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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store.


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About GottaSki

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    "The past is the past...I've got places to be."
  • Birthday May 17

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  • Gender Female
  • Interests Skiing, Biking, Hiking, Walking, Kayaking, Reading, Baking, Cooking, Sewing along with researching every flipping medical publication to figure out my ridiculously complicated health puzzle...think I may be getting close to putting the last piece on the table ;)
  • Location San Diego

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  1. tTG-IgA (Tissue Transglutaminase) tTG-IgG DGP-IgA (Deamidated Gliadin Peptide) DGP-IgG EMA-IgA (Edomysial antibodies) Most folks are back in normal range after a year....if completely gluten free. Folks that remain positive either started off with extremely high positives or are not completely gluten free. Compare results to original antibody levels. If you don't know them, as for a written copy from your doctors. As mentioned, it is a very good idea to check that nutrient levels are all good
  2. The celiac antibody tests are IgA and IgG based. With deficient total serum IgA, the IgA based celiac antibody tests are not valid and make the IgG tests that much more important. Another important item you mention was deficient Vitamin D...celiac disease prevents proper absorption of many nutrients. It takes a doctor that understands the combination of symptoms, nutritional deficiencies and proper celiac antibody testing to diagnose celiac disease in many cases. I agree with the diagnosis, but highly suggest further nutrient testing as many need to supplement until the digestive system has a chance to heal and begin to properly absorb nutrients. All that said...if you are not comfortable with the diagnosis, I suggest you seek out a gastroenterologist with celiac experience to discuss the possibility of further testing. Undiagnosed celiac disease can cause all of the symptoms known as others have mentioned, it can take time for these symptoms to improve. The complete removal of gluten is not an easy transition, but once you are past the learning curve it becomes much easier to live gluten-free.. Do read the newbie thread others have linked to. If you are thinking of consulting with not remove gluten until you do. Further testing (endoscopy with small intestine biopsy) requires continued gluten consumption until the endo has been completed. Welcome to the best club you never wanted to join
  3. Just Want To Share This Small Victory!

    Hi De Ho... Saw your post...fantastic...and I must add... I have had virtually NO cold or flu bugs since I was diagnosed with celiac disease five and a half years ago. I have had many autoimmune flares that can feel worse than the worst flu....yet, knowing I wasn't catching every bug flying by....was and is comforting. Yay for not catching bugs
  4. Well said Mommida! Emily...we understand this very well. The changes in the US post 9/11 have been hard to tolerate. Yearning for a safer time never ends dispite becoming used to enhanced security protocols. We love Canada in this family -- very much look forward to visiting more than BC one day. Stay strong Canada!
  5. Hey Guys... Just wanted to let you know my heart goes out to all my Candian friends this evening. Was very sad to hear your news today With hugs, Lisa
  6. Yes, positive is positive. Especially the positve EMA. Perhaps you caught this early or her limited consumption of gluten has effected the results. Two things: Make sure she is ingesting at least one slice of glutenous bread each day leading up to the endoscopic biopsies. Request the balance of celiac antibody tests: tTG-IgG DGP-IgA DGP-IgG Hang in there
  7. Inflammation is not uncommon. Congratulations on healthy villi! Were alll of her celiac antibodies tested? negative? Any nutrient deficiencies at diagnosis corrected?
  8. With high celiac antibody numbers an endoscopy is not necessary for diagnosis. I hope you are able to add foods back soon...I understand your dietary constraints well.
  9. I admit that I haven't read this entire thread...but will tell you this. I am one of those that has not improved with strict gluten-free along with all attempts to make other adjustments. If I had not had that initial endo, along with each follow up...I would never have found the cause of my continued problems or ruled out refractory celiac. Endoscopy remains a valuable tool.
  10. Addison's

    Good Luck Beth. Make sure to ask..if not addisons or other things discussed...What could it be? Always ask questions that make them think. Hang in there and if addisons stays in the mix...Colleen is your advocate.
  11. Fodmaps Vs Paleo

    ps...for those reading along...most folks improve with the complete removal of gluten within the first year.   for some it can take more to heal the damage caused by celiac disease...once this happens they usually get many more foods back in their diets.
  12. Fodmaps Vs Paleo

    I drink Red Wine with no issue...suprisingly as it is high in histamine, but I don't question it...I just enjoy it   Have you already lost other alcohols like vodka?   And you aren't a whiner because you are frustrated, but same rule...keep trying to find something that works with your body.   Glad to hear you are able to attend social's been difficult for me to attend anything after 3pm for most of the last 15 years so I celebrate every time I can go out...with or without wine in tow  
  13. Fodmaps Vs Paleo

      Been there, done that and still am.    I could have written your exact post many recently as a year ago.   For better or worse we have learned to never think we have solved the complete puzzle...I have had three major periods of improvement since diagnosed with Celiac Disease in 2009.  Each was followed with a flare that was worse than any previous flare which made us beyond frustrated that each time we thought we had the solution I was struck back down.   What I have learned after the last two periods that I call my "Human Amoeba" stages (months of severe flare and brain fog that becomes brain numb along with loss of all use of muscles and tremendous joint pain) that I need to accept making adaptations to my world while continuing to research and work with the best doctors I can find to gain more usable hours in the day.   How's that for a bummer?  Amazingly, I remain extremely hopeful and eager to learn as much as I can about how this silly body of mine works -- added bonus is my kids and grands all have symptoms similar to mine throughout my life so I am excited that their lives will be greatly improved by what I continue to learn.   Hang in there and keep researching...none of us is identical, but many of us have common symptoms and issues.  You aren't alone in this struggle.
  14. Fodmaps Vs Paleo

    You are welcome.   In my opinion, those that do not improve with strict removal of gluten after six months need to find what the right group of foods is for them.  It took me nearly four years to find the optimum foods for me....beyond frustrating, but worth the effort.