Get email alerts Get E-mail Alerts Sponsor: Sponsor:

Ads by Google:

   Get email alerts  Subscribe to FREE email alerts

  • Announcements

    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


Advanced Members
  • Content count

  • Joined

  • Last visited

Community Reputation

0 Neutral

1 Follower

About AKcollegestudent

  • Rank
    Advanced Community Member
  • Birthday 01/23/1989

Profile Information

  • Gender Female
  • Location Anchorage, AK
  1. I Love Misinformation....

    Oh good. I seriously thought that I was losing my mind. Thanks for affirming my sanity!
  2. I Love Misinformation....

    I follow a number of food communities, and one had an interesting recipe for stuffed zucchini; it was naturally gluten-free and I decided to check comments to see what others thought. Someone else noted that it was gluten-free and that she was looking forward to the millet and chickpea combination. The original poster informed them that no, it wasn't gluten-free. Apparently, her mother was routinely glutened by millet. I asked if the millet was CC'ed, since--as far as I know, and as far as Google tells me--millet's gluten-free. She replies that no, there's a minor amount of gluten in it. What gives? I'm about 95% certain that she's incorrect (not least because millet's from a vastly different plant family), but I'm not even certain how to correct her information.
  3. I'm on a 5 meal plan, and to be honest? The only reason they let me drop down that far is because I badgered them to death. This experience has definitely taught me that you can't accept "but really, we have x, y, and z--isn't that good enough?" when dining services cannot actually promise that they're taking all precautions to avoid CC.
  4. Go in and talk to the doctor on campus again. Lay out exactly what is happening, how it's affecting you--because if your situation is anything like mine, you feel like hell with no way to fix it; yay for CC and mislabeling--and the fact that your doctor's orders from home need to be followed. Try to call a meeting with both him, the nurse prac, your college nutritionist or dietitian if ya'll have either, and the head of your health services if there is one. Explain your concerns coherently and with concrete information to back it up. That way, you can sway them to your side and they'll be allies when you go back to the food committee/dining services. (Are you in Mass. for college, by any chance?)
  5. How To Awkwardly Admit That Actually, You're Not Eating X

    I'd noticed it with the bread aisle, actually--some genius thinks that anyone who uses peanut butter or the frozen food case clearly wants bread. But I'm around pizza so rarely that I notice the issue more. I vote that whichever mouth-breathing architect decided to make the bread aisle an important feature of the design, and not tucked in a corner, gets to have celiac or allergy symptoms related to bread/wheat. I love my grocery store at home--the person who designed most Carrs Safeways tucked the bread into one corner, and it's really easy to avoid because Nothing Else is over there.
  6. Last night, I was out with friends and ended up hanging out with someone I didn't know. (Well, okay. Someone who I've apparently been introduced to probably seven times, given that he greeted me by name. Oops.) We'd been with people who know that offering me pizza is going to be met with a polite, "No thanks," but by the time we actually reached the campus pizza grill, we were the only two still around. "We should get pizza and wings!" "I'm not very hungry, but I'll grab water and hang out." "Okay," he reconsiders. "I'll get the wings and you get the pizza." *trying to figure this one out* "Actually, I can't eat a couple ingredients in wings and pizza, but I'm having fun hanging out." "We can get something that doesn't have anything you're allergic to?" At some point, I went no, really, allergic to wheat--yes, I know that's misleading, but you try being specific with someone you don't know! About ten minutes later, he said, "Oh, celiac. But I thought that people just had indigestion from that!" There is nothing like trying to educate someone about celiac and its other symptoms when it's 1 am, the smell of his pizza is making you queasy, and you've been out dancing all night, so you're thoroughly exhausted. (And my ex and I had gone to the bar earlier in the evening, so the buzz really wasn't helping.) Oy. Also, is there a reason why the smell of pizza really, really makes me wince? I know that others say that they miss it and feel like friends and family are taunting them with it, but seriously? It just makes me gag, even when I'm totally sober. Has been for months.
  7. About the time you mentioned broomball, I definitely started wondering if you were on my campus. The complaints sound similar to what I was dealing with three months ago. I don't know about you, but we don't have a disability office. To get anything done, I've had to go to the dean's, the head of dining services, the "chefs" in the dining hall, the health center, and then petition our food committee. I'm still not completely off the meal plan, but I can handle paying for 5 meals a week instead of all my meals a week. I discussed it calmly and rationally with the health center first. Then I went to the chef. Then I went to dining services. And at the same time, I talked to the dean. When the idiots on the committee said, "Well, we just don't know...," I informed them that they keep poisoning me, that they've seen several people to the hospital in anaphylactic shock, and gave someone hoof and mouth disease. I told them that I would file a complaint if need be, both for general practices and because they were ignoring medical restrictions in direct defiance of the ADA. I hope that helps.
  8. Staying With Friends For A Week, But

