This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
Boy, I haven't been here in a long time! I lived here when I was first diagnosed. So here's the thing...... it seems really sudden but as you get well things will go away that you had gotten used to or had attributed to other things. You attribute much to your weight that could be celiacs. Your weight itself could be celiacs. Those allergy headaches, those sore feet, the pain in your lower back.......
I was over eating because I wasn't absorbing nutrition. I was always hungry.
I had allergy headaches because I was eating things I was allergic to and because I was low on vitamin D.
I had pains in my feet because I was low in magnesium and had started developing neuropathy.
I was having pains in my lower back (mild cramping) because I was eating dairy which I found I am also allergic to.
There's more but the reason I stopped coming here was because I got tired of hearing myself whine LOL and needed to get on with feeling better.
So soak up all the knowledge, start feeling better!
That was my first thought also. The doc didn't seem to think so (until it hits 100). I think he should wear clothes pins on his nipples until he agrees it's time to treat. That way we can share the pain!
And he should eat nothing but chicken breast, green beans and organic spring mix, get lots of sleep, do yoga, work 45 hours a week and run a household full of teenagers and pets. You know just so the clothes pins can be on his last nerve like mine!
Thanks for your reply. I'll call the doctor's office and see if I can talk them into it.
It's been awhile since I've been here so I'm hoping you will excuse my absence and answer my question anyhow.
Around about Dec. I started having heavy periods, breast pain, swelling, hard nipples that itch intensely. I googled and decided it was perimenopause. I'm 44. Tried wild yam root. Bled for four weeks stright. No more wild yam root for me.
Finally went to my sister's gyno and had lots of tests. Everything normal except my prolactin was too high (59). The doc said I probably have a tumor but at any rate they don't treat unless it hits 100.
Googled again and found that high prolactin in celiacs is indicative of active desease so I am being extremely careful with my diet. My last period was almost normal and the swelling has gone down but the pain and itching continues.
Anyone been through this? What can I do to make it stop? If it's just diet how long will I have to limit myself to my "safe diet" before I should be seeing some relief?
Thank you for taking the time to read my post.
PS not sure if this is related but I am also fighting yeast AGAIN! taking acidolphilus pearls
I always assumed it was the same hormones that tell your body to empty before going into labor. I have the opposite problem, I tend not to go the week before and have to be diligent about my diet (no corn, cereal ect.) that week. So right when I'm carbo craving I have to cut back or use laxatives.
They have some good ideas. I liked "make a menu" and "cook like grandma". Grandma has been making gluten free potato soup for the kids. That sounds wonderful right now. Think I'll call and ask for her recipe.
I drive past a Sav-a-lot on my way home from work. I've avoided it because the floors are always dirty and there are no bags but I guess I'll have to give it another shot. My neighbor used to take me to the Kroger an hour from here when my kids were little. It's an old store where people who have lived there for generations shop. I haven't been there in years. I'll have to give it another look also. Wonder what my neighbor is doing tomorrow?
My friend fell and won't be able to go back to work for awhile. Not sure he'll have a job when he is able too. No insurance. This whole year has sucked. We have been doing the rice and cheese but it makes me dizzy so I think my sugar is off. The extended family has been bringing venison over. It's still bow season here. Yesterday I started looking for recipes for wild boar LOL cause they keep talking about those on the news.
So I'm off to the store to by beans, hmmm beans and venison soup, better get an onion (and matches for the scented candle!).
I'm looking for ideas on how to be gluten free on a budget. And I'm serious guys there isn't any money to send away for cases to save money per box. If I had hundreds to spend I wouldn't be asking. We use to eat macaroni, ramen noodles and kool aid when money got tight. Now what do we do?
Loving this thread LOL. For me the gas is the worst. I cleared out an entire video game store with one fart! It was silent, but all the customers left and the clerk stepped back from the counter as I walked up. My son's face was so red but he really wanted that game. I will never eat gluten intentionally!
Our journey started with a fellow celiac noticing the itchy bumps on my elbows.
I was diagnosed by my immunologist. He said the reactions were so obvious he didn't need to test me.
My son's blood work came back negative, three times, because we didn't know his meds have an antihistamine property. Now we know. He was diagnosed by two doctors even with the negative blood test and no biopsy because the rest of his symptoms were so obvious.
My daughter has not been tested and is not interested in testing or getting the migrains that come with eating gluten.
My younger son's girlfriend was diagnosed by a specialist her Mom took her to for repeated urinary tract and bladder inflammation.
The girls are not having mental health issues beyond normal teenage PMS.
I agree the age at the time of onset would affect height. I'm 5'6", the tallest woman in my family. Didn't get sick until over age 30. My kids had weird allergies and stuff from early on. The boys are just over 6' and the girls are still growing but much shorter than I am.
I've posted this info here before but for those who are new..... My now 19 yr old son was diagnosed as bi-polar and celiac after attemping to end his life by crashing his car. He has gone back and forth from eating gluten and hearing voices to being gluten free and totally down to earth and peaceful. Lots of meds have been tried. The ones that work for him are basically benedryl and a mood stabalizer mixed together. He is currently med free after a period of weening down. He has to report to the prison nurse twice a day, the psychologist once a week and the psychiatrist once a month. He keeps benedryl in his cell to help regulate his reations. He is not able to be completely gluten free as being on a special diet makes an inmate a target for unwanted attention. He does what he can with what is served in the chow hall and what he can buy from the prison store. This was his first and only offense, committed when he was 17, his sentence is 29 months to 10 years. He has served 13 months.
He will be fine, we are dealing with it. I am sharing this information because it's important to know how serious the consequences of untreated celiacs and the resulting mental illness can be.
I'm not a good cook so I just buy my bread at Meijers while I'm there getting my gluten free waffles. I like the flax seed one they have in the frozen food section. And then I get to look for new shoes
Because you are a caretaker for so many others, I think that learning about being gluten free is a really good idea. If you are caring for 80 girls chances are that at least one of them needs to be gluten free and that if she gets sick you will be called on to make it less uncomfortable for her.