This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc. Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity
font=Tahoma]I have to say Lisa hit the nail on the head with summing it up as "horrible, painful and embarassing"! I get it on the crack of my behind and have seen many doctors including dermatologist who have done biopsys and still didn't get a diagnosis. They could tell what it wasn't but not what it was. After ten years of unexplained rashes I finaly figured it out in March. After doing a nutritional cleans that happened to be gluten free and thirty days of no out breaks I put the peices together! Since then I have broke out twice - once when I failed to check the label of a vitamine/supplament that contained wheat germ and another when I failed to read the ingredeints in a bottle of lotion. The thought of loading up on gluten in order to get a positive diagnosis through a biopsy makes me ill, I think I might try the DNA testing.
Wow, I'm sorry to read that you and your daughter have to deal with DH. After living with it for about ten years undiagnosed (and have only been self diagnosed since March) I can tell you that nothing you use topicly will help, I'v tried everything! The only thing that makes a diffrence is a STRICT gluten free diet. Be careful about soap, lotion, makeup, shampo, ect. I have dicovered that those items can contain gluten as well! After my last rash I tried to figure out what I ate that had gluten in it and came up empty handed, while the rash stayed for days I finaly figured out it was a new body lotion! Once I switched back to my old stand by the rash cleared up. Good luck, I hope this helps.