Great advice for all of us trying to figure out what's going on and to live w/it!
Dumb question.....what is nightshades?????? Alone w/the food mentoned, my dr. also said that sugar is quite bad. It causes yeast infection in the colan and disgestive tract! Oh well, another add to the list! Really thanks this is a good tread .!
Hi - after reading your note, just thought I would give you somewhat insight on what I have decided to do. No, I have not had the serious life problems you have had. But, I did have serious bleeding and diarreha for many years (close to death) and went thru many, many different tests (the usual). Still I'm at a point where one dr. will say Celiac and the other would say food allergeries! (this is over a 10 year period at the very least). This week, I again had a food allergery test along w/Celiac panel blood test. Same oh same oh, yes maybe.....no maybe...... I too have extreme stress in my life (not finanical, but very, very serious family situations that cannot be fixed w/money)!
I have come to the point my favorite saying are: "what is...is"....and this too (no matter what) will pass! The same for you!
Instead of going completely gluten-free I have decided to let my body tell me what I eat, depending how I feel and the stool situation. If I go completely gluten-free free I have problems w/pain, consitpation (very bad). I have gradually added somethings in my daily diet: This is what I eat: Morning 1-1/2 c coffee w/non dairy creamer and I make cornbread (jiffy) yes I know it has a little wheat. I have a small piece (plain) one small package will last me a week. At noon, I will have a corn tostito w/packaged thin lunchmeat turkey/han and melon, grapes, OR general foods Corn Chex and Rice Chex combined (must be combined or consitpated) w/a banana sliced, blackberries, etc. w/unsweetened almond milk Every night I have a weight w. Smart Balance stuffed turkeky t.v. dinner (I disgard the dressing) and add more fresh carrots and green beans. Most days I will have a little barbque meat (steak, ground sirlion) about a size of a playing card w/ the t.v. dinner to get protein. I have green tea (passion fruit) and depending how my day went I even might have a store bought oat meal cookie. The days I don't have the cereal for lunch, I have a small mixed bowl in the evening (no fruit or just a little blackberries) to make sure I have fiber for the morning stool. I drink water all day long, I believe it helps everything in our bodies.
If I have a second stool that is loose I take Lonnox (99% of the time it stops) if not I can take up to 4 a day. For stress, I take xanax .50 I can take up to 3 a day if needed. I use in the morning after my stool, and usually at night before bed to stop thinking about the "what if's"......I believe sometimes life does become overwelming....and the health problems become much worse, yes they do. Try your best to get thru today.......if some food agrees w/u stick w/it. Try to add a little as others have suggested....but I'm not looking for variety....personally I just want to feel good! If I do feel better regardless if it gluten-free or not, I will eat it. I know this is not officially correct w/the medical group, but let's be honest.....in most cases.....yes most.....we all just have gotten a run around or a "guss what you have" depending upon the dr. this last one told me if everyone was tested most people would test positive if not Celiac if would be food! (who knows)! I wish you well....believe me you are not alone.....try YOUR BEST to just plain feel good. It's hard but if you try to make some decisions on how your body feels after you eat something, go w/it!
Momma Goose - your reply was very informative for us new comers! It's important to me that I undertand the food allergy versus Celiac disease. When you have an allergy of different foods along w/Gluten to these foods DO NOT affect or destroy the villi? Is this correct (I know this is just an opinion but no matter where I try to research this I can't seem to find the answer?).
Another item: Does this site have a blog or do you know of one that helps someone like me w/allergy to egg, dairy, soy and GLUTEN buy some foods? I find it very hard to find something decent to eat.
Is there degrees of Celiac....in the Mayo Clinic info they state you are born w/it. Yet, many of us don't show any signs until later in life????? Do you know of anyone that HAS the disease goes away or they can resume eating a somewhat normal diet. We ALL who are reading this, I'm sure have the same questions.....thank you again.....for your opinions!
In my case, I did have the endoscopy/biopsy dr. found nothing....I found Gluten allergy thru blood test. I am taking a new blood test panel and will have results next week. It will be interesting to match versus last one. I guess the whole problem is to find a "good dr." and also really believe in him/her. This seems to be the situation w/most of us. thanks again!
(I'm holding off on the enterolab, no where have I found something that relates to Celiac stool except on their site???? Certainly, this would be an easy test for all our drs)
Somehow this doesn't seem the right thing to do. I know after reviewing many articles on this, doctors do say to do this.......but when you think about it.....it's almost like drugs......yes, if you take, yes they will show up positive. My dr. (I am not saying he's correct....believe me on this one), but he took a blood test celiac panel (he called it) just walking into his office, eating previously as I normally would not a lot of gluten, but some (bread, chips).......I personally would not overeat gluten again (unless I just crashed over something stressful and didn't give a d....m! ) I down deep no what agrees w/me (on how I feel and how my stools are) and I'm finally realizing this is just something I, myself, am going to have to control one way or another or pay the price!
Good luck and I do mean this.....
Your post stated that Enterlabs does not test for Celiac, only celiac sensitivity. My blood test already shows allergic to gluten yeast, soy, egg, dairy,eggs (after reviewing many blogs, etc...this seems true to being Celiac). My dr. is now running a Celiac blood panel on me (no results until the 17th)...... this is the second one in two years. do you think I should do the Enterlab test when since they cannot assure that I am Celiac. It seems (been to many drs., had a endoscopy, colonacospy,) again they (including my regular internist) say IBS and stress (or caused by antibotics.....took only for a few weeks during a bad bout)........is there any sure way to find out that you are Celiac or is it just a hit/miss and you find out by trial and error on how you feel w/what you eat or eliminate from your food selection!
Another question: let's say you are Celiac from the gluten....does it make your small intenstines worse when you eat the other allergic foods? or do these "other"s just create a stool problem and have no bearing on your Celiac condition? Wow! it just keeps going on and on........thanks to all, this is just like going to college again........the more you learn .....there's still more out there to learn!
Hi - I did go on the enterolab site and ran all their material. Did you order the Gluten Sensistivity Stool and Gene Panel Complete $369 plus the egg, yeast and soy $199.....after reading all the pages, I gather the two would cover everything????? Do you agree? thanks so much for leading me to this site there is so much info in it. Unbelieveable how the drs. (at least mine) give such a "round around" w/the IBS and oh it's just stress info! thanks again...pls let me know if these were the test panels you took! (I wonder if submitted to insurance would they cover...have you tried!)? d
I'm fairly new to this diet too! Struggling w/it since I am among other foods, allergic to eggs, dairy, soy,.........this is what I have so far replacement eating. Ener-g light Tapioca Loaf (Ener-g) you can buy at health food stores, amazon, of their company Ener-g.com. This bread is not too bad, so far the best for me if toasted~ I have tried their Raisen Loaf, and Engish Muffins (I could not eat). My mistake I went on line and bought 6 pkges of each (they last almost 6 months w/o freezing)....threw them out. I find that Van's Waffles (gluten free,etc) are good toasted (or at least decent). If everyone has anyother "good" tasting dairy, egg , gluten free, please let us know.
it's bad enough gluten free, but add on dairy, soy, eggs....and it's really a challenge! as an add on I eat steak (bar-b-que) hamburgers (same, but plain), pototoes any kind, Rice Chex (gluten free) almond unsweetened milk (really like this).
Wow! 4 bananas at one sitting is really alot, but I'm not throwing "stones" for last night even though I have been gluten free for a few weeks, I sat down and ate 2 large donuts and toco chips. Why we do this is is beyond me! But, for some reason, we do convince ourselves it's okay at the time.
Yes, in my opinion, you would have a reaction to that much bananas. Too much in yr colan and intestines at one time. One is enough. As far as the hamburger, have you had a food allergy blood test? When I had mine, there were so many things that popped up that I was not aware of that I was allergic too. Or, you could still be having the affects of the bananas... Becare in the meantime, keep a food diary each day w/out fail.......let the past be....let's try again tonite (me included) to get back on our food watch again. Good luck! d
Hi! glad your feeling better. You mentioned in your post "Enterolab" stool test. How do you contact them? Are they local to you? I too have been getting the "run around" from dr. to dr. and yet, feel that I am celiac! Would you pls let us know how to contact them or?????? thanks! d
I know how you feel.....I feel the same as you! But, considering how sickly we have felt for so long, personally speaking I'm trying my best each day to improve/avoid the foods I must not eat. Some days I do, some days I don't give a care! BUT, each day is better........I guess when we look back at our lives, it took a long time to get to this point....it will take us some time to understand the foods/where to buy, and which foods are tolerable to us....hopefully, some we will enjoy. One of my concerns was breakfast, I now found Van's Waffles, egg, soy, gluten free at Krogers! They are fairly good! So this is a start........your not alone!