This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
I have been gluten free for around 2ish years. The first year was certainly harder than the second. Its all old hat now.
You most certainly become more sensitive to small amounts of gluten after cutting it out of your diet. Cross contamination is a huge issue. I haven't been glutenend lately, but it happens from time to time.
I can tell a difference though when I get a small trace amount, and if I accidentally eat a substantial amount. The trace amount makes me feel bad, a substantial amount makes me feel terrible.
Well I did what I said I wouldn't do, and that is to get "tested" further for Celiac disease. I can tell I have a problem with Gluten and that is good enough for me, however my sister (who I am convinced has a bigger problem than me) refuses to do the gluten free diet, so I got the genetic test to "prove" to her that its a problem that runs in the family.
I have the DQ8 phenotype, and the DQ6.3 phenotype. One allele pair for a susceptibility to Celiac, and one that I have read on here means a susceptibility to gluten sensitivity.
Does anyone know of any links on 6.3 having gluten issues? I would like as much proof as possible before presenting said findings to my sister.
I meant to also ask if any undiagnosed problems got better, but to just notate whether or not you were diagnosed. Non of my mental health issues from the past were ever officially diagnosed, they are just my take on how I feel.
I know I for one, after going gluten free have a much easier time regulating my emotions. The wild roller coaster of feelings is gone. My overwhelming anxiety is gone. My depression for the most part is gone. My mania is gone...
Is there anyone that has been diagnosed with depression, bi-polar disorder, schizophrenia, borderline personality disorder, or some other form of mental illness that found they had a marked improvement on a gluten free diet, if so what are you recovered from? Also are there any problems that have not improved, or have become worse?
Histamine may actually help in the bodies fight against gluten. I have noticed that drinking wine after accidentally eating gluten seems to help. My mother, who had/has worse lower extremity neuropathy than mine, would sting her self with bees to relive the symptoms. I have also heard of people with arthritis (another condition at least partially linked with gluten problems) also using bee stings to help alleviate their symptoms.
I totally missed that you have autism when I first responded to your post. I know that there is a lot of talk about a gluten free diet helping with autism. Coupled with that however is also a casein free diet. Casein is a very similar to gluten. I think there just has not been enough research done in these areas. If eating gluten free and casein free help I say go for it and eat that way. The medical community doesn't know how it all works yet.
I know that my behavior is effected by gluten. Once I started a gluten free diet the torrent of emotions I used to have is now gone. I do not have the same problems with mania, depression and anxiety that I had previously. I also have an easier time avoiding addictive substances such as caffeine and alcohol. I actually managed to quit smoking years ago, but I would imaging it would have been easier to quit if I had gone gluten free then.
There seems to be some correlation between various autoimmune disorders and gluten intolerance including but limited to Lupus. Some people have an improvement of those symptoms after going gluten free.
I myself had a negative blood test however that is inconclusive since as many as 30% of individuals with gluten problems will have a false negative. I feel better, and a list of around 100 diverse symptoms have either resolved or improved with a gluten free diet. I don't care to go through what it takes to get a "proper" diagnosis. I will just be gluten free and healthy.
If you ask a 100 different doctors you will probably get a 100 different answers on that subject. I do not believe they have done enough research into those problems to authoritatively tell you. In short you will get something about an allergy being an IgE response, and an intolerance being an IgA or IgG response. IgA, IgG, and IgE are all types of antibody that the body uses to deal with bad stuff that enters into the body. An allergic reaction is where there is an "abnormal" antigen response to a foreign substance that does not typically elicit that same response in the average population. When the response happens the IgE causes histamine to be release in too large of an amount. This is why a histamine blocker such as Benedril helps with mild allergic reactions, and why adrenaline helps with sever reactions. Adrenaline will rid the body of histamine very rapidly.
Abnormal IgG and IgA responses also release extra histamine into the body. But IgG and IgE have different foci. IgA is typically found in the mucous membranes, and IgG is normally a defense against pathogens.
My point being that it doesn't address the bodies inability to deal with the gluten, it only effects the bodies immune response to the gluten. Since celiac's cannot digest gluten as well as other people then the body has to deal with the gluten in some manner. If it does not cause an autoimmune response to rid the body of gluten then the gluten will just build up. I wouldn't be surprised if it causes more problems than it solves.
First off, I don't know how much faith I would have in the Vaccine. It could only mask a deeper problem eliminating the immediate reaction. It could make gluten consumable without the IBS type symptoms, but making all the other problems worse.
Second the only treatment is to not eat gluten which would be the same if your just stop eating gluten to make yourself feel better.