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labsr4me2

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About labsr4me2

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  1. I was tested and had a smaller list that was just sensitivities. I did the rotation diet, avoided ALL gluten and still was getting sick. (not as bad but still sick). So this summer I was tested again and I was told to avoid all of these other foods (I was basically told to go on the eat for your blood type diet). I followed that for months now. Now if I DO eat one of those items I instantly feel sick. (even if I eat one without knowing). :-(
  2. Thanks. I eat salads (LOTS of raw fruits and veggies, beef, buffalo, salmon and turkey). I am pretty much eating the same things almost daily. I sometimes throw an egg in. LOL :-)
  3. Thank you. My symptoms have improved. I still have weakness and I am going on day five of insomnia. :-( However, the joint pain is pretty much gone now. Thank goodness. My mom is my hardest one to be around. She makes a big deal out of bringing my own food, etc. I have not tried going out to friends houses yet. Along with the gluten problem....I must also avoid: String Cheese Chicken Oyster Gluten Adzuki bean Cornish Hen Pollack Teff Black Bean Duck Shrimp Wheat (not gluten-free) Black eye pea Partridge Barley malt Borage Seed Garbanzo Quail Cinnamon Castor Oil Lentil Squirrel Dextrose Coconut Mung Bacon/Ham Gelatin plain Corn oil Pinto Pork Guarana Cottonseed Soy bean Goose Maltodextrin Peanut oil Soy cheese Grouse Soy Sauce Safflower Soy-miso Anchovy Sucanat Sesame Cashew Bass Barley (not gluten-free) Soy oil Peanut Clam/Conch Buckwheat (Kasha) Sunflower Pine nut Crab/Eel Corn (ALL) Canola Pistachio Frog Kamut (not gluten-free) Almond Extract Poppy Lobster Popcorn Aspartame Safflower Mollusks Rye (not gluten-free) Carrageen Sesame Mussels Soba (may contain gluten) Corn Syrup Sunflower Octopus Couscous (not gluten-free) Guar Gum Tomato Tofu Pumpkin Ketchup MSG Pepper, black & white Allspice Avocado Bitter Melon Persimmon Pomegranate Coconut Milk Prickly Pear Starfruit Soda Duck Egg Goose Egg Ice Cream Quail Egg Salmon roe American cheese Blue cheese Arabic gun Aloe Olives-green & black Radish Rhubarb Juniper So finding new foods and recipes is still a bit of a challenge. :-( I did bring my own food to Thanksgiving and that worked out ok after I stood my ground. I will be making a ALL gluten free dinner for the whole family this year and have asked for not food to be brought in. I am excited about that. I get to show everyone how my food tastes just like theirs and I will not have to worry about cross contamination. :-) My sister has recently (two weeks ago) been told to avoid all the same foods as me as well. So she is starting to understand. It helps to have another support team member. My biggest weaknesses right now are cookies, desserts mostly, burgers and onion rings.......... Thank you for all of your advice. I really appreciate it. Sometimes this new life style gets a little over whelming.
  4. Welcome, I was just recently diagnosed (this year). It is taking it's ups and downs on me as well. I am gratefully to have such a supportive husband. I am glad to hear you are sticking it out nad making this your new life style. It is definitely a challenge to get used to. I have to give up: String Cheese Chicken Oyster Gluten Adzuki bean Cornish Hen Pollack Teff Black Bean Duck Shrimp Wheat (not gluten-free) Black eye pea Partridge Barley malt Borage Seed Garbanzo Quail Cinnamon Castor Oil Lentil Squirrel Dextrose Coconut Mung Bacon/Ham Gelatin plain Corn oil Pinto Pork Guarana Cottonseed Soy bean Goose Maltodextrin Peanut oil Soy cheese Grouse Soy Sauce Soy-miso Anchovy Sucanat Sesame Cashew Bass Barley (not gluten-free) Soy oil Peanut Clam/Conch Buckwheat (Kasha) Sunflower Pine nut Crab/Eel Corn (ALL) Canola Pistachio Frog Kamut (not gluten-free) Almond Extract Poppy Lobster Popcorn Aspartame Safflower Mollusks Rye (not gluten-free) Carrageen Sesame Mussels Soba (may contain gluten) Corn Syrup Sunflower Octopus Couscous (not gluten-free) Guar Gum Tomato Tofu Pumpkin Ketchup MSG Pepper, black & white Allspice Avocado Bitter Melon Persimmon Pomegranate Coconut Milk Prickly Pear Starfruit Soda Duck Egg Goose Egg Ice Cream Quail Egg Salmon roe American cheese Blue cheese Arabic gun Aloe Olives-green & black Radish Rhubarb Juniper So I am right there with you in the depression part. I truthfully hardly ever leave my house anymore. I am afraid to eat out. (I keep getting sick). I do not like goint to other peoples houses and having ot always say "no thank you" when they keep offering me food. (even though I have explained it all MANY times to them). I also have troubles using any products with gluten in them. So hugging or kissing someone that uses these products also make me sick. I sometimes wish I had a bubble to live in. I am a mom and try very hard to stay up beat but it is an every day struggle. I am sure it will get better as things form a pattern and start to feel more "normal." Anyways, glad to hear you found this site. (It has helped me lots). I just live right over the border in Wisconsin....so not too far away. I hope you get back in to the music thing. Take care
  5. Thank you to both of you. As scary as it is to give up on the eating/socail live style that I have had for 35 years, I am going to be a LOT better at sticking with it now. The out come of it possibly not reversing itself after time is a LOT scarier. Thanks again. Wish me luck! :-) Again.....I am glad to know I am not the only one out there.
