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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About shandango

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    • Birthday 11/01/1979

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    1. shandango added a post in a topic Time To Conception From Starting Diet   

      I was gluten free for 5 years with occasional gluten cheating and now have been completely gluten free (no intensional cheating) for 1 year before I got pregnant. I was not intentionally trying to get pregnant either, it's almost as if my body just all of a sudden decided to become fertile after years of not ever worrying about becoming pregnant. I have had 2 miscarriages since I was 22 (also both not intentional pregnancies), I am now 30 and years of using NO birth control (at least 10 years to be exact). I never had the infertility looked into because I wasn't concerned about having kids so it was quite convenient for me.

      Then last November I went in for a routine pap smear and while getting the check up my doctor examined my breasts which were terribly sore and we talked about my 12 hour menstruation in October and he decided a pregnancy test was necessary. Test came back positive and I was needless to say shocked as hell.

      So please let your friend know it can take a long time to correct the infertility Celiac causes, but patience is a virtue.

      Also I did not wait until I was diagnosed to go gluten free, my tests will never be conclusive but I know in my heart what is wrong with me and going gluten free cured all of my symptoms and lead to a much more productive life. I do not recommend my methods but my gastroenterologist told me himself the tests are not 100% reliable and he is certain I have Celiac, positive test or not.

      Good luck!
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    2. shandango added a post in a topic Gluten Free Vegans? New To Board.   

      Well I'm getting by so far. I made cookies last night. They aren't as good as I wanted them to be but with a little tweaking I think they will be much better the next time I make them, I don't think I used enough peanut butter.... for flavor.

      Thank you everyone for your tips and suggestions!
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    3. shandango added a post in a topic Fibromyalgia Or Celiac?   

      I was diagnosed with Fibromyalgia in 2000. Didn't find out about Celiac until 2005 and I suffered with pain and bowel issues for years before that. I went gluten free in 2005 and felt much better, not perfect but better. I was in so much pain that I had already chosen to turn to some serious pain meds. I started eating gluten again after a year to test the theory and it didn't seem to both me again for about another year.

      Now I am gluten free, lactose free and off the pain meds. I am a firm believer that I never had FMS to begin with, I have Celiac. My blood test came back negative in 2005 and I never got a biopsy but as far as I'm concerned if the gluten free diet is working and I react as bad as I do, it's Celiac.

      I had pain in every muscle of my body, the worst was arms and legs. I had restless legs syndrome, chronic fatigue, migraines and pretty much couldn't handle any activity for too long. I have now officially been gluten free completely for 2 weeks with no cross contamination or slip ups and am now also completely vegan. I feel wonderful. The last to go was the leg pain and I haven't had to take any pain killers of any sort for 3 days and this is after 8 years of being drugged up on something.

      Is there a connection? Yes. I think the connection is that most doctors don't know enough about everything and they create these mysterious syndromes and diseases just to have a diagnosis without all the work. The reason I never stopped searching for an answer was that I was told FMS is not progressive, it shouldn't get worse and I was getting worse day by day. I knew something else was wrong.

      I hope more people find the answers I have because so many are suffering needlessly.
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    4. shandango added a post in a topic Dairy Sensitivity Better Or Worse?   

      I have been lactose intolerant for as long as I can remember, long before the gluten or anything else and one thing I noticed was there were certain dairy products I could eat and certain ones I couldn't. The two major ones I had to avoid were cow's milk and ice cream, with those I got the worst reaction, I won't go into details but it wasn't pretty. I could however usually eat cheese and yogurt without too much of a problem, so I did for many many years, actually until just recently.

      I think a lot of it is listening to your body, trying things and seeing how you feel. With food sensitivities and allergies, it seems nothing really makes sense. For instance, I am allergic to rice. If I eat a bowl of rice or have rice krispies I am guaranteed a trip to the hospital but when I first found out about this, I had no idea how many things rice was in. So I still at Special K cereal and many other cereals with rice hidden in it without any reaction or very little reaction, maybe a sniffle. Now of course eventually the reaction got worse and that was when I realized what I was doing but it's touch and go with food issues for me.

