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WatercolorMist added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsIs Biopsy Worth The Trouble At This Point?Hi, I'm new to this forum. I am a cervical cancer survivor with a history of radiation proctitis and ulcerative colitis. I have a brother positively diagnosed with celiac. I have been on the specific carbohydrate diet (SCD) for a year to cure the colitis. The proctitis is more difficult to manage but doing well nevertheless.
As part of the SCD I was naturally gluten-free and continue to be gluten-free for a total of at least 18 months now with good results. I tried having some wheat after a year on the SCD but quickly went back gluten-free.
The SCD claims to cure celiac in some after strict adherence for a year. I don't know what to do now other than go back on gluten and have a biopsy. With my damaged rectum (from the proctitis and attendant scars on the rectum from radiation treatment for the cancer) I am concerned that I will not be able to tolerate going back on gluten for an extended period of time.
I'm seeing a rheumatologist who is interested in helping me with the celiac. I have radiation burns to my pelvis which resulted in osteoporosis. I have medical insurance and a well meaning rheumatologist.
I scored 66 on a tissue transglutaminase Ab, IgA blood test. But I was already off gluten 3 months or more. Is having a biopsy worth the trouble at this point?
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