Subscribe to FREE Celiac.com email alerts
Shaunta added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsHelp PleaseHere's a little history.
I've had stomach/digestion problems all my life. I had ulcers when I was 8. When I had my son 15 years ago I had severe stomach pain (rivaling child birth, which I had just gone through) paired with terrible rotten-egg burps and follwed by vomiting and liquid stools until I felt like I would be better off dead. This happened until I stopped drinking milk. Throughout my life I've had pale, bulky, foul smelling, sticky bowel movements at least five and up to eight or more times per day.
After my 4-year-old was born, I had a sudden onset of sudden exhaustion and my hair started falling out. When I went to the doctor, he ran some thyroid tests and said not only was I not hypothyroid, I bordered on hyperthyroid (despite weighing 300 pounds and having zero energy) and blamed everything on being fat and postpartum.
It's four years later and about a two months ago the exhaustion which never left suddenly got much worse. I also started noticing a lot of gas, my hair never stopped falling out after I had my baby, and the harder I tried to lose weight the more I gained. I'd gained about 80 pounds in the past four years.
My doctor ran a lot of tests. My cholesterol was low (125), my vitamin D was alarmingly low (15) and I was also low on iron and borderline on vitamin B (I'm not sure which one.) My thyroid again showed to be not only not hypo but close to hyper.
Two weekends ago I was so exhausted (wanting to cry when my alarm went off or my baby woke up, even if I'd had 12 hours of sleep.) My husband bought me a loaf of sourdough bread and all I ate for three days was peanut butter sandwiches. By Monday morning I was in so much pain I could barely get out of bed. My back and legs were hurting enough to cause tears. I was physically ill, pale, itchy, and generally miserable. When I got to work, I googled and read about celiac and stopped eating gluten that day (last Monday.)
Wednesday I woke up with energy. Thursday I made a five hour drive without having to pull over to either use the bathroom or close my eyes because I was so tired I couldn't drive safely. It's a week now, and the weird white/yellow coating that's been on my tongue is gone, my legs and face aren't swollen anymore, my hair has stopped falling out, and despite being on my period and having a cold I have more energy than I've had since I was a kid.
Last Wednesday my doctor ordered some blood tests at my request. I'd been gluten free for two days, and she ordered me to fast before I took the tests. (The tester lady was surpised and said that this test doesn't usually require fasting.)
Here are the results:
Gliadin IgG/IgA Ab Prof, EIA
Deamidated Gliadin Abs, IgA 4.0 U/mL Limit: 0.0 - 10.0
Deamidated Gliadin Abs, IgG 0.9 U/mL Limit: 0.0 - 10.0
Endomysial Antibody IgA
Endomysial Antibody IgA Negative Negative
Can someone help me understand what this means? Does it mean I don't have Celiac? I feel so much better on the diet, I'm not planning on going back to eating gluten. But I'm curious if I can have Celiac with test levels like this. Thank you for any help.
- 6 replies
- 848 views