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rochesterlynn

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About rochesterlynn

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  1. Lisa......thank you for your reply. I live in MN and my daughter lives in GA. So, I don't have her test results. I will try to get them from her if I can. Thanks. Lynn
  2. [quote name='Diana1977' date='Sep 26 2009, 09:15 AM']Has she had a food allergy blood test done? Celiac blood test? Has she tried the gluten free diet? It only takes a few days after going gluten free to feel the benefits![/quote] Hi, Thanks for your help. My daughter has not been tested for food allergy. She did have a celiac blood test years ago that was negative. I think our next step would be going gluten free and/or having her DNA tested. Do you know of a respected lab to do her DNA? I will welcome any ideas that you may have. Thank you. mnmom
  3. I Am Trying To Help My Daughter

    This is my first time trying to use this site and I fear I am making a mess of it !!! I need help in knowing how to help my daughter who is 38 years old. For the past 23 years she has suffered with an illness that has been undiagnosable. Her initial symptoms were in her words, "my hands hurt and feel different; my elbows hurt, but the pain is not in my joints, it is all around my joints; I'm very tired; I have a lot of drainage and it is making my throat sore". From that point, her symptoms have progressed to severe total body aches, anemia due to chronic illness, crushing fatigue & weakness, dizziness, rashes and some stomach problems. She has not had the severe GI problems that others have. She has suffered all these years with no available treatment. Episodes keep her frequently home bound. Her recent endoscopy with biopsy was normal. I feel her biopsy was normal, because her GI involvement is not severe. One of her cousins has been diagnosed with celiac and another cousin has severe GI problems. Please help me to know what to do next. Thank you. mnmom
  4. I Am Trying To Help My Daughter

    This is my first time trying to use this site and I fear I am making a mess of it !!! I need help in knowing how to help my daughter who is 38 years old. For the past 23 years she has suffered with an illness that has been undiagnosable. Her initial symptoms were in her words, "my hands hurt and feel different; my elbows hurt, but the pain is not in my joints, it is all around my joints; I'm very tired; I have a lot of drainage and it is making my throat sore". From that point, her symptoms have progressed to severe total body aches, anemia due to chronic illness, crushing fatigue & weakness, dizziness, rashes and some stomach problems. She has not had the severe GI problems that others have. She has suffered all these years with no available treatment. Episodes keep her frequently home bound. Her recent endoscopy with biopsy was normal. I feel her biopsy was normal, because her GI involvement is not severe. Please help me to know what to do next. One of her cousins has been diagnosed with celiac and another cousin has severe GI problems. Please help me to know what to do next. Thank you. mnmom
  5. Hi, I'm sorry that I can not help you. I have just joined this site. My daughter has now been sick 23 years with what now looks like celiac diease. She is to start IV infusions this week for her anemia. I am wondering if that was the treatment you got for your tiredness. If so, did the infusions make you sick? Did the infusions cause your nausea to start? My daughter is afraid to have the infusions and I am trying to gather info on the side effects of the infusions. Thanks. Worried mom, rochesterlynn