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About SabrinaESQ

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  1. I was diagnosed about 1 1/2 months ago. It was absolutely wonderful news after searching for 2 1/2 years for the source of my joint pain. I started with a severe flu, which lasted over 4 weeks, and then began having migratory joint pain off and on. I went to tons of doctors who all basically discounted my issues. But the pain became constant and was severe, so much so that I began having to take narcotic pain medications just to get through the day. Finally, the fifth rheumatologist I went to thought to test for Celiac - and i came up positive. The following endoscopy confirmed - I had a diagnosis. Well, I started my diet RIGHT away, willing to do anything to stop the pain. But I am 1 1/2 months into the diet and my pain is pretty much as bad as ever. I may be experiencing SOME relief, but I think that might be at least partially wishful thinking. Is there anyone else out there who has had this problem? How long is it going to take for me to feel better?
  2. My doc made me do this a few weeks after my blood tests came back. My understanding is that you HAVE to get this done before the diagnosis of Celiac can be confirmed. But I agree that two weeks doesn't sound like enough to prove anything. But the test is definitely necessary (according to docs).
  3. I have spent the last two and a half years trying to find the source of my migratory joint pain. I went to tons of specialists, mostly rheumatologists, who diagnosed me with all kinds of things, none of which had any cure or successful treatment. I kind of got brushed off as dramatic, or an exaggerator and was told to just deal with the pain. It used to come and go in cycles, but for the last four or five months it has been constant. I finally went to another doctor to find out what was going on, because I was in so much pain. After several visits - she tested me for Celiac - which was a total shot in the dark. I was positive! An endoscopy confirmed! Finally, a reason for what I was going through, and a simple solution - just change your diet. After all that pain, I was thrilled to change my diet if that was all it would take. The problem is, I have been gluten free for almost two months and I don't feel any better. The pain is still there, and still strong. I have been on narcotic pain relievers for months to deal with the pain. I was hoping my diet would avoid having to continue these pain killers, but so far I am only growing a bigger tolerance and needed stronger prescriptions. I see other people on the board saying that recovery is slow and may take a year! Oh I hope my relief won't take that long. Sometimes the pain is all I think about. The pills work fairly well, but they make me really drowsy, give me mood swings, and are very addictive. Anyone else who can share their joint pain experience would help me. What meds do you use for the pain? How long did it take for the pain to subside? What dietary changes helped/didn't help? Any other tips?
  4. This is me exactly. I was just diagnosed Celiac and I have been grinding my teeth for about 6 years. It has been getting worse. For most of that time I have had a nightguard, and I use that religiously. But still, I grind all night loudly enough to wake my husband, and then many days I suffer from terrible tension headaches that turn into migraines. Migraine medication helps at that point, but NOTHING has helped the grinding. I was just prescribed muscle relaxants, which I pray will help me. This is all on top of terrible joint pain caused by the Celiac.