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SaucygirlR added a topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)Ready To Throw In The Towel!I am very, very confused and frustrated. I was diagnosed with celiac disease by my family doctor about a year ago; I didn't see my test results, but assumed that's what I had because I went to her with IBS symptoms and she took blood tests and said it came back positive. I also had an upper and lower GI which showed nothing wrong. Went gluten free for several months but was also on prednisone to help with the "inflammation" in my stomach. Felt okay, but not great. I gained about 40 pounds (probably from the prednisone), and since I'm already about 100 pounds overweight, this did not help much. Fell off the wagon last summer and didn't do very well not eating gluten and didn't feel any better, any worse, just kind of status quo. Symptoms prior to diagnosis were a lot of gas, bloating, and diarrhea in the mornings with alternating constipation from time to time and sometimes nausea. Well, I decided about five months ago to get on the bandwagon and go totally gluten free because I was concerned about my health, infertility, etc. While eating gluten, I lost about 25 pounds, which, for me, is not a bad thing since I am so overweight. Since I have stopped eating gluten, everything is much, much worse. Instead of having diarrhea in the morning and stomach pain at night, I now have diarrhea all the time, it's totally unpredictable (before, if I was able to get it "all out of my system" in the morning, I'd generally be fine the rest of the day. Now, it "hits" with no warning, instead of having 3-4 bms a day I'm having between 8-10, I am in constant pain (my stomach feels very "irritated", for lackof a better word, it hurts constantly, I have constant pain in the upper part of my abdomen that wraps around to my back, lower back pain, feel constantly hungry, have been vomiting "randomly" at times) and I am getting so that I am afraid to leave the house because my diarrhea, which was once "limited" to the morning, now has no rhyme or reason. I was also diagnosed with GERD and since going gluten free I have GERD related chest pains that are so severe and scary that I alone have probably put the ER doctor's children through college and grad school! I feel terrible and my symptoms are a thousand times worse! Things that used to not upset my stomach, like salads, are now totally out of the question because they pass through me totally undigested and give me horrible, horrible diarrhea (more horrible than normal), and I feel like my quality of life is nonexistent. I thought that going gluten free was supposed to make a celiac feel better??? I can eat nothing but a rice cake and rice with a chicken breast and asparagus and have a stomach that is much, much, worse than if I ate lasagna with garlic bread! I'm getting to the point that I don't even want to bother with this gluten free stuff any longer because it's expensive, it's exhausting, it's limiting and frustrating, and I'm feeling worse.
So, after all of that venting, I guess , here's my question:
I got my test results from my doctor. They show Antiendomysial < 1.5 (the lab work says "<1.5 Negative, no significant level detectable), Gliadin IGG 67, high, reference is less than 20, IGA 11, normal, reference is less than 20. My question is, do I have this disease or what? I've done a great deal of research and have read that the antiendomysial test is much more accurate than the antibody tests and that the IGA is a sign of celiac, not the IGG. I've thought about doing a gluten challenge and getting retested, but the only gastroenterologist is 80 miles away (read: road trip, bad for someone with chronic diarrhea issues) and I've already spent thousands of dollars on medical bills in the last year and am not sure I want to pay more. Any thoughts would be greatly appreciated! I have thought that maybe I was just trying to "cop out" of having celiace disease because I don't really want to have it, but I've learned that eating gluten free isn't so hard or terrible these last few months, and don't mind doing it IF this is what I really have and IF my health got better instead of worse.
I would really appreciate any help or guidance. I eat a pretty bland diet nowadays because I'm hoping my stomach will feel better, but it's just gone from bad to worse and now I'm thoroughly confused about my test results. I consider you guys the "experts" moreso than my doctor ninety percent of the time, so I would love to hear what anyone has to say!
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SaucygirlR added a topic in Gluten-Free Foods, Products, Shopping & MedicationsAnother Blue Cheese QuestionHello! I hope I'm not asking a question that has been asked a thousand times; I did a search and didn't really find an answer, so I'll post anyway and hope I'm not redundant. Anyway, I am wondering if it is the actual blue cheese that contains gluten in blue cheese salad dressings, or if it is the dressing ingredients? I do not want to continue to contaminate myself, and I have read that Kraft Blue Cheese and Marie's Blue Cheese dressings are gluten free, but if they contain blue cheese, and it's the cheese that is glutinous, then how can they be gluten free? This is, sadly, a serious issue for me because the one thing I have been thrilled about not having to give up on (and about the only thing I can eat when going out) is a salad with my "bring along" blue cheese dressing, but the more I read, the more it sounds like blue cheese is just innately full of gluten. I also really enjoy making blue cheese hamburgers (bunless, of course), at home and would be sad to lose such a wonderful flavor.
Any help and answers are greatly, greatly appreciated. I'm a newly diagnosed celiac and am, quite honestly, having a serious, serious struggle staying gluten free. I last about three days, and then I'm back to eating gluten. I work 50 hours a week and go to school part time and I just can't find the time to cook from scratch, and I've eaten "convenient" gluten free foods and I have literally gagged. It's an adjustment that I am not making extremely well, but every day it gets a little easier when I find out just how much I really can eat. But please don't take away my blue cheese!! Unless, of course, I have to
Thank you again!
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