      I think you will be safe as long as you pay attention to what does bother you the most and avoid those things, use hemp or soy milk for cereal rather than cow's milk. You still get your cereal and no upset bowels.
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    5. shandango added a post in a topic What Do You Tell Them?   

      I'm just plain old honest. My health is more important to me than their feelings. I don't get annoyed when people can't eat certain things at my house and I would expect the same respect from them. But then again, I never been good at dancing on egg shells for anyone. The way I see it, I suffered long enough not knowing and now that I know what is wrong with me, I make it pretty simple for everyone else. Plus I have had food restrictions most of my life anyways because I was vegetarians for years first, so I guess it helps that I'm used to saying no to people.

      I also pretty much refused to eat anything from a box as I spent most of my childhood doing that so really I'm just honest with people. I will say something like "no offense but I have a pretty particular diet, if you are willing to work with me on that, I'll be happy to come over and eat with you. If not, I'll eat at home." Sometimes I do offer to bring something I can eat. Most of my friends and family are very understanding and cooperative, and those that aren't I figure just don't care anyways so what's the point of having them around?

      Good luck!
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    6. shandango added a post in a topic Gluten Free Vegans? New To Board.   

      Thank you all. I'm thinking about trying the wild rice thing, of course with epi-pen in hand and friend near by to drive in case it goes wrong but I miss rice. It was one of my favorite foods, hence the reason I am now allergic, I ate it as much as people in asian countries do for most of my life.

      Thank you for the other tips as well. So far I have been using other flours to cook with but I have found it is difficult to find Fresh flours, most seem to have that spoiled taste to them. I do most of my shopping at Wegman's since that is the only grocery store around here that carries any specialty foods. Eventually I hope to turn to the internet but for now Wegman's will have to do.

      Quinoa is really good fried in Olive oil. And yes, I do recommend soaking it first. I can't remember for how long it should be soaked but when I made it I'm pretty sure I soaked it for about an hour. I haven't used quinoa flour for anything b/c it's more expensive then the rest but as a grain it's good stuff.
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    7. shandango added a post in a topic Gluten Free Vegans? New To Board.   

      Thank you! I will definitely look into the boards for vegans and vegetarians. The rice thing definitely makes things interesting but I'm getting by. I'm not sure if I can have wild rice or not, my rice reaction is pretty bad so I've been too scared to find out. I would love to find some more "premade" foods I can have, been diligently looking. So far I sucked it up and started baking.

      But thank you again for your reply! Oh and I recently came across a great recipe for gluten free vegan/vegetarian recipes It's called Karina's Kitchen and has been a godsend for me!

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    8. shandango added a topic in Celiac Disease - Coping With   

      Gluten Free Vegans? New To Board.
      I am gluten free and recently vegan. Not officially diagnosed with celiac, blood test came back negative, but I know I am at least gluten intolerant and am just going with it. I am also allergic to rice and lactose intolerant. The lactose issue was what made me finally give up my beloved cheese and follow my complaining stomach to go completely vegan. Never been a big meat eater so that was easy (used to be veggie for years).

      Just looking for other gluten free vegans to chat and know I'm not alone. Gluten free is a frustrating world when you don't want to spend all your time in the kitchen and it becomes all the more frustrating when you can't eat rice or the flour made from it...

      How do you cope? I get frustrated but remind myself everyday that it's either this or I suffer with pain.
      • 11 replies
    9. shandango added a post in a topic gluten-free Diet May Help 2 Other Med Problems   

      I was diagnosed with Fibromyalgia in 2000. Since being gluten free I have felt a million times better.

      I didn't know about Celiac until 2005 and suffered for many years with pain, fatigue, stomach issues, etc.

      Knowing about gluten and my other food issues has helped bring my life back.

      I wish more people knew and more doctors paid attention. I have had stomach problems since I was 10.

      Nothing is perfect yet, but I think once I figure it all out I will almost be healthy again.
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