    Which small town? And honestly? I've done the 12 to 15 hour trip to and from Anchorage every four months for the past 3 years. It sucks balls, but realistically, it's might be really good to stop in Anchorage overnight. If you're heading the way I think you might be...honestly? That highway is treacherous. The past couple years, the fatality rates are so high that I caution you against driving it tired. (Actually, in either direction, the fatality rates have been increasing.) And if your daughter lives any of the places I'm thinking, she might love you forever for bringing groceries. When I was a kid, anyone who brought groceries was damned near a god. (I can give you grocery store suggestions and probably a list of cheap hotels. Also, bus routes if you're not picking up a car or being met.)
  9. Help I Still Have Headaches

    Miaryan, my response got very long, so I'm PMing you.
  10. College Life

    Clif bars aren't actually gluten-free. They are wheat-free but not gluten-free.
  11. Help I Still Have Headaches

    First off, topamax isn't the only migraine/headache preventative on the market. And it doesn't work for everyone. For me? It made them drastically worse, with the brain fog you're describing and the exhaustion. Because of the brain fog, my doc was worried about the possibility of seizures; I find it ironic that a side effect of a seizure drug is that it can cause seizures. If you're having brain fog, it's probably time to taper down and off so that you can try something else. Off the top of my head: verapamil, lamictal, elavil, and norotryptiline are all known to help prevent migraines. Those aren't the only ones, of course, but they are ones that have either been suggested to me (noro) or that I've used (all the rest and topamax). You didn't mention abortives--is there a reason why your doctor hasn't put you on any? Even if what's going on doesn't count as a migraine, fioricet is known to help with tension headaches and cluster headaches. Midrin is as well, if I remember correctly. Muscle relaxants might work. And sometimes it takes a cocktail to kill the migraines. I'm using verapamil and lamictal at the moment, and it's a combo that works for me. I'm on two different types of abortive drugs, Imitrex in 50mg and 100mg and Maxalt in 10mg. That said, meds aren't the only thing that I do to combat headaches and migraines. You have to understand: I've been where you are and I couldn't afford to take time off. I'm a college student and I had a daily, continuous migraine from November of 2008 to (late) June of 2009. I (somehow) pulled decent grades last year, though I was also as stoned out of my mind as I could be to stay-semi functional. Yay for painkillers. Because I had no other choice, I had to come up with coping mechanisms, play drug roulette, and figure out what abortives worked for me. I also knew I couldn't continue functioning for another year. I found a chiropractor who could relieve some of the pain in my spine that was causing (some) of the problems. I worked with a nutritionist to figure out what headache/migraine triggers could be setting me off. And I identified at least 3 triggers, though I suspect that there are more. This is more-or-less the elimination diet I used and I went off of every single food listed for a month before I tried adding any of them back. I felt better than I have in years. The migraines decreased dramatically and eventually disappeared--or at least, what I count as disappeared--between diet, the chiro, yoga, and the med I was on at the time. I went from daily to one or two a month. It isn't a cure, unfortunately. I'm better, but I still get them. I haven't had a repeat of a daily continuous migraine in a whopping month and a half, but that one was the first I'd had since June. I've had to change my meds twice since then. I use different abortives. I've changed neurologists again because the last one was...unique. I'm going to be going back on the elimination diet again, seeing if there are other foods I've missed. I sleep more than every other college student I know so that I don't set off a migraine from lack of sleep. However, I'm functional again. And that was what I wanted desperately a year ago. I hope some of that helps.
  12. It may not be the coconut milk. Yes, it's possible that the intolerance symptoms are exactly the same. But it's also possible that that batch of Bob's Red Mill is CC'd already. I know I've reacted terribly to most of their products at one point or another; I keep one or two types of Bob's only if it's the only product available.
  13. This is the migraine elimination diet I did last year, and I will be doing it again this summer. (It's suspected we missed some the last time.) I need both meds and cutting out food triggers to get mine to a manageable level (2 or three a week, as opposed to daily and unrelenting), but the elimination diet helped immensely. And please, for the love of god, find a different neurologist. I went through two before I found the one I have now, and while he's not perfect, he knows a lot more about cutting edge research. If he didn't, he wouldn't have agreed with the nutritionist or put me on the latest med combo. A different neuro might be able to find a med that helps with the migraines without harming the baby as well. And more than that, everyone else has a point: if you haven't had both an MRI and a CAT scan recently, you need to have those again.
  14. I can't say anything about the gluten status of Smarties, but I do want to point something out: Smarties in the US and Smarties in Canada are vastly different things. I hate Smarties in the US, though when I was a kid, family would bring back Canadian Smarties for me.
  15. I'm So Careful. But All This... Bah.

    First off, I'm certain others have noted this, but are you positive that you don't have other intolerances? Secondly, I share a kitchen with no fewer than 25 gluten eaters (and possibly more like 40 or 50). I haven't been glutened because of my kitchen in months. And the trick is really, really simple: find some place--some place that is not your kitchen, and where the gluten eaters probably haven't used--where you can prepare everything. For me? I'm a college student. I could risk the living room or the dining area. But I won't. I prepare everything in one corner of my dorm room. If it's a multi-stepped meal, I bring each stage back to my room. It saves my health and keeps the pain to a minimum. Good luck. And it does get better.