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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About no-more-muffins

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  1. More About Candida

    Does taking an antifungal make the die-off worse? I am bracing myself for some bad days ahead. I am not totally eliminating all carbs. I have been eating a limited amount of corn tortillas, brown rice and quinoa. I plan to eat corn chips and mabye some pancakes made with brown rice flour. And a very limited amount of fruit. (like 1/2 per day) It's hard to find consistent information on the diet. It varies so much. And my dr. told me to take the diflucan for 2 weeks, eat the diet for 3 and then go hog wild and see how it makes me feel. I asked why he'd recommend that and he said so you know if your symptoms are food related. Yeah, thanks for that great advice. I know I won't be cured in 3 weeks and there's no way I am taking a huge step back like that. I think that was terrible advice.
  2. I see that there are several people here who have experience with candida. I think I have it. I don't have celiac and techincally I don't even have a gluten intolerance but I do know that I react to gluten. I have been sick for months despite being gluten-free for 3 months dairy and soy free for 2. Last time I at gluten accidentally I was sick for a week. I am sicker when I eat sugar. I don't have the typical nail fungus/ thrush/ symptoms etc. I do have lots of the other symptoms though, and I did have 4 courses of antibiotics in about 3 months about a year and a half before I got sick. I have been on oral contraceptives for years. I have lots of "celiac like" symptoms. In your experience, does this sound consistent with candida? I am so desperate for answers and I feel like I am getting to the end of my possibilities. I went to a N.D. today and he seemed ok to go along on the candida theory with me. He gave me diflucan and an out dated diet plan (including plenty of whole grains including barley as well as "whole grain flour"). I am mostly looking for some validation on this. Do you have any advice for me? My biggest obstacles through all this have truly been my drs. who have not successfully been able to help me at all. Everything I know about gluten and celiac and candida I had to learn on my own. (This isn't a debate about drs.) For those who have had candida, how did you know. What to you think of those internet questionairres? It is hard to find info that isn't connected with products. And one more ?. What was "die off" like for you? I had major withdrawals (fatigue and headaches, and anxiety) when I went off dairy and gluten.
  3. Help With Food Tests Please!

    Some people have used to test for sensitivities to gluten, dairy, eggs, yeast and soy. I am working through similar issues right now and I don't have a lot of answers. I am currently thinking peanuts and legumes might be a problem for me so I am doing some elimination trials of these foods.
  4. Severe Diarrhea Cant Stop It.

    There is a medication they give to people with microscopic colitis to help them control their diarrhea. It's called entecort. The most common symptom of microscopic colitis is constant diarrhea. You might want to check out the MC support board (link below) and ask some questions there. I'd recommend having a colonscopy and biopsy to check for MC. Lots of drs don't look for it.
  5. New To Diet Need Advice

    Have you done any research on Microscopic Colitis? Some doctors don't even check for it. Its main symptom is diarrhea. Many people with MC have intolerances to dairy and soy as well as gluten. You might consider doing some research on MC and perhaps doing some food intolerance testing at I think about 4% of celiacs have mc and there are many people without celiac who have it. And if gluten is the only culprit it can take months or even a year to have your symptoms go away 100%. I am 3 months into the diet and while I feel better than I did when I started I still am not where I'd like to be. It does get better but the progress is slow.
  6. Morning Fatigue And Fog How Do You Cope?

    I don't know much about the protein thing first thing in the morning but I do have to say that I am definitely one who has difficult mornings too. It is hard to get up most of the time and I feel like it is going to be a horrible day. I try to remember that I usually feel pretty decent by around 10:00 but sometimes it is just so hard to make it through the mornings. I have been gluten-free for 3 months and I have had more good mornings the longer I am gluten free but I still have many where I just don't feel good when I wake up. In the mornings I often feel anxious, nauseated, discouraged and sad and "stuck" in this mystery illness. The progress can be so slow that sometimes it feels like you aren't progressing at all. When I have a hard time sleeping it makes me more anxious too. Overall though I am happy to say that my anxiety has decreased quite a bit. My sleeping has also improved so I just have to keep trying and hope that I'll keep feeling better. It is nice to know that there are others who go through the same things. I have had a couple of bad nights and bad mornings the last few days and it is nice to know that this is common. It sucks, but at least I'm normal. It's hard to not give up because there are so many things to figure out with celiac. If it were just the gluten issue it would be so much easier but it seems like so many of us have other intolerances or health issues. It makes recovery so much harder when you still dont' know for sure what is contributing to the problem. And thanks to the pp who posted about the Hormel Naturals lunchmeats. I will have to look for those because I am trying to avoid nitrates/ites.
  7. Symptoms

    Wow, it sounds like things have been really rough for you! I don't have too many answers but I did think that perhaps you have microscopic colitis. The constant diarrhea makes me wonder about that. There is a wonderful support board for MC and you could ask questions about that over there. Many of them use a medication called Entecort to help with their diarrhea. It is fairly common for celiacs to have MC as well. Most people with MC are intolerant to gluten, many to soy and casein. Some have other intolerances such as corn or other things. I really recommend going over there and introducting yourself. Maybe they will have some advice for you.
  8. Glutened

