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    Reading, gardening, animal rights, cooking, sailing. Serious dog lover!
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    near Gainesville, FL
  1. Thanks for your response. Yes, I've been gluten-free for almost 2 years - I eat organically as much as possible, and avoid all processed foods. I also have to avoid all dairy, eggs, nuts, citrus, melon, turkey, corn and more. I have asked 2 different doctors to prescribe a comprehensive food allergy panel and they both said they wouldn't - so I will need to find an allergist in addition to everyone else...more money, of course, which is one reason I need to figure out who can help me the most and actually understand the correlation of celiac disease, ITP, etc. and not treat just one symptom. I feel like I can't eat without reacting, can't sleep without a sleeping aid, and feel like crap every single day. I jog but it makes me cough (I cough all the time, actually), I try to take care of myself and avoid stress, and I attempt to research/read everything I can - this site has been very helpful..if nothing else, just to know that I'm not alone!
  2. I am feeling very, very overwhelmed. I have been gluten-free for over a year, as well as dairy and egg-free, and I am extremely vigilant about my diet. However, I am having stomach aches at least every other day, and I am so fatigued that I could just sleep for fact, I find that I start a project and then just sit on my bed for hours. I don't know who to see. I saw another gastoenterologist recently and he ran a CBC and basic blood panel on me, plus a celiac disease blood workup (his response was, "what do you think we should do? Can you afford to have me scope you to check for cancer?". And I specifically asked him, will the blood test be accurate for celiac disease since, one, it costs $300 and I have no insurance, and two, the last test I had was negative, and three, I understand that if you've been off gluten, it will not be correct. As expected, it came back negative. However, my CBC was off the charts - I've had ITP for years, so it was not a shock, but it still very worrisome: platelets 37k, WBC 3, Hemo 33.4. He immediately passed me back to my hematologist, who had done a bone marrow aspiration last year - and told me to have a liver and spleen ultrasound once again. I am also going to see a nutritionist next week but frankly, don't expect much - she is not well-versed in gluten intolerance or celiac disease. I've been having a hard time keeping my weight up. I am 53 and over the years have dealt with depression, anemia, thinness, rashes, headaches, stomachaches, bruising & pettechia, brain fog, clumsiness, difficulty conceiving (and a miscarriage), early onset menopause, and very dark circles under my eyes. In addition, I have asthma and allergies (both food and environmental). I've also had 2 right breast lumpectomies (benign) and my current mammo shows 5 "suspicious spots" on my left breast. I am at my wit's end. WHO do I see??? I wonder if I should try someone in the homeopathic realm instead of "normal" doctors (who have been of no help whatsover). I don't know which way to turn. I hope someone can give me some advice or reassurance, or recommend a good doctor in the Gainesville, FL area (I had asked for recommendations on the "doctor" forum, but the one who was recommended has not been of any help). Thank you in advance.
  3. Very, very good information - can you give me the name or address?? Thank you!!!!!
  4. I live in High Springs ( 20 mi. north of Gainesville) and have not been able to find a support group, or for that matter, much info at all for help or advice here. Hopefully this site will bring something to light??!! Do you have a doctor in G. that you can recommend?
  5. Thanks, you guys, for the info - esp. who to avoid! I continue to search.....
  6. I have searched on this site but haven't found out how to find a doctor. I live near Gainesville, FL and I'm trying to find a GOOD doctor here - someone who specializes in celiac disease and associated problems, obviously. I have self-diagnosed after years and years - decades - (it all makes sense now!!!) of bloating, horrible stomach pain, extremely low platelets ("ITP" - no one could figure out the reason), depression, anemia, infertility, early menopause, skin rashes, constipation, headaches, etc. I've been gluten-free now for over a year and it has helped immensely but I do continue to have allergic reactions, as well, so now have gone dairy-free, in addition, and stay away from all processed foods. I feel like I've read everything there is to read - now I need HELP. I want to be tested for celiac disease, as well as food allergies, so I can eat more nutritionally sound, and make sure I am covering all the facets/areas that can be affected. I also have environmental allergies and asthma. Thanks in advance for any suggestions! There is no support group here that I've been able to find.