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    • Frequently Asked Questions About Celiac Disease   09/30/2015

      This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Store. For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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About koolkat222

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  1. They ARE the brand name Jelly Belly. I thinking that Kirkland gets them in huge bulk, then repackages them. I'm leaning toward Adalaide's suggestion, which is just to avoid them. I'll continue to enjoy Jelly Bellies that aren't packaged by Costco.
  2. I'm sorry for all you're going through. I had (a few, still have) many of the same symptoms. Going gluten free was a life-changer for me! I was able to eat without having pain all of the time, and some of my other symptoms improved as well. Like I said, I really can relate to many of your symptoms. I found out that I was clenching/grinding my jaw in my sleep. At first I didn't believe it, but after grinding through a mouthguard in about 3 weeks, I couldn't argue with that proof. That kind of clenching caused terrible headaches, tension, pain in shoulders and neck, etc. I'm still working on the clenching. Keep us up to date on what happens with you. Good luck!
  3. Jelly Bellies are a yummy treat for me, and I know that they are 100% gluten free. Costco sells a 4 lb. tub of them. I haven't had them in awhile, so naturally I read the label to make sure they were still safe for me. The ingredients are still gluten free, but under allergy information it says, "This product is packaged on equipment that also packages products that contain peanuts, tree nuts, wheat, soybeans, eggs, and milk." Noooo! I can't remember if that was always on the package or not. Can I still eat them? Has anybody else had a similar situation?
  4. Stress !@#$ And Celiac Disease

    I thought that, for many celiacs, this was the case. I heard an explanation that said we had some sort of predisposion to celiac; but it wasn't triggered until we experienced a highly stressful, life changing event that "turned on" the celiac. I know this isn't the case with everyone, but I believe it was the case with me. Nobody else in my family has celiac.
  5. I totally sympathize with you! I'm so careful about what I eat, yet it seems my stomach is never normal! I rarely eat out because I am very sensitive to cross contamination. My family threw a surprise birthday party for my dad last month. I wasn't planning on eating. But,the owner of the restaurant assured me that a special appetizer and a salad meal with gluten-free ingredients had been made for me. Then I told him about the cross- contamination issue, and he said that precautions would be taken. The meal was very good, and I thought I was ok. I don't react within minutes like some celiacs do; my reactions take about an hour or so to kick in. It was the worst glutening and longest lasting (weeks) symptoms I've ever had! So I understand the frustration you feel!
  6. Red Robin Treated Me Like A Princess.

    Wow, that is so great to hear! Since going gluten-free, I've been a bit leery about Red Robin because of all of the gluten foods. I've very sensitive to cross-contamination so I rarely eat out. This post makes me feel hopeful about eating there. Thanks
  7. I wouldn't eat gluten again just to get an "official" diagnosis. To me, it's just not worth it. I know that even a tiny amount of gluten does me in. I can't stand the thought of willingly ingesting any gluten.
  8. You are feeling better, and that's the important thing! Unless there is some reason for an "official" diagnosis, I wouldn't worry about it. I know the relief you're experiencing at finally realizing, after all these years, what has been making you feel so terrible.
  9. Same here! I get a bad tummyache with plain eggs of any kind. I'm fine if they are an ingredient in something though. Didn't realize others experienced this as well.
  10. Exhaustion

    Stick to the gluten-free diet (no cheating at all) and you should start feeling better very soon. I lost weight very quickly once my villi began to heal, and I started absorbing some nutrients again.
  11. I would say it's definitely possible. I've gotten glutened after kissing my husband after he ate cereal. Better safe than sorry.
  12. You should definitely try going gluten-free. You just might the answer to your problems, and there's nothing to lose. I started to feel better in just a few days. Of course, it took my body much longer to heal, but I did feel better. Good luck to you
  13. I didn't realize Disneyland had so many gluten free options available. I was at Rainforest Cafe in Downtown Disney with my family, but I didn't order anything. The manager came over to ask if anything was wrong. I briefly explained that I had celiac. Imagine my surprise when she told my they could make me a gluten free meal. I told her that cross-contamination was a factor as well. She knew about that too. So I ordered and enjoyed my first restaurant meal in three years!
  14. Trusting Other People's gluten-free Cooking

    I'm in the same boat as kareng. I don't know anyone else who is gluten-free. It would make things easier, and it would be fun to be able to cook/eat with someone who is as careful as I have to be.
  15. Las Vegas Experience

    Thanks for the dining info. I'm super sensitive, so I don't experiment much. This will help because I do make the occasional trip to Las Vegas. I love that you're a reliable "glutenometer" And, congratulations to the newlyweds!!!