Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

  • Announcements

    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


Advanced Members
  • Content count

  • Joined

  • Last visited

Community Reputation

0 Neutral

About Naezer

  • Rank
    New Community Member
  • Birthday June 21

Profile Information

  • Gender Female
  1. Newly Diagnosed Celiac...

    I cannot agree with you more.  I thought I was the only one with celiac.  Recently my son started seeing an atheletic medicine doctor who also has celiac and saw his history.  She immediately tested both my sons for the gene.  They both tested positive.  My worst nightmare.  They are both healthy and never showed any signs that are negatively affecting their lives.   My dilema is do I switch them now or let them enjoy what is left of their gluten eating lifestyle?  but that is another discussion entirely.   Definitely test everyone
  2. Hello

    [font="Verdana"][/font][size="5"][/size] Ok i am a mom of 2 boys and this is my first blog. I dont have the gift of words and never had it so bare with me on this blog. I am turning 40 this year and it is turning out to be such a volitile year to say the least. My entries will be short and sweet and to the point. Some may sound lkie complaining but it is really not that at all. I have a stange sense of humor or view onthe world, what ever you may want to call it. I am here and am looking forward to sharing with you. Amen!
  3. If you are talking about a specialist for celiac disease I would say you could do without one if and only if , you are properly diagnosed.......... I am not a doctor but I have had celiac for 2 years and only saw my specialist for diagnosis. If you are truly gluten-free and you are sure you are 100% gluten-free then what more can you do????? Any thing else should be managed by a primary. If you are really lucky you may be able to find a primary doctor that may know enough about ceiac to help you monitor your anitbodies without having to see a specialist. It all boils down to you and how well you can follow the gluten-free diet. Good luck and hope this helps.....
  4. I am not sure if this helps but i had my GB out after an excruciating attack one week after delivering my son in 1999. doc said there was sludge but not stones. I was diagnosed with celiac 10 years later. Had intermittent attacks under rib cage. i would feel like I cannot breath. Went to Er first time but after that i "rode it out" at home. Once I went on the gluten-free diet, I thought I was in the clear but, low and behold, I had an attack last week after being gluten-free for 2 years. I am not sure what is going on but there must be a coorelation between the two. It is crazy when we sit here and talk about our histories and realize that sometimes "hindsight is 20/20" God bless you in your struggles.
  5. I had my gallbladder taken out after my first and only attack in 1999. One week after I delivered my first son. The ultrasound showed "sludge" in the gallbladder and surgery was recommended if I was gong to have more kids. My GYN knew right away what it was. Said it was common post partum for women to have gallbladder issues. That was in 1999 and not diagnosed with celiac yet. 3 years passed and then the attacks started. I would get similar painful attacks just like the initial attack but why??? There is no gallbladder in there. The only thing I could track was that it would occur after I would consume some alcohol. I first time I went to the ER. The ultrasound did not show anything but the liver enzymes were elevated. I was sent home,given pain meds and told to follow up with doctor. I did eventually go to a GI doctor who thought a sphyncherotomy was in order. "It MAY help" he said. Well, I didnt know what to do, so I did nothing. After that, I had several more attacks and just rode them out at home with the help of my loving husband. They really did not come all that often so I didn't worry too much about it. In 2004, I started having GI symptoms that lead to the celiac diagnosis in 2009. I have not had an attack since going on the gluten free diet so I thought it must have been celiac the whole time.......until now. I am 2 years gluten freee and thought those attacks were a thing of the past until this week. WTH!!!! I was having a few cocktails and it hit!! WOW! Same pain, same duration. I have just moved to a new area and do not have a GI doctor yet. There may not be any easy answer for any of us but it is good to know that we are not alone. So if anyone can shed some light on this, I would appreciate it.
  6. Constipation

    I too have had problems with occasional constipation but I know I dont eat enough fruit and veggies. I can pretty much fix it with diet changes. My son(non celiac) on the other hand has battled with constipaiton since potty training and his doc suggested Miralax. It is very gentle and does not cause pains/cramping. You may want to try that to give you some relief. It dissolves completely and not gritty taste. You will have to check if it is gluten free though. Good luck
  7. is still learning the ropes.

  8. Orange County Ca Celiacs?

    There is a place in Mission Viejo off Marguarite Parkway that has gluten-free pizza. The best around!! Southern California Pizza Kitchen. Really tasty and the crust tastes like traditional crust. I cannot live with out pizza!!
  9. Orange County Ca Celiacs?

    Hi I too am in South Orange County and have been craving a great cake. I have not really ventured out to actually get one yet but heard of a bakery in Culver City. The Sensitive Baker( or bakery) It is supposed to be the only gluten-free bakery in OC as well as casin free and kosher also. I have not been there yet but you may want to check it out. There are two others in the San Diego area also but I cannot think of the name. You may want to search for them. All I have to say is being gluten-free sucks but at least the internet saves us some time and energy when looking for safe places to eat. Good Luck
  10. Alcohol

    As far as I know, most vodka is Gluten free. Just watch what you mix it with. Keep it simple. Ginger ale or Flavored seltzer and vodka is good. I am newly diagnosed myself!! I know how nerve wracking the thought of traveling is right now. Good luck