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      • Frequently Asked Questions About Celiac Disease   09/30/2015

        This FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE email alerts What are the major symptoms of celiac disease? Celiac Disease SymptomsWhat testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease ScreeningInterpretation of Celiac Disease Blood Test ResultsCan I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful?The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-FreeIs celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic TestingIs there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and DisordersIs there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients)Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients)Gluten-Free Alcoholic BeveragesDistilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free?Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free DietFree recipes: Gluten-Free RecipesWhere can I buy gluten-free stuff? Support this site by shopping at The Store.For Additional Information: Subscribe to: Journal of Gluten Sensitivity


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    About lolo

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    1. lolo added a post in a topic Weight Gain After Celiac Dx/eating Disorder   

      JesikaBeth - I decided that I am going to make an appointment with the dietician. I don't see how it could hurt...especially if she has helpful suggestions on implenting the gluten-free diet while not purging.

      Do you know how I can send you my information? I actually saw your post about not being able to use the Send Message feature. The same thing is happening to me. I don't know how to give my info to you without posting it for everyone to see.
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    2. lolo added a post in a topic Weight Gain After Celiac Dx/eating Disorder   

      Mai I tried to send you my email address but I can't...I keep getting an error message. I think it's because I haven't made enough posts yet so I'm not able to use that feature? Are you able to send me your info? I'm new to this so I don't know how to all the features/functions very well.
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    3. lolo added a post in a topic Why Can't I "send Message" @ Friend's Profile?   

      I was wondering the same exact thing! What if I want to send someone my personal email address? I don't want to post it for everyone to see.
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    4. lolo added a post in a topic Weight Gain After Celiac Dx/eating Disorder   

      Thank you so much JesikaBeth, katie may, and Mai for your replies! Honestly knowing that I am not alone in this battle is helpful and encouraging. It's difficult to overcome this battle when you feel so alone and isolated. Half the time I feel crazy and out of control because I know my behaviors are not normal and I want to stop them but I can't. Other times (in moments of clarity when my mind slows down and focuses a little more) I realize that I am not the only person struggling with this, recovery is possible, and that I need to take things day by day and be gentle with myself.

      I really felt like I could relate to each of you...

      JesikaBeth - seeing a dietician who is knowledgable in both Celiac Disease and eating disorders is exactly what I was considering doing. I do know of one in my area. I don't know how much she can tell me that I don't already know. My problem is applying what I've been taught. I am no longer in therapy...I wasn't really connecting with the therapist I was seeing and didn't feel like I was getting much out of the experience. I know there are other therapists but I don't really want to rehash it all from the beginning.

      katie may - As a Catholic I can appreciate everything you said. I do feel selfish and guilty about my relationship with food. I want God to be my priority in life...not food. I want to eat for to nourish my body. Your evil twin anology is not crazy - it makes so much sense and I often feel that way. The bad, evil twin likes to be in control. It's basically the voice of my low self-esteem and insecurities coming out...telling me I can't do anthing right, I'm scared of rejection, but feeding her (literally) wil numb those emotions temporarily. The good twin tells me that I am a good person, deserving of a healthy gluten-free diet, and capable of following it. She tells me I don't need food to deal with negative emotions. I need her voice to always be louder and stronger. Thanks for believing in me.

      Mai - Thank you for relating to me! Knowing there is another person out there sharing my struggle gives me hope. It makes me feel not so gives the disease less power and control over me. I think we just might be twins! lol So you said you ended up in a science degreee...I got my bachelor's degree in biology! It sounds like we are a lot alike. And yes, I would be very interesting in hearing about your journey to recovery. I am going to send you my email address.

      Thanks again!
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    5. lolo added a topic in Gluten-Free Diet & Weight Issues   

      Weight Gain After Celiac Dx/eating Disorder
      In short, I have struggled with an eating disorder for about 5 years. My patterns have shifted from calorie restriction to vomiting after eating foods foods I try to avoid. Eating larger amounts of healthy foods or any amount of unhealthy food automatically makes me want to purge these calories. The "unhealthy foods" tend to be high carbohydrate foods like baked goods, macaroni and cheese, french fries, bread, etc. If that wasn't bad enough, I was diadnosed with celiac disease in September 2008. At my worst I was down to 95 lbs at 5'3". In November I entered an intensive outpatient program for eating disorders. I was able to follow a gluten-free diet and stop purging for 3 months. The combination of weight gain and a breakup caused me to revert to my old behaviors. I have gained 25 lbs. over the last 8 months. I hate the way I feel about my body and the constant obsession over food is terrible! I feel like I am stuck between a rock and a hard place. I don't want to gain weight on a gluten-free diet and sometimes I don't believe I have the willpower to stick to it. It's a mind game I play with myself. A part of me wants to think that I can continue these unhealthy behaviors and that eating gluten-based foods will make me lose weight; albeit feeling weak, tired, unhappy, and like I'm living a secret life. The other half of me wants to be healthy...stick to a gluten-free diet, stop the purging behavior, and quit obsessing about food! Sorry for the long post. ANY advice, thoughts, information would be greatly appreciated!
      • 11 replies

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