This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
What does it matter what the diagnosis is? I know if I am hit on the head with a hammer it's going to cause physical pain and possibly neurological damage. If I ingest wheat it will do the same thing. It no longer takes a doctor to confirm this.
Yes, we get a tax break if we have a "legitimate" diagnosis... What else? I got my diagnosis from a naturopathic physician back when the orthodoxy of western medicine believed we were one in 100,000 and they'd never see one of us in their practice. The ordeal of getting the diagnosis would have done me too much damage by the time western medicine realized it was wrong.
But, in the end, it's not what the diagnosis is, it's about how we survive. Take it and run.
Yup. Virginia Beach here. Canary in the kitchen when it comes to gluten. I've learned that most of my food has to be cooked "from scratch" -- Organic Food Depot on Commuter Drive (right off Holland Road & Independance Dr. is a great place to shop, best prices on gluten free pasta & other goodies. I know that level of sensitivity varies, and many of us have other sensitivities as well. Been trying to be gluten free for 18 yrs, and have been successful the last 4 (had to divorce somebody to do that).
I'd be glad to help.
Oh, my name is Ellen Honeycutt. If you want you can add me on Facebook.
I guess the post title about says it... I've noticed that some of what I post does not show up on the board... I'm concerned that I have somehow broken a rule I am not aware of. Could I get an explanation, if I have somehow offended?
One note about the 1 in 5000 diagnosed... I was put on an elimination diet in 1994, and wheat and it's relatives were determined to be my personal problem, (at the time, just a sip of good beer would puff me up like a balloon & send me to the bathroom for an hour or so). I tried once to get the official diagnosis, years ago. I was supposed to eat 3 servings of wheat a day for 3 months, before I could be tested. I lasted a month. It was miserable. Others I know have also been told by their doctors to just go ahead and follow the diet to see if it helped their symptoms. Oh, and I'm finally divorcing the jerk for whom love just doesn't ask so much as to make his own pb& j.
It would be a very special man who could convince me that his wheat food wouldn't contaminate my kitchen.
If you even look at the packaging of the waffles in their freezer, despite the large lettering on the front of the box, they most likely at least admit, at the end of the list of ingredients, that the product is "made on equipment shared with wheat."
The official explanation, (I've called to ask), is that they are legally allowed to call the product "gluten free" if there are less than 20 parts per million of gluten in the product. I understand that this is acceptable for many, as level of toleration varies for us. This is the same answer I got from Van's and one of the other companies that produces "gluten free" waffles. Not for me. I have to be worse than "Monk" about this.
Trader Joes gluten free rolls and bread may have been produced in a gluten free facility, but it is shipped and shelved with the wheat stuff, and somehow it seems to have become contaminated -- at my favorite shop, Organic Food Depot, (organicfooddepot.com if you want to see if one is near you), there is a separate freezer for the gluten free products, and they are very careful not to store, shelve, or ship gluten free products with the wheat. Bread wrappers tend to be thin.
General Mills products, (5 flavors of Chex, so long as the words "gluten free" appear over the word "Chex" on the front of the box), are produced in a gluten free facility. I've called the number on the box and have been assured that while not all rice and corn chex are gluten free, General Mills will never put the words "gluten free" on a product that was not produced in a gluten free facilty.
Uh... Yeah. A little over a year ago, I joined a dojo (karate school) in the hopes that the training would fix the neurological problems I was having due to wheat exposure. (I'd just managed to pressure the jerk I'm divorcing into getting out of the house -- it was too much trouble to him to not poison me).
I still am not to where I can get/hold job, but I'm done with the nightmares and hallucinations.
Oh, by the way, martial arts training really does help with focus, balance, all that good stuff... I really recomend it to anyone who feels their nervous system has been compromised.
Timewise, it's easier for me now that I am only responsible for myself. Wouldn't have been able to do it before last summer. The limited hours available at other dojos was one of the setbacks for me.
Most sensais have a full time job elsewhere... mine does this full time, 7 days a week. His wife owns a shop in the same strip mall. She helps out with the dojo, too -- leaves a note on the door of her shop when she does.
They run a summer camp for children -- 28 kids average a week this summer. The kids classes are almost that large most of the year, and the adult classes can be from 8 to 12 any given night, sometimes more.
It's a small building, but I guess it is a big dojo. I've seen one that consistantly had classes twice as large -- but only one hour twice a week.
There aren't many who could pull it off. I'm lucky I found this.
Congrats on the brown belt. And yes to the mental/spirituality aspects. Our diet is a good bit more rigid than those imposed by various religious sects, and anything that re-enforces discipline is good for us I think.
It's taken me less than a year to go from white to where I am... I do spend about 9 hours a week in the dojo, and I was very into martial arts when I was young, but finding a dojo I could stick with that actually tested was impossible. When I don't work out that much, fibromyalgia and neuropathy raise their ugly teeth, anyway, and I prefer knowing that if it hurts I know how it happened. But my dojo is open 7 days a week with about 14 hours of class available for adults not on the exhibition team. And, we pay by the month, not by the class, unless you want private instruction.
You don't state your age... I am 54. Two years ago, when my ex moved out, and I could finally live the level of gluten free I needed, my resting pulse was 80 to 100 (on toprol, to control rapid, irregular pulse. It's now 60 or below, the last of the toprol went in the trash a year ago.
My sport is not running -- it's martial arts. But yeah. And the carb loading and sports drinks have a place in the diet of a celiac that's not physically active -- they tend to be really portable.
I spend about 9 hours a week in the dojo... I shied away from running because I am 54 and know that I did have mild osteoporosis 2 years ago when I had bone density test. This is one of "our" problems. I take calcium with OJ for that. I'm not near as worried about the kicks & bumps in the dojo as I am about the mis-step on the trail.
Just got a blue stripe on my green belt Friday -- I've been doing this less than a year, started when I realized how much damage I had after putting up with an inconsiderate (process of divorce) husband for 15 years after I knew what the problem was. It's hard to explain, but the mental part of the training really helps cut through the fog.
I'm 53. Female, divorcing probably partly because of it, but that's not the point. I think it would be fun to just go have lunch with someone who wouldn't cringe when i pestered the waitress about ingredients.