  6. Thank you. The times have been getting longer with each "cheat." I was worried that it was something more because I had never heard of anybody else with these issues. How long have you had this problem? Do you have celiacs or sensitivity? Thanks again. I need to get a stronger will power!
  7. I was told to go gluten free about a year ago. I was also given a whole front page of other items (foods/herbs/etc). to avoid. I live with my husband and teenage son. Neither of which are gluten-free. I am looking for new friends that can relate and have fun while dealing with the same issues and enjoying life. I am not looking for people ONLY from Wisconsin. I just thought if we live close that would be cool too. Feel free to e-mail me at: werfamily@sprint.blackberry.net I hope to make more friends that can relate. :-)
  8. I was tested almost a year ago and told I have severe gluten sensitivity and a list of other foods to avoid (takes up a whole front page of paper). I do fine when I avoid all of these foods. However it is difficult at times to follow so many restrictions. I have done it and every once in a while I slip up and eat with the family. At the beginining I would suffer stomach aches, headaches, dizziness, weak muscles, tiredness, and joint pain. This would last any where from a couple days to a week. (depending on how much "contamination" I had). On friday I gave in and ate with the family (it had been months since I had cheated). I have been down for six days now. My joints are all hurting so bad that it is sometimes (most of the time) hard to walk. I am so weak right now that it is too hard to lift more than five pounds. None of these symptoms are getting any better. :-( Has anyone else suffered from this? Does it get better or will it get worse? Thanks for any help you can offer.
  9. Thank you. I was starting to feel like it was just me. I did buy some clorox wipes for the house and some for my purse. Just in case I am unable to get to soap after an encounter. I just call myself "Monk" now when ever I go any where. Hahaha. I am glad to know that others are experiencing these same things (not that I would wish them on anyone) but I am glad that I am not the only one.
  10. Recently I had to go COMPLETELY gluten free due to DH. I had to get rid of my laundry soap, make up, shampoo, conditioner, deoderant, etc. I had to replace everything with gluten free products. Is this common? I am so super sensitive that I am now afraid to even touch people out of fear that they do not use gluten-free products. I went to a party yesterday and gave some people hugs (I did not wash my hands afterwards) and then I ate my gluten free protein bar and an Ensure (same thing I eat every evening). I got sick. Are my fears correct? Could I really be that sensitive that I must wash between EVERYTHING (even shaking hands or hugging)? I am afraid to go out in public right now do to me being so sensitive. I am also wondering if I REALLY am this sensitive....would sex with my spouse who eats gluten being a contamination due to gluten in his system?
  11. Thank you SO much for this post. I have been conflicting over getting tested or not. I have ALL of these same symptoms. I also get the "drugged feeling" almost instantly. It seems as soon as the food hits my stomach. I have read all that I can find on celiac and it did not seem that these were symptoms of it. (or atleast not all of them). I also went on a Gluten free diet and have felt MUCH better. I am still getting the drugged feeling every once in a while and was wondering if I have gotten cc or if I might possibly have an intolerance to something that I have not thought of yet. I have taken Gluten/Diary/salt out of my diet. I have many doctors appointments and they all seem to look at me crazy or tell me it is all in "my head." LOL I do not want to waist a lot of money on endless testing. However I just made an appointment next week with a hollistic doctor because I was thinking my symptoms were not normal and thought I should at least check to see if I was on the right path. After reading this, I am feeling much better with my diet decision and think maybe a test to determine other intolerances might be best. It sounds like finding out between celiac and intolerance would not make much difference. I would be on the same path either way. Thank you again. You have ended many tears.....
  12. Thank you. Tomorrow I am going to go to a Dermatologist to see about getting a skin biopsy for DH. I am a little scared because lately my memory and brain have been a little off. I feel a bit lost inside myself. Strange I know...I just blew it off as nothing but I am starting to think it might be something.
  13. I was wondering if anyone else when they eat Gluten (and for me diary as well and possibly soy), do you get neurological issues almost instantly? When I eat (as I call it "forbidden" foods) I instantly get a "Nyquil" feeling head....I get extremely tired. My vision is correct but funny. I get weak muscles and sinus pressure. Is this normal for celiac disease? From what I have read, instant symptoms are not normal. I used to get this symptoms about 20mins. after I would eat carbs or sweets. Now I get them almost before the food gets to my stomach. I have since went off Gluten and Diary and it has gotten a lot better. I still get symptoms every once in a while but I think I am now having troubles with soy and iodine. I am also getting arthitis pains and sometimes my memory is slow and my breathing gets slower as well. Any one else get anything like this?
  14. Hello everyone, I live in Delavan, WI. I have yet to be officially diagnosed. I did post some questions and my symptoms in the "pre diagnosed" section. If anyone feels like reading and helping with their advise. I would greatly appreciate it.