This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
My bloating went on for years just as my DH did. Finally 3 years ago I was having a good non-bloated day and made some popcorn for my grandson and while we were eating it my wife noticed I was swelling up. From that point on I went corn free as well as gluten free and really started to feel better. I still battle DH and have been on the low iodine and low sal diet for 6 months and the DH isn't as bad. I'll take the little victories!!!
This looks exactly like something I had two years ago. I felt it was just a really bad case of hives and it lasted about 10 days. It wasn't until this year that I figured out it was DH in one of its more recognizable, meaning classic, presentations! For the past 5 months I 've been on the low iodine and low salicylate diet and for the past two weeks the rash is calmer than it's been in years.
My suggestion is to make everything from scratch. I'm also corn intolerant and this has been the only way for my wife and I to control what is in what we eat. We make up enough to eat for the next day as well. You in the right place. Everyone on this forum knows what you are experiencing and they are more than willing to pass on what they have learned.
Thanks for all your input. This past Sunday I went to a celiac expo hoping there would be a vitamin, shampoo & soap company represented but there wasn't but the quality of gluten and corn free products was amazing. My wife and I cook everything from scratch so we can control the food content. My wife got a blood test at the expo so will see if she is developing a sensitivity to gluten. I do have a Dr appointment near the end of this month. Perhaps we can start some testing again. The last time I had testing done nothing could be found. I mirrored many of your experiences, the Dr's just don't know. The last guy I saw told me, after I told him I was pretty sure I have DH, that many people are sensitive to gluten and the he went to a web site and pulled up one of the pictures that shows an individual with the the "mosquito bites" all over his/her body a told me that this is what DH looks like. At this point I just left knowing that he hadn't a clue about celiacs or DH. Oh, the zinc combo was created to relieve the itch and dry the area from the blisters. For me it works pretty good but it is very messy. If I'm not mistaken, zinc is one of the ingredients in calamine lotion. Calamine lotion was what someone here said helped then so I just played around with the non harmful ingredients. Sorry for the long post but I am really getting discouraged. I an looking closer at cc, and shampoos etc. thanks for all your comments and this forum is a marvelous thing . Thanks, Jack
I'm new to posting on this forum but I have been on this site for the past year and finally come to the conclusion that I have DH and have had it since 2005. I to have this on my groin area and my perineal area. I felt that I should add my comments with others because DH does not always appear in a predictable way. I have been gluten free for 6 years and corn free since 2008. I can't seem to clear the DH though. It goes from bad to worse. Currently I'm doing minimal iodine exposure and am eating foods on the salicylate diet in the negligible and low categories. The rash seems to get worse. The first two weeks after starting this approach I felt greatly improved and then the rash flared even worse than before. I'm using a mixture of 50 percent zinc oxide and 50% sunflower oil to control the unbearable to some degree but the DH seems to keep spreading. I'm at a loss. Any suggestions?