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brandiwest added a post in a topic What All Were You Tested For Before Celiac Diagnosis?
brandiwest added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Diagnosed A Week And A Half Ago....Boy what a HARD diet!!!
I first had a celiac panel drawn in which the Tissue Transglutinamase came back elevated at 38, but the IgA was negative.
So I was referred to a GI specialist. He did an Upper GI scope and took biopsies from my small intestine, which came back NEGATIVE.... so he was a little puzzled with the conflicting results.
1 positive celiac blood test, 1 negative and now the negative biopsy. So he wanted me to do a PillCam Endoscopy where I swallow a camera and wear a computer for 8 hours, which my insurance wouldn't pay for...
I ended up doing the PillCam Endoscopy and it showed the the villi of my small intestine was gone, the lining of my small intestine was smooth.... so I had celiac.
I have been Gluten Free since the next day... but it has been hard... I have lost 3 pounds in a week and a half because I can't find anything to eat.... but I am hoping with all the help I will find on the forum here, I will be able to eat!!!
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