-meat-eater in tow, then the place to go is Rub 23, which is known as one of the best restaruants in town and in the country. They do sushi (I got some takeout. it was pretty good), as well as various meat and fish with your choice of rub. I didn't get to have the full experience here, but their gluten-free reputation is pretty good. On the main floor of the Kea Hotel, Mulaberg Bistro also looked promising in the gluten-free department (their soup, first thing on the menu, was listed and Gluten and Dairy free), though we didn't eat there it was probably where we would have gone for a more upscale dinner. Westfjords - if you're brave enough to risk the crazy driving, it's worth it. Isafjordur - we planned to have dinner at Tjorhusid, known as the best place in town and one of the best fish places in the country. I'd emailed them to check on their gluten-free capabilities (possibility of CC from the skillets they use, but they can do the fish without flour), but we didn't make a reservation so arrived to find outselves out of luck. Very unique place down on the harbour, long communal tables, smelled fantastic, but not this time. Heydalur - instead, we had dinner at the country hotel we were staying at. Delicious! In the morning, they even made me gluten-free pancakes for breakfast, which I couldn only eat one of because they were so filling! Very gluten-free conscious, and vegetarian/vegan friendly too. We also stayed in Stykkisholmur, which has a handful of nice restaurants, though the meal we ended up having was mediocre and dissappointing in comparison to the rest of the trip (go to Narfeyrarstofa for drinks, but the food does not live up to the pricetag) Drinking! is expensive, so choose your booze wisely. You can get wine and spirits from all over, but if you're looking for local, try the liquers (sweet but not too sweet) and schnapps from Reykjavik 64, be brave and have a shot of brennavin (carraway-flavoured schnapps, strong stuff but not as bad as it's "black death" reputation), or enjoy some really good local gin (try the barrell-aged, a bit of a golden colour). There's also local vodka, if that's your thing. I saw gluten-free beer at a grand-total of 1 bar, but it was gluten-removed, so no luck there. Everything is pricey, but they take presentation very seriously, so you'll get your precious cocktail or shot of gin in a lovely glass. Coffee! It's taken quite seriously on the Island, and even machine-espresso isn't that bad. Reykjavik Roasters is the place to go in the city (they also have very nice nut bars as a gluten-free treat!). Some of the best coffee I've had, perfectly fine black if you can't have soy milk. (I saw almond milk at the grocery store, but no cafes had it). Te and Kaffi is the Starbucks substitute, available all over the country and pretty good. Anywhere with an espresso machine will make you a good cup of coffee. So, that is my 10 kronor on Iceland. We were on the road much of the time, so I was snacking a lot for lunches, and only self-catered for a couple days. Overall, stick with fish and grilled lamb and you should have no problem. For vegetarians, things might be a bit tougher. There seemed to be a lot of "nut loaf" rather than tofu, but I'm not sure how many of those are gluten-free or not. Soup is another good option - fish soup if you can do dairy, meat soup in broth if you can't. As far as I can tell, no glutening. Probably a bit more butter in a few things than I should have had. Plan ahead and contact restaurants/hotels in advance if you you have questions, but there's nothing to stop a Celiac from eating perfectly well. Have you been to iceland? Add your suggestions! Cheers! Peg
  12. The very idea that you can "breed" the gluten out of barley is pretty incredible. Indeed, if the testing is correct, 5ppm is ok for most Celiacs (though not me). Good on em! As long as it's marketed as still containing trace amounts. I, however, am one of those people who can't handle the mysterious "gluten removed" beers, and though a beer brewed with this low-gluten barley would probably have less PPM, I probably still wouldn't touch it. There are quite a few good completely gluten-free beers out there now. Still, Science! It's great there are people out there working on these problems.
  13. Hey guys, so, if you get the "updates" from, you'll have seen some thing about a german beer being brewed with gluten-free barley. At first I figured it was just another "gluten removed" scheme, but: WHAT? Gluten-free barley?? Isn't that impossible? Barley contains gluten, right? Is there some kind of genetically modified barley out there? Has it actually been tested? Does anyone know anything about this? I want to see some science. If it's true, and it's safe (for celiacs. I'm not going to get into a GMO safety debate), then that's fantastic. But i'm highly skeptical. Any insight on this? Would be good to get the whole picture before anyone starts thinking barley is safe or some such craziness. Thanks! Peg
  14. Bartful is right, you have to take charge of your own decisions and your own health. However, if you and your man are going to be able to coexist in the long term, he has to support your need to have a safe home. so: take over the kitchen. Clean it from top to bottom (make your man help out too), make a separate area for gluteny foods where they won't get in your way. Buy a new toaster, get separate pans and things, or switch to stainless steel. Make sure to label jars of stuff that could be cross-contaminated. Try to get him to eat gluten-free stuff rather than the other way around. Make gluten the "special" food, and yours just normal food. Eat more whole foods (veg, meat, etc) that don't have any flour anyway. Find a gluten-free treat you both like. Oh, and don't forget teeth-brushing before kisses. If he can't handle that, then it ain't going to work out. Your health is more important!
  15. I know exactly what you're going through. the dizziness might be slight gluten ataxia (I get it mildly too), but anxiety and panic can definitely be a symptom. For me it hits a few days later: anxious, panicky, and depressed, and then more anxious and depressed because you feel like crud because of the anxiety and on it goes in a horrible spiral.... It sucks! first thing's first: be as strict with your diet as you can possibly be. there's no reason you can't pursue your career dreams, but it will require a lot of planning, making sure you are able to make or access safe food, etc. Getting gluten out of my life (and soy, which also sets off my anxiety) made my anxiety 85% better... I say that because it is possible that it's not just the gluten causing the anxiety and if it's really bad, you should talk to a professional psychologist/psychiatrist about it. Even if it's only gluten that sets it off, learning some skills to cope with the anxiety could be a huge help. (I'm going through cognitive behavioural therapy treatment right now, to help with this very problem. It's supposed to help retrain your brain and body not to freak out about the syptoms of panic. So far so good, even just breathing properly helps) Anyway, breathe! The anxiety will pass. Celiac sucks. Getting glutened sucks, but it always feels worse and more insurmountable when you're in the thick of it. We're here for all your venting and advice-seeking needs