    Googles, I know that we can all empathize with you. It is so hard to see food that you love and you know you can't have. It is so hard. We feel your pain and know that you aren't alone. I try to remember that I am not the only one doing this because sometimes it feels like everyone else is normal and they take it for granted. I wanted to quickly comment on soy. I don't know if you have an intolerance to that but I know that I when I eat soy anything I get a reaction that is similar to my gluten reaction. It is really hard avoiding soy but it is worse to be sick from it. Check your glutino bars for soy and some of the Betty Crocker cakes have soy as well. For a quick meal I like to eat tuna with pickles on Lay's potato chips or rice crackers. Or make a quick smoothie in the blender with juice and frozen fruit and maybe some coconut milk (since I don't do dairy right now). I also have tried PBJ on corn tortillas that are warmed. Not the traditional PBJ but it gets the job done. I don't love the gluten-free breads out there.
  9. Anxiety

    I had really bad anxiety before I stopped eating gluten. I developed it when I started seeing other symptoms. It has improved a lot since I stopped eating gluten 3 months ago but I still feel mildy anxious a lot of the time. It is a physical nervous/anxious feeling and it is accompanied by nausea about 90% of the time. I know that anxiety can be related to celiac disease and GS and I am wondering if I can expect this to go away eventually? I think it is caused by a nutritional deficiency or something. I hate waking up every morning feeling nervous. I am wondering if anyone has had a similar experience and whether your anxiety finally got better after the "6-12 month" healing time. Is this just one of those things that "takes awhile" to go away?
  10. Wild Dreams

    I dream about that too. It is sad that we can't even enjoy gluteny foods in our dreams.
  11. Sometimes trying a gluten-free diet is the only way to really know. All my tests were negative including sensitive stool testing from enterolab. I haven't done the gene testing. Even though all my tests are negative I know that gluten makes me sick. There could be a few explanations: I could have a sensitivity to something other than gliaden Test results are never 100% accurate, they make mistakes, something can happen to the sample etc. I wouldn't take the gene information to completely rule out celiac, or at least gluten sensitivity. Just because MOST people have DQ2 or DQ8 that doesn't mean you CAN'T have another gene and still have a problem with gluten. They just dont' know that much about the whole gluten thing. I think I'd give the gluten-free diet a try.
  12. Newly Diagnosed

    Yep, it sounds like you are having some withdrawl symptoms. I went through a similar thing. I was SO tired, anxious, nauseated and would also wake up sweating. I definitely felt worse at first. After a few weeks the bad fatigue and anxiety was gone and after another few weeks I *started* feeling better. It is still up and down and I am about 3 months into it. I am discovering that I can't tolerate any soy and if I eat it I feel bad again. It does take time to get better and it is SSSSSLLLLLOOOOWWW. Keep at it, and don't lose hope. We have all been there, and most of us are still there sometimes. It does get better and in a few months you will be surprised at how far you have come. You may not notice too much change from day to day but I'll bet in a few months you'll really be able to see progress.
  13. Soy/gluten Intolerant People, I Have A Question

    My soy reaction involved massive bloating, diarrhea and cramps so bad I thought I was having a baby. It doesn't last as long, usually a day. My gluten reaction usually involves anxiety, nausea, sleeplessness, fatigue, shakiness and weakness. It usually lasts over a week.
  14. Symptom Differences Gi Vs. celiac disease

    I think that 1. Actual intestinal damage can often be missed by doctors if it is not obvious enough and 2. Just because someone doesn't have villous atrophy it does not mean that they do not have a significant decrease in the function of the actual cells of the intestine. Just because they can't SEE atrophy does not mean that the function of the intestine isn't compromised. Since so many of the symptoms of "simple" gluten intolerance involve malapsorption of nutrients, one would have to say that there is something functionally going on in the intestines to prevent optimal absorption and digestion, atrophy or not. And everything that I have read pretty much says that the symptoms of celiac and G.I. are really the same, minus the villous atrophy. There are SO many people on these boards who were told they don't have celiac. But we are all here, and we all improve when we don't eat gluten. Personally, I think villous atrophy is a symptom of gluten intolerance, but it isn't the disease. I really think it should not be defined that way. Either they are going to have to broaden the definiton of celiac or they are going to have to come up with another category for G.I. For every true celiac out there there are a LOT of gluten intolerant people. It does make explaining things to other people difficult. When people ask me if I have celiac, I dont' know what to say. No, I do not have villous atrophy, but I am gluten intolerant, which is what most people think celiac means. It is all very confusing.
  15. I was just reading through this old thread and I thought I'd resurrect it because it might be helpful for some of our new members. I was thinking about this thread becasue I still struggle sometimes with the fact that I am self-diagnosed. I think that some people don't take my diagnosis or my food intolerances seriously and I wanted to read this thread for some validation. (No, I am really NOT making this up!)