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WorryMom added a topic in Celiac Disease - Pre-Diagnosis, Testing & SymptomsWhat Does Weak Positive Really Mean?My son, 9, had a celiac panel done a couple of months ago at his checkup because my MIL and BIL both have celiac. His TTg IgA came back as 4.3 on a U/ml < 4 which is "Weak positive." All the other levels were negative so his pediatrician said that we should just test him again in a year.
After doing a lot of research that lead me to believe maybe we shouldn't just drop it at that a very knowledgable celiac doctor looked at his test results that I scanned and sent to him and he said he doubted that he had it but also said to retest in 1 year. Since I highly respect his knowledge and opinion I was relieved and really thought I could just leave it at that until my son started to exhibit some different symptoms.
He is not sick that often but he tells me he's tired all the time and seems to be much whinier than he used to be. He sometimes says his stomach hurts and/or that he feels dizzy. One day we had to leave a school function for my older son because he felt sick and when we got home he had bad diarreah. He's not sick so much that I feel sure he has a problem but enough to make me worry.
So I'm wondering if weak positive means maybe he is in the beginning stages of celiac and the doctors don't think it would show up on a biopsy so they want to wait. If that's the case I hate the idea of him enduring 9 more months of damage before a diagnosis. I know we could try the diet but I think it would be much easier for all of us to stick to it if we had the diagnosis. Do some people get a weak positve result that later turns out to be negative? I compared his test results to my husband's (who does not have celiac) and my son's levels for the other tests, even though they were still in the negative range, were a lot higher than my husbands.
Thanks for any advice you can give me.
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