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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store.


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About Pegleg84

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  1. I eat Prana nuts and such a lot, and haven't had any problems in the gluten department. I was bummed that they switched the chocolate in some of their mixes from soy-free to not-so-soy-free, though
  2. Unbelievable!

    I like gin AND raisins! Is it known to work just on joint pain, or for muscle pain/inflamation as well? Keep it up and hope it keeps working! I have bouts of neuropathy/mild joint pain, and arthritis definitely runs in my family so I think I have that to look forward to. Don't sell your shop!!
  3. Gluten-Free In Iceland

    Yes, we drove around for 5 days. They drive on the right side. The paved roads and signage are really good, especially since you go up and around mountains all over the place. The dirt roads are trickier, especially when there's a cliff down to the ocean on one side, a blind hill in front of you, sheep on the side of the road, and so much spectacular scenery that you don't know where to look. No off-roads unless you have a 4x4 though.   The (gluteny) bread looked fantastic, and reports from my man is that it was equally delicious (jealous). Didn't see any of this flat-bread you speak of, but did pick up some nice corn "flatbread" crackers for the road.   All I can say is GO! Even if you just hang out in Reykjavik and go on a couple day tours. GO!
  4. Gluten-Free In Iceland

    Hey all,   I just got back from 10 wonderful days in Iceland, and thought I should report back on the gluten-free food situation.   Overall: pretty great! Staple foods in iceland is fish, fish, lamb, more fish, potatoes and veg. Mostly grilled, not a lot of deep-fried stuff. Bread tends to be served with meals, but usually on the side.   Gluten-free knowledge: everyone speaks English, so communicating isn't difficult, and most good restaurants know what you mean when you say "gluten-free". Reykjavik is probably the best, but we found great places in Akureyri and the middle of nowhere Westfjords too.   So, a few reccomendations: (keep in mind I can't do dairy or soy either, and my man is a strict vegetarian, so we mostly stuck to veg-friendly places)   Self-catering: Bring what you can with you, if possible. You will be able to find gluten-free pasta, etc, but it will likely be twice as much. Unless you're lucky enough to be passing by Silva, then baked goods are probably going to be a rare treat. I saw corn/rice crackers a few places. For fresh things, produce is slim pickings, and also quite pricey since much of it has to be shipped in. Smoked and cured salmon can be found packaged and ready to eat. Avoid things that have to be frozen (I brought ice packs for my cooler, but didn't find a freezer to put them in), though if it's cold out you can just put it outside and it'll chill pretty fast. Bonus is the "discount" grocery store, some of which have gluten-free stuff but not all. Netto is more well stocked, and more expensive, but more produce and gluten-free stuff available. Here's a really great "food buying guide"   Reykjavik Glo - fantastic mostly-vegetarian restaurant downtown. They have a few locations in the Reykjavik area. Cafeteria style, where you pick a main, and can have 3 salads. All their salads are gluten-free (no CC worries), and mains are labeled as gluten-free, vegetarian, and vegan. Oh, and great gluten-free crackers. We ate there twice, and the food is fantastic. Pretty cheap for Iceland, too.   Sea Baron - little fish place down on the harbour, where you pick a skewer of fish and they grill it up for you. Just tell them you're gluten-free.   Kol - this was the nice shmancy place we went to, a more modern take on Icelandic food (without the touristy whale gimmicks). We were tremendously underdressed and lucky to get a table. Gluten free was no problem, and they were able to switch out the buttery potatoes for another veg. Best lamb I'd had in... ever?   Reykjavik Chips - French (or Belgian) Fries. Just fries. Nothing else in the fry fryer but fries. Pick a mayo-based sauce. So good! it's a little takeout place packed mostly with students looking for a (relatively) cheap snack and a beer.     Akureyri - for Iceland's 2nd largerst "city", it's pretty small, and plan ahead if you're there on a Sunday, but they've got some good stuff:   Silva - about a 15min drive south of town, this place not only serves fantastic vegetarian and gluten free food, there's also a spectacular view of the valley. We ate here twice! Had the flat-bread "pizza" one night, and soup the other, but the real draw is the excellent gluten-free crackers, and fresh gluten-free bread! So good! I would have bought a loaf if we weren't travelling.   In town, if you don't have a strict non-meat-eater in tow, then the place to go is Rub 23, which is known as one of the best restaruants in town and in the country. They do sushi (I got some takeout. it was pretty good), as well as various meat and fish with your choice of rub. I didn't get to have the full experience here, but their gluten-free reputation is pretty good.    On the main floor of the Kea Hotel, Mulaberg Bistro also looked promising in the gluten-free department (their soup, first thing on the menu, was listed and Gluten and Dairy free), though we didn't eat there it was probably where we would have gone for a more upscale dinner.     Westfjords - if you're brave enough to risk the crazy driving, it's worth it.   Isafjordur - we planned to have dinner at Tjorhusid, known as the best place in town and one of the best fish places in the country. I'd emailed them to check on their gluten-free capabilities (possibility of CC from the skillets they use, but they can do the fish without flour), but we didn't make a reservation so arrived to find outselves out of luck. Very unique place down on the harbour, long communal tables, smelled fantastic, but not this time.   Heydalur - instead, we had dinner at the country hotel we were staying at. Delicious! In the morning, they even made me gluten-free pancakes for breakfast, which I couldn only eat one of because they were so filling! Very gluten-free conscious, and vegetarian/vegan friendly too.     We also stayed in Stykkisholmur, which has a handful of nice restaurants, though the meal we ended up having was mediocre and dissappointing in comparison to the rest of the trip (go to Narfeyrarstofa for drinks, but the food does not live up to the pricetag)   Drinking! is expensive, so choose your booze wisely. You can get wine and spirits from all over, but if you're looking for local, try the liquers (sweet but not too sweet) and schnapps from Reykjavik 64, be brave and have a shot of brennavin (carraway-flavoured schnapps, strong stuff but not as bad as it's "black death" reputation), or enjoy some really good local gin (try the barrell-aged, a bit of a golden colour). There's also local vodka, if that's your thing. I saw gluten-free beer at a grand-total of 1 bar, but it was gluten-removed, so no luck there. Everything is pricey, but they take presentation very seriously, so you'll get your precious cocktail or shot of gin in a lovely glass.   Coffee! It's taken quite seriously on the Island, and even machine-espresso isn't that bad. Reykjavik Roasters is the place to go in the city (they also have very nice nut bars as a gluten-free treat!). Some of the best coffee I've had, perfectly fine black if you can't have soy milk. (I saw almond milk at the grocery store, but no cafes had it). Te and Kaffi is the Starbucks substitute, available all over the country and pretty good. Anywhere with an espresso machine will make you a good cup of coffee.       So, that is my 10 kronor on Iceland. We were on the road much of the time, so I was snacking a lot for lunches, and only self-catered for a couple days. Overall, stick with fish and grilled lamb and you should have no problem. For vegetarians, things might be a bit tougher. There seemed to be a lot of "nut loaf" rather than tofu, but I'm not sure how many of those are gluten-free or not. Soup is another good option - fish soup if you can do dairy, meat soup in broth if you can't.   As far as I can tell, no glutening. Probably a bit more butter in a few things than I should have had. Plan ahead and contact restaurants/hotels in advance if you you have questions, but there's nothing to stop a Celiac from eating perfectly well.   Have you been to iceland? Add your suggestions!   Cheers! Peg            
  5. The very idea that you can "breed" the gluten out of barley is pretty incredible. Indeed, if the testing is correct, 5ppm is ok for most Celiacs (though not me). Good on em! As long as it's marketed as still containing trace amounts.   I, however, am one of those people who can't handle the mysterious "gluten removed" beers, and though a beer brewed with this low-gluten barley would probably have less PPM, I probably still wouldn't touch it. There are quite a few good completely gluten-free beers out there now.   Still, Science! It's great there are people out there working on these problems.
  6. Hey guys,   so, if you get the "updates" from, you'll have seen some thing about a german beer being brewed with gluten-free barley. At first I figured it was just another "gluten removed" scheme, but: WHAT? Gluten-free barley?? Isn't that impossible? Barley contains gluten, right? Is there some kind of genetically modified barley out there? Has it actually been tested? Does anyone know anything about this? I want to see some science. If it's true, and it's safe (for celiacs. I'm not going to get into a GMO safety debate), then that's fantastic. But i'm highly skeptical.   Any insight on this? Would be good to get the whole picture before anyone starts thinking barley is safe or some such craziness.   Thanks! Peg
  7. Advice Please

    Bartful is right, you have to take charge of your own decisions and your own health. However, if you and your man are going to be able to coexist in the long term, he has to support your need to have a safe home.   so: take over the kitchen. Clean it from top to bottom (make your man help out too), make a separate area for gluteny foods where they won't get in your way. Buy a new toaster, get separate pans and things, or switch to stainless steel. Make sure to label jars of stuff that could be cross-contaminated. Try to get him to eat gluten-free stuff rather than the other way around. Make gluten the "special" food, and yours just normal food. Eat more whole foods (veg, meat, etc) that don't have any flour anyway. Find a gluten-free treat you both like. Oh, and don't forget teeth-brushing before kisses. If he can't handle that, then it ain't going to work out. Your health is more important!
  8. I know exactly what you're going through.   the dizziness might be slight gluten ataxia (I get it mildly too), but anxiety and panic can definitely be a symptom. For me it hits a few days later: anxious, panicky, and depressed, and then more anxious and depressed because you feel like crud because of the anxiety and on it goes in a horrible spiral.... It sucks!   first thing's first: be as strict with your diet as you can possibly be. there's no reason you can't pursue your career dreams, but it will require a lot of planning, making sure you are able to make or access safe food, etc.   Getting gluten out of my life (and soy, which also sets off my anxiety) made my anxiety 85% better... I say that because it is possible that it's not just the gluten causing the anxiety and if it's really bad, you should talk to a professional psychologist/psychiatrist about it. Even if it's only gluten that sets it off, learning some skills to cope with the anxiety could be a huge help. (I'm going through cognitive behavioural therapy treatment right now, to help with this very problem. It's supposed to help retrain your brain and body not to freak out about the syptoms of panic. So far so good, even just breathing properly helps)   Anyway, breathe! The anxiety will pass. Celiac sucks. Getting glutened sucks, but it always feels worse and more insurmountable when you're in the thick of it. We're here for all your venting and advice-seeking needs
  9. oh man, I'm excited about this one.   I saw these at the store today. Peanut butter and oat cluster things. But there was no indicating whether the oats were certified gluten-free or not, so I did my due diligence and contacted the company. Heard back super quick, and:   "The only Earth Balance product that contains oats is our PB Popps and the whole grain oats in this product are gluten free certified."   Woot! Has anyone tried these yet? I will report back. It's tricky to find tasty gluten-free/SF/DF snacks, so these things could be dangerous (as in I will eat way too many of them). Earth Balance soy-free spread is my butter substitute, and their PB is pretty good too.   Cheers Peg
  10. I also have trouble with anxiety, which was much worse before I went gluten free, but is still something I have to deal with 6 years on.   A few possibilities: - as others said, you might need to be much more strict with your diet. Go through your kitchen and throw-out/replace anything that could be contaminated. Try cooking for yourself for a month to see if that makes a difference. cross-contamination might not do much once, but if you're eating out frequently then you could be getting hit more than your gut can handle. It's hard, but a full cleaning out can really make a difference. - you could have another intolerance. I've had to cut out dairy and soy. Soy especially gets my anxiety symptoms going. You could try cutting one or both out for a few weeks and see if that makes a difference. Maybe it's something else? Try keeping a food diary and seeing if anything sets your anxiety off. - the third, and maybe more difficult to face, is that you might have an anxiety disorder that might be affected by gluten, but isn't going to get better with diet alone. Talk to your doctor, or see a psychiatist about whether therapy and/or medication might be right for you. Honestly, it took me a long time to accept that my anxiety was more than just my gut being unhappy. There's help out there.   Anyway, it can be a lot of work to get it all figured out, but it's worth it in the long run. Good luck!
  11. Welcome to the club! Orange juice, if straight from a sealed bottle, is highly unlikely to have gluten or soy, but it can irritate your stomach because of the acidity. 6 years in I still have trouble drinking too much orange juice because of the acidity (I get gastritis on occassion and acidic things are no help). Great to hear your feeling a difference on such a short time gluten-free (I was the same), but be aure to treat your stomach very gently for the first while. It's going to take some time to heal, but if you know what to do from the beginning, it will be much easier.   Good luck!
  12. Hand Tremors

    My Mom has an essential tremor (it's a thing. look it up), which is hereditary and gets worse with age. I'm not sure if it's directly related, but Mom has Celiac and thyroid problems. She says it does get worse when she's tired/stressed. I can probably look forward to it in 20 years.
  13. I had horrible nails prior to going gluten-free. That was one of the big signs that I was healing: my nails got stronger. Now, if my nails start getting weak again, it's a sign something is amiss in my diet. If you've just started the diet, I'd give it a few more months before you start seeing a real difference. However, a full thyroid panel is not a bad idea.
  14. Sorry to jump in, but I've been doing kind of the same thing at work. Get some thin, easy to soak rice noodles (this might take some time to figure out at home first. Sit them in some hot or boiling water and see how well/quickly they soften up), you can break them up into smaller bunches if you want, zippie bags, whatever, and soak in hot (as you can find) water in a mug or whatever. For seasoning, maybe a powdered broth of some sort, mix in extra spices. Get some dehydrated veggies if you can. I just soaked noodles and steamed broccoli in some hot water from the kettle here at work, so no reason why it wouldn't work on the go. A good insulated mug/themos would be a great thing to have on you.   Additional thought: If you had an insulated mug, you could actually put the noodles, seasonings, and even some fresh veg in there, seal it up, and then when you're ready fill it up with "boiling" water, shake it up good, and let it sit for 10-15 min or so. Tahdaaaa...   I haven't skied in years. Let me know if you figure out the portable microwave.   Peg
  15. Had my ultrasound today. Won't get results for at least a week, but from the horrid pain I had on my left side during the scan, I'll be surprised if something's not up with my kidney. Did anyone else have really bad tenderness in your side/back when dealing with stones, even when it's not super painful? The pain has been coming and going, but is still in the same spot. No sign of anything "passing" or moving.