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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About purpleflowers

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  1. ohhhh silly me did I? its my slowww computer I guess because i sure didnt actually post 3 xs
  2. Not sure why my previous post was deleted but here it is again any one else's opinion on this would be great ok i found my results for the western blot test. It first gives this key thing on how to read it I guess ****PRESENCE OF ONLY ONE DOUBLE STARRED BAND OR INDETERMINATE DOUBLE STARRED BANDS IN A NEGATIVE REPORT MAY INDICATE CLINICAL SIGNIFICANCE It says Band Intensity: NEGATIVE (-) No visible band present INDETERMINATE: (IND) BAND PRESENT WITH INTENSITY < WEAK (1+) POSITIVE CONTROL POSITIVE (1+ to 4+) BAND PRESENT AT AN INTENSITY >/= WEAK (1+) POSITIVE CONTROL My results are as follows: ( I will only list the bands that have things near them IGM RESULT **23-25kda says INDETERMINATE **31kda says - **34kda says - **39kda says INDETERMINATE **41 kda says ++++ 45 - 58 - 66 - 73- **83-93 says - PAGE 2 SAYS IGG RESULT 18 - 22 - **23-25 = - 28 = - 30 = - **31= - **34= - **39=INDETERMINATE 45 - 58 - 66 - 73 - **83-93 = - Thank You so much for helping me
  3. does make sense i guess. I should stop worrying if he's irritated or not.Im nervous and dont want to take anymore medicine...but I need a diagnosis,its been too many years unwell. as far as the test, sometime it is not always clear (and there have been people that have had lyme and the test gave negatives) so he is trying me on a trial of antibiotics for it
  4. thanks for the responses. Emilushka: I dont have any rashes or difficulty breathing.I know thats serious.I was just worried he is neglecting an allergic reaction. I woulnt doubt Im sensitive to the antibiotic.I seem sensitive to alot. The previous poster said they seen something too about 5htp shouldnt be used with antibiotics and definately not Benadryl. I will go to the site you posted I know he is the on call Dr tonight and I might just find a reason to speak to call that god forsaken "emergency only" line just so I can talk to him personally.Other than that he dont talk to patients Dr until the next visit.The nurses relay his messages
  5. ughhhh!!!! seems I a going crazy with frustration! I have been on amoxicillin ( large amounts( for 5 days now) for possible LYME ( he is trying to give me a trial of antibiotics to see how and if I respond However I sent him a message last night letting him know I get this weird itchy feeling on my body ( anywhere and everywhere on my skin) randomly.I told him it kinda feels like something is there (crawly) and I asked him if this is normal? I am a little scared of it being a mild reaction and that it will turn intoa big one. I havent taken antibiotics in several years and I let him know this did NOT start til I started this antibiotic. He had his nurse call me back and leave me a message on the VM to take BENADRYL with it and if it gets worse (seek medical attention at the ER) He is 2 hrs away from me. I feel a lot right now.Is he cold about this? I feel that way. I feel its kinda like hes saying : " maybe it is a reaction who knows just take Benadryl to counteract it....and well if it gets worse hopefully they will help you in the ER) Benadryl too? He an MD AND ND why BENADRYL? Also I am taking 5htp for sleep and Depression.I read you shouldnt take that with antiobiotics???? Im not sure if I am legitamatly doubting him or not
  6. The Lyme Disease Thread

    so maybe this is why he is trying me on a course of antibiotics? I got frustrated and said to him...." do I have Lyme or dont I?" because you can tell he wasnt sure for sure. He knows I am fed up and get frustrated easily so he just quietly said " here is a script for some antibiotics, just take them and see me in a month" its only been 5 days of it and I feel it wiping me out.I hate antibiotics and I am very against them, but I am trusting him and doing what is needed to diagnose me. I didnt tolerate the Doxy at all.Puked it all up in the first dose,so he had to change it. Did your daughter have a worsening of symptoms at first in the beginning of the antibiotic treatment? then responded positive? Thank You
  7. The Lyme Disease Thread

    ok i found my results for the western blot test. It first gives this key thing on how to read it I guess ****PRESENCE OF ONLY ONE DOUBLE STARRED BAND OR INDETERMINATE DOUBLE STARRED BANDS IN A NEGATIVE REPORT MAY INDICATE CLINICAL SIGNIFICANCE It says Band Intensity: NEGATIVE (-) No visible band present INDETERMINATE: (IND) BAND PRESENT WITH INTENSITY < WEAK (1+) POSITIVE CONTROL POSITIVE (1+ to 4+) BAND PRESENT AT AN INTENSITY >/= WEAK (1+) POSITIVE CONTROL My results are as follows: ( I will only list the bands that have things near them IGM RESULT **23-25kda says INDETERMINATE **31kda says - **34kda says - **39kda says INDETERMINATE **41 kda says ++++ 45 - 58 - 66 - 73- **83-93 says - PAGE 2 SAYS IGG RESULT 18 - 22 - **23-25 = - 28 = - 30 = - **31= - **34= - **39=INDETERMINATE 45 - 58 - 66 - 73 - **83-93 = - Thank You so much for helping me
  8. The Lyme Disease Thread

    I just finished reading some of your blog site. I just read that you went to germany for some treatment. Did your Dr in Ny get you better or did you get better from Germany? I probably could find the answer by re-reading your pages here on this forum and then the blog but it would be forever and my brain is pretty foggy these days and I wouldnt remember half of what I read. As far as disability....I couldnt even imagine getting it.I mean as far as my testing for celiac goes I did not recieve that golden standard for that diagnosis.So it wont count. Enterolabs told me that I have a gluten sensitivity. Still to this day i dont know if I really do or not. Reasons being are: I tried it for a few weeks 2 different times and felt no difference.#2 I read the whole Body Ecology Diet book about 20 times (to have it memorized) and (this diet was hard!) and after doing the diet for about 3 months I gave up. Then within 6 months or so I got worse again.It wasnt til I was done with the BED and 6 months of returning worsening symptoms coming on that I then began to realize there was some connection between the BED and my body. I feel that the part that i think was healing something in there was mostly the coconut kefir ( well thats what i use to make) and combing the food correctly but mostly the kefir. I didnt have joint pains at that time but had lots of other bad feelings (1 being bad Depression and insomnia) the other being severe Digestive issues ( I didnt digest abything) The depression GOT way worse and the insomnia got better and the Digestive issues were almost completely gone! But here it is 2 years later and lots of other symptoms r worse. I was also told by my Dr that I have adrenal fatigue and he has me on adrenal essence.I do not notice a thing. Other than that, adrenal issue is the only real diagnosis I have been given for sure by a test. My Dr ordered a test to help him determine if its Lyme and it was called CD57 and c4a I also had the western blot test done that revealed a negative by the labs standards. I dont have those in front of me right now but I have the others. I will post what the cd57 and c4a said and maybe if you know anything about them maybe you can tell me.c4a level was 3665 and it says the limit should be between 0-2830 then the other says CD8-CD57+ Lymphs is 34L I guess L is for low it then says it should be between 60-360 Thank you or anyone else who can answer these questions so I can make sure that Im on the correct track.It makes no sense to me and googling the test didnt help me either
  9. The Lyme Disease Thread

    I tried to send you a private message on here but it said you couldnt recieve messages so I had to post my message.(Sorry) yesss it was me that inquired about you. You have lots of good info and I haave lots of ???'s about Lyme.(well I wont scare you away.....its not lots but I do have some) I just started medicine for Lyme but have some concerns.I am scared to death as well because when yo feel like crap and dont really know what all is wring it can be overwhelming. I know I read about 5 pages of your old thread from 07 or 08 (not sure) and I thought WOW she has been through alot and to hear what you just wrote that you are are COMPLETELY WELL has made me feel some what inspired through these black days of depression and loneliness. I was even more excited when I found out that you fly in from Ohio to Ny to see your Dr and it sent bells off in my head.....(i thought omg does she have the same Dr that I have, Im in Ny and you referred to him as Dr (IT GAVE ME HOPE THAT I AM ON THE RIGHT TRACK ONCE AND FOR ALL WITH AN EXCELLENT DR THAT WILL KNOW WHAT TO DO TO GET ME BETTER) I then read on another page yo wrote something about Dr H and I became teribly disappointed again when I heard that ( because it cant possibly be my DR because ther is no Dr H in his practice. i know we arent suppose to talk about our Dr's on here but I dont know how else to do it.I guess I can be vague and hint that he is in Rhinebeck, NY. OH how I hope you tell me he was either your Dr or yo know he is good? I am so scared and I have been unwell for most of my life. I am now going to be 33 in NOV. I prayed I would get help and it never came all these years but have now someway somehow been led to this office. I do not work on top of it all. My husbacd is teh only one and we have 2 kids. I was recieving unemployment but that has run out and really I am not wll enough to go to work no matter how broke we are. I have to pay cash everytime I see him (he does not take Insurance. This is all I will write for now because I am writinf alot but if its easier to communicate with you at then let me know. I cant wait to talk more
  10. Finding A Members Profile

    Ohhhh did she! I am so excited. So my one inquiry about her really brought her back on?
  11. hello, I have recently been working with a Dr near where I live who deals with Lyme disease.I am newly diagnosed and came across someone on your site who I am very interested in contacting, ( she has been through the lyme thing) she has a lot of knowledge and really need to speak with her.The only problem is that when I click on her site it says she was last seen or logged in or something like that (back in 07 or maybe o8) Her name on here is CarlaB (the lyme thread) can you please tell me how I can reach her on here if maybe she changed her profile or even if indeed she is no longer on this forum. PLEASE let me know, I am desperate
  12. yes I remember reading that you had the issue then after no flour/sugar for 2 months or 3 then you could tolerate more. That is exactly what happened to me 2 years ago as I posted when I was trying a diet that focuses on healing the gut and candida issues.I really didnt know much about leaky gut at all at the time.....I was trying this diet for the candida issues that I dont know for sure if I have or had but believe I do.Logterm use of antibiotics as child and adult. However, amazingly, I too went on a major binge.I was eating whatever for a long while BUT within 6 months was a wreck again. I had fun that summer eating whatever. As I was saying my new Dr who I payed big bucks to see said so far ( well he doesnt know me well enough yet) BUt that I have leaky gut issues and adrenal issues.Im trying to keep a notebook of what I am eating because I fell off the wagon again but have been dairy free and gluten free for about 3 weeks and is has been hell.Having severe abdominal pains,cant hold anything down for 48 hrs, but the gas pains and stabbing started about 10 days ago so something in the diet is wrong.I havent excluded sugar yet like he said I need time.I barely eat now because I dont know what I will tolerate so to do sugar on top of it all right now....I gotta wait. I have some other crap that Im finding out now too with my mainstream Dr.....I use them just for testing purposes( some tests that are accurate) insurance pays for that part.....i pay the big bills with the naturopath How did your candida results go? you said you would get them back within 2 weeks?
  13. thanks ....might try it when my stomache straigtens up
  14. yeah I know but was looking for some normalcy (if thats how its spelled) Depressed.....want some comforting food the kind the rest of the world seems to be having........BITTER