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This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
WatercolorMist added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsIs Biopsy Worth The Trouble At This Point?Hi, I'm new to this forum. I am a cervical cancer survivor with a history of radiation proctitis and ulcerative colitis. I have a brother positively diagnosed with celiac. I have been on the specific carbohydrate diet (SCD) for a year to cure the colitis. The proctitis is more difficult to manage but doing well nevertheless.
As part of the SCD I was naturally gluten-free and continue to be gluten-free for a total of at least 18 months now with good results. I tried having some wheat after a year on the SCD but quickly went back gluten-free.
The SCD claims to cure celiac in some after strict adherence for a year. I don't know what to do now other than go back on gluten and have a biopsy. With my damaged rectum (from the proctitis and attendant scars on the rectum from radiation treatment for the cancer) I am concerned that I will not be able to tolerate going back on gluten for an extended period of time.
I'm seeing a rheumatologist who is interested in helping me with the celiac. I have radiation burns to my pelvis which resulted in osteoporosis. I have medical insurance and a well meaning rheumatologist.
I scored 66 on a tissue transglutaminase Ab, IgA blood test. But I was already off gluten 3 months or more. Is having a biopsy worth the trouble at this